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Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review
Journal of Medical Internet Research, Volume: 22, Issue: 5, Start page: e16346
Swansea University Authors: Kerina Jones , Helen Daniels , Sharon Heys, Arron Lacey, David Ford
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DOI (Published version): 10.2196/16346
Abstract
Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review
Published in: | Journal of Medical Internet Research |
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ISSN: | 1438-8871 |
Published: |
JMIR Publications Inc.
2020
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URI: | https://cronfa.swan.ac.uk/Record/cronfa53556 |
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2020-05-22T19:42:40.6743102 v2 53556 2020-02-17 Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review c13b3cd0a6f8cbac2e461b54b3cdd839 0000-0001-8164-3718 Kerina Jones Kerina Jones true false a054902cb884be2476d0f097f0016294 0000-0001-8899-0333 Helen Daniels Helen Daniels true false 61f095d8f6942db1b4fd65e2053091f5 Sharon Heys Sharon Heys true false b69d245574e754d2637cc9e76379fe11 Arron Lacey Arron Lacey true false 52fc0c473b0da1b7218d87f9fc68a3e6 0000-0001-6551-721X David Ford David Ford true false 2020-02-17 HDAT Journal Article Journal of Medical Internet Research 22 5 e16346 JMIR Publications Inc. 1438-8871 genomic data; data safe havens; data governance 15 5 2020 2020-05-15 10.2196/16346 COLLEGE NANME Health Data Science COLLEGE CODE HDAT Swansea University UKRI, MRC / MC_PC_16035 2020-05-22T19:42:40.6743102 2020-02-17T14:43:09.3401071 Kerina Jones 0000-0001-8164-3718 1 Helen Daniels 0000-0001-8899-0333 2 Sharon Heys 3 Arron Lacey 4 David Ford 0000-0001-6551-721X 5 53556__17331__7cdd48c4c4144fcab6e969e457c90b59.pdf 53556VOR.pdf 2020-05-22T19:40:48.4680570 Output 152314 application/pdf Version of Record true Released under the terms of a Creative Commons Attribution License (CC-BY). true eng https://creativecommons.org/licenses/by/4.0/ |
title |
Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review |
spellingShingle |
Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review Kerina Jones Helen Daniels Sharon Heys Arron Lacey David Ford |
title_short |
Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review |
title_full |
Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review |
title_fullStr |
Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review |
title_full_unstemmed |
Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review |
title_sort |
Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review |
author_id_str_mv |
c13b3cd0a6f8cbac2e461b54b3cdd839 a054902cb884be2476d0f097f0016294 61f095d8f6942db1b4fd65e2053091f5 b69d245574e754d2637cc9e76379fe11 52fc0c473b0da1b7218d87f9fc68a3e6 |
author_id_fullname_str_mv |
c13b3cd0a6f8cbac2e461b54b3cdd839_***_Kerina Jones a054902cb884be2476d0f097f0016294_***_Helen Daniels 61f095d8f6942db1b4fd65e2053091f5_***_Sharon Heys b69d245574e754d2637cc9e76379fe11_***_Arron Lacey 52fc0c473b0da1b7218d87f9fc68a3e6_***_David Ford |
author |
Kerina Jones Helen Daniels Sharon Heys Arron Lacey David Ford |
author2 |
Kerina Jones Helen Daniels Sharon Heys Arron Lacey David Ford |
format |
Journal article |
container_title |
Journal of Medical Internet Research |
container_volume |
22 |
container_issue |
5 |
container_start_page |
e16346 |
publishDate |
2020 |
institution |
Swansea University |
issn |
1438-8871 |
doi_str_mv |
10.2196/16346 |
publisher |
JMIR Publications Inc. |
document_store_str |
1 |
active_str |
0 |
published_date |
2020-05-15T04:06:33Z |
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1763753479190347776 |
score |
11.024221 |