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Caring for the Child at the End-of Life / Ruth Davies

Palliative Care for Children and Families: An Interdisciplinary Approach, Pages: 172 - 191

Swansea University Author: Davies, Ruth

Abstract

Despite all our best efforts children and young people still die from Life-Limiting conditions. The aim of this chapter is to discuss current service provision in relation to their end-of–life care and identify the best of evidence-based practice. The focus at this stage must be on meeting the needs...

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Published in: Palliative Care for Children and Families: An Interdisciplinary Approach
Published: 2009
URI: https://cronfa.swan.ac.uk/Record/cronfa14056
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last_indexed 2018-02-09T04:45:13Z
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spelling 2013-05-01T13:14:45Z v2 14056 2013-01-25 Caring for the Child at the End-of Life Ruth Davies Ruth Davies true false f8b96236900b6b922a6be63037854d2c d41d8cd98f00b204e9800998ecf8427e nZ5t+O3E3ZmVgqGuesqZ+g== 2013-01-25 CHHS Despite all our best efforts children and young people still die from Life-Limiting conditions. The aim of this chapter is to discuss current service provision in relation to their end-of–life care and identify the best of evidence-based practice. The focus at this stage must be on meeting the needs and wishes of the dying child or young person and their family and for this reason it will be shown how the ACT (2004) Care Pathway can facilitate this in practice. Having lost a much-loved teenage son to cancer, I write with personal as well as professional conviction about the importance of a ‘good death’, that is, one that is dignified and pain free. I believe this is the goal of high quality of end-of-life care, and an achievable on, but only if professionals commit to this ideal and apply a systematic evidence-based approach to care in practice. Meeting the needs and wishes of the dying child or young person as well as their family is essential if we are to achieve ‘good death’. This, in my estimation, is the Alpha and Omega of high quality end-of–life care. Chapter in book Palliative Care for Children and Families: An Interdisciplinary Approach 172 191 End- of - life care for the dying child evidence-based systematic approach 0 0 2009 2009-01-01 Edited by Jayne Price and Partricia McNeilly College of Human and Health Sciences College CHHS CHHS Swansea University None 2013-05-01T13:14:45Z 2013-01-25T09:44:54Z College of Human and Health Sciences Nursing Ruth Davies 1
title Caring for the Child at the End-of Life
spellingShingle Caring for the Child at the End-of Life
Davies, Ruth
title_short Caring for the Child at the End-of Life
title_full Caring for the Child at the End-of Life
title_fullStr Caring for the Child at the End-of Life
title_full_unstemmed Caring for the Child at the End-of Life
title_sort Caring for the Child at the End-of Life
author_id_str_mv f8b96236900b6b922a6be63037854d2c
author_id_fullname_str_mv f8b96236900b6b922a6be63037854d2c_***_Davies, Ruth
author Davies, Ruth
author2 Ruth Davies
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publishDate 2009
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hierarchy_top_title College of Human and Health Sciences
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department_str Nursing{{{_:::_}}}College of Human and Health Sciences{{{_:::_}}}Nursing
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description Despite all our best efforts children and young people still die from Life-Limiting conditions. The aim of this chapter is to discuss current service provision in relation to their end-of–life care and identify the best of evidence-based practice. The focus at this stage must be on meeting the needs and wishes of the dying child or young person and their family and for this reason it will be shown how the ACT (2004) Care Pathway can facilitate this in practice. Having lost a much-loved teenage son to cancer, I write with personal as well as professional conviction about the importance of a ‘good death’, that is, one that is dignified and pain free. I believe this is the goal of high quality of end-of-life care, and an achievable on, but only if professionals commit to this ideal and apply a systematic evidence-based approach to care in practice. Meeting the needs and wishes of the dying child or young person as well as their family is essential if we are to achieve ‘good death’. This, in my estimation, is the Alpha and Omega of high quality end-of–life care.
published_date 2009-01-01T12:54:39Z
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