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How People with Multiple Sclerosis Rate Their Quality of Life: An EQ-5D Survey via the UK MS Register / Kerina H. Jones; David V. Ford; Philip A. Jones; Ann John; Rodden M. Middleton; Hazel Lockhart-Jones; Jeffrey Peng; Lisa A. Osborne; J. Gareth Noble

PLoS ONE, Volume: 8, Issue: 6, Start page: e65640

Swansea University Author: Jones, Philip

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Abstract

Introduction: The EQ-5D is a widely-used quality of life measure producing health profiles, indices and states. The aims of this study were to assess how people with Multiple Sclerosis rate their quality of life, based on responses to the EQ-5D received via the web portal of the UK MS Register.Metho...

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Published in: PLoS ONE
ISSN: 1932-6203
Published: 2013
Online Access: Check full text

URI: https://cronfa.swan.ac.uk/Record/cronfa14759
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Abstract: Introduction: The EQ-5D is a widely-used quality of life measure producing health profiles, indices and states. The aims of this study were to assess how people with Multiple Sclerosis rate their quality of life, based on responses to the EQ-5D received via the web portal of the UK MS Register.Methods: The 4516 responses to the EQ-5D (between May 2011 and April 2012) were collated with basic demographic and descriptive MS data and the resulting dataset was analysed in SPSS(v.20).Results: The mean health state for people with MS was 59.7 (SD 22.4, median 61), compared to the UK population mean of 83.4 (approximately 1SD above the cohort mean). The characteristics of respondents with high health states (at or above +1SD) were: better health profiles (most predictive dimension: Usual Activities), higher health indices, younger age, shorter durations of MS, female gender, relapsing remitting MS, higher educational attainment and being in paid employment. Conversely, the characteristics of respondents with low health states (at or below -1SD) were: poorer health profiles (most predictive dimension: Mobility), lower health indices, older age, longer durations of MS, male gender, progressive MS, lower educational attainment and being sick/disabled (all p-values <0.001). Particular living arrangements were not associated with either the high or low health status groups.Conclusions: This large-scale study has shown how people with MS rate their quality of life, and how various characteristics contribute to their self-assessed health status. These findings demonstrate the impact of MS on quality of life and can be used to support care provision and further research to work towards enhancing the quality of life of people with MS.
Keywords: MS EQ-5D Multiple Sclerosis Qulatiy of Life
College: Swansea University Medical School
Issue: 6
Start Page: e65640