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Children's stories on managing their chronic illness at home. / Marie Elizabeth Bodycombe-James

Swansea University Author: Marie Elizabeth, Bodycombe-James

Abstract

Changes in the epidemiology of child health have resulted in the reduction of acute infectious disease and an increase in the numbers of children who live with a chronic condition. Children with a chronic condition are more likely to be hospitalised due to complications, or exacerbation of their con...

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Published: 2012
Institution: Swansea University
Degree level: Doctoral
Degree name: Ph.D
URI: https://cronfa.swan.ac.uk/Record/cronfa42534
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first_indexed 2018-08-02T18:54:56Z
last_indexed 2019-10-21T16:48:00Z
id cronfa42534
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spelling 2018-08-29T16:21:31.9634474 v2 42534 2018-08-02 Children's stories on managing their chronic illness at home. 9b9b05283813f60982dd2b96e4152b73 NULL Marie Elizabeth Bodycombe-James Marie Elizabeth Bodycombe-James true true 2018-08-02 Changes in the epidemiology of child health have resulted in the reduction of acute infectious disease and an increase in the numbers of children who live with a chronic condition. Children with a chronic condition are more likely to be hospitalised due to complications, or exacerbation of their condition. Repeated hospital admission for children has been shown to be detrimental to their psychological and physical health. However the provision of care at home by community children's nursing service has been reported as less stressful and facilitates normality for the child and family. Within this thesis I have explored the experiences of thirty (n-30) children between the ages of seven and eleven years of age of managing their chronic illness at home. I adopted a narrative inquiry approach to the research which was based on the concept that children are social actors who can act with intention in their own lives. The thesis is grounded within the new sociology of childhood and adopted the framework of the Mosaic Approach to focus this study to involve child participants as co-constructors of meaning. The study shows that children prefer to be looked after at home by the community children's nurse. They are able to recognise the knowledge and skills of the community children's nurse, and the study has identified that the community children's nurse empowers children with a chronic illness to enable them to develop the knowledge and skills they require to manage their chronic illness at home. The study highlights the need for more research that includes children as participants and also as co- researchers to ensure that services provided to children are designed to meet needs that the children themselves have identified. E-Thesis Nursing, child health, chronic illness 31 12 2012 2012-12-31 COLLEGE NANME Nursing COLLEGE CODE Swansea University Doctoral Ph.D 2018-08-29T16:21:31.9634474 2018-08-02T16:24:29.5873977 College of Human and Health Sciences Nursing Marie Elizabeth Bodycombe-James NULL 1 0042534-02082018162502.pdf 10805283.pdf 2018-08-02T16:25:02.0830000 Output 9106033 application/pdf E-Thesis true 2018-08-02T16:25:02.0830000 false
title Children's stories on managing their chronic illness at home.
spellingShingle Children's stories on managing their chronic illness at home.
Marie Elizabeth, Bodycombe-James
title_short Children's stories on managing their chronic illness at home.
title_full Children's stories on managing their chronic illness at home.
title_fullStr Children's stories on managing their chronic illness at home.
title_full_unstemmed Children's stories on managing their chronic illness at home.
title_sort Children's stories on managing their chronic illness at home.
author_id_str_mv 9b9b05283813f60982dd2b96e4152b73
author_id_fullname_str_mv 9b9b05283813f60982dd2b96e4152b73_***_Marie Elizabeth, Bodycombe-James
author Marie Elizabeth, Bodycombe-James
author2 Marie Elizabeth Bodycombe-James
format E-Thesis
publishDate 2012
institution Swansea University
college_str College of Human and Health Sciences
hierarchytype
hierarchy_top_id collegeofhumanandhealthsciences
hierarchy_top_title College of Human and Health Sciences
hierarchy_parent_id collegeofhumanandhealthsciences
hierarchy_parent_title College of Human and Health Sciences
department_str Nursing{{{_:::_}}}College of Human and Health Sciences{{{_:::_}}}Nursing
document_store_str 1
active_str 0
description Changes in the epidemiology of child health have resulted in the reduction of acute infectious disease and an increase in the numbers of children who live with a chronic condition. Children with a chronic condition are more likely to be hospitalised due to complications, or exacerbation of their condition. Repeated hospital admission for children has been shown to be detrimental to their psychological and physical health. However the provision of care at home by community children's nursing service has been reported as less stressful and facilitates normality for the child and family. Within this thesis I have explored the experiences of thirty (n-30) children between the ages of seven and eleven years of age of managing their chronic illness at home. I adopted a narrative inquiry approach to the research which was based on the concept that children are social actors who can act with intention in their own lives. The thesis is grounded within the new sociology of childhood and adopted the framework of the Mosaic Approach to focus this study to involve child participants as co-constructors of meaning. The study shows that children prefer to be looked after at home by the community children's nurse. They are able to recognise the knowledge and skills of the community children's nurse, and the study has identified that the community children's nurse empowers children with a chronic illness to enable them to develop the knowledge and skills they require to manage their chronic illness at home. The study highlights the need for more research that includes children as participants and also as co- researchers to ensure that services provided to children are designed to meet needs that the children themselves have identified.
published_date 2012-12-31T04:00:29Z
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score 10.763133