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Managing fatigue after cancer treatment: development of RESTORE, a web-based resource to support self-management / C Foster; L Calman; C Grimmett; M Breckons; P Cotterell; L Yardley; J Joseph; S Hughes; R Jones; C Leonidou; J Armes; L Batehup; J Corner; D Fenlon; E Lennan; C Morris; A Neylon; E Ream; L Turner; A Richardson

Psycho-Oncology, Volume: 24, Issue: 8, Pages: 940 - 949

Swansea University Author: Fenlon, Deborah

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DOI (Published version): 10.1002/pon.3747

Abstract

Objective: The aim of this study is to co-create an evidence-based and theoretically informedweb-based intervention (RESTORE) designed to enhance self-efficacy to live with cancer-relatedfatigue (CRF) following primary cancer treatment.Methods: A nine-step process informed the development of the int...

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Published in: Psycho-Oncology
ISSN: 10579249
Published: 2015
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URI: https://cronfa.swan.ac.uk/Record/cronfa32827
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Abstract: Objective: The aim of this study is to co-create an evidence-based and theoretically informedweb-based intervention (RESTORE) designed to enhance self-efficacy to live with cancer-relatedfatigue (CRF) following primary cancer treatment.Methods: A nine-step process informed the development of the intervention: (1) review of empiricalliterature; (2) review of existing patient resources; (3) establish theoretical framework; (4) establishdesign team with expertise in web-based interventions, CRF and people affected by cancer; (5)develop prototype intervention; (6) user testing phase 1; (7) refinement of prototype; (8) user testingphase 2; and (9) develop final intervention.Results: Key stakeholders made a critical contribution at every step of intervention development,and user testing, which involved an iterative process and resulted in the final intervention. TheRESTORE intervention has five sessions; sessions 1 and 2 include an introduction to CRF and goalsetting. Sessions 3–5 can be tailored to user preference and are designed to cover areas of life whereCRF may have an impact: home and work life, personal relationships and emotional adjustment.Conclusions: It is feasible to systematically ‘co-create’ an evidence-based and theory-drivenweb-based self-management intervention to support cancer survivors living with the consequencesof cancer and its treatment. This is the first account of the development of a web-based interventionto support self-efficacy to manage CRF. An exploratory trial to test the feasibility and acceptabilityof RESTORE is now warranted.
College: College of Human and Health Sciences
Issue: 8
Start Page: 940
End Page: 949