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Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review

Kerina Jones, Helen Daniels Orcid Logo, Sharon Heys, Arron Lacey Orcid Logo, David Ford Orcid Logo

Journal of Medical Internet Research, Volume: 22, Issue: 5, Start page: e16346

Swansea University Authors: Kerina Jones, Helen Daniels Orcid Logo, Sharon Heys, Arron Lacey Orcid Logo, David Ford Orcid Logo

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DOI (Published version): 10.2196/16346

Published in: Journal of Medical Internet Research
ISSN: 1438-8871
Published: JMIR Publications Inc. 2020
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URI: https://cronfa.swan.ac.uk/Record/cronfa53556
first_indexed 2020-05-23T03:07:54Z
last_indexed 2020-05-23T03:07:54Z
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spelling 2020-05-22T19:42:40.6743102 v2 53556 2020-02-17 Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review c13b3cd0a6f8cbac2e461b54b3cdd839 Kerina Jones Kerina Jones true false a054902cb884be2476d0f097f0016294 0000-0001-8899-0333 Helen Daniels Helen Daniels true false 61f095d8f6942db1b4fd65e2053091f5 Sharon Heys Sharon Heys true false b69d245574e754d2637cc9e76379fe11 0000-0001-7983-8073 Arron Lacey Arron Lacey true false 52fc0c473b0da1b7218d87f9fc68a3e6 0000-0001-6551-721X David Ford David Ford true false 2020-02-17 Journal Article Journal of Medical Internet Research 22 5 e16346 JMIR Publications Inc. 1438-8871 genomic data; data safe havens; data governance 15 5 2020 2020-05-15 10.2196/16346 COLLEGE NANME COLLEGE CODE Swansea University UKRI, MRC / MC_PC_16035 2020-05-22T19:42:40.6743102 2020-02-17T14:43:09.3401071 Kerina Jones 1 Helen Daniels 0000-0001-8899-0333 2 Sharon Heys 3 Arron Lacey 0000-0001-7983-8073 4 David Ford 0000-0001-6551-721X 5 53556__17331__7cdd48c4c4144fcab6e969e457c90b59.pdf 53556VOR.pdf 2020-05-22T19:40:48.4680570 Output 152314 application/pdf Version of Record true Released under the terms of a Creative Commons Attribution License (CC-BY). true eng https://creativecommons.org/licenses/by/4.0/
title Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review
spellingShingle Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review
Kerina Jones
Helen Daniels
Sharon Heys
Arron Lacey
David Ford
title_short Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review
title_full Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review
title_fullStr Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review
title_full_unstemmed Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review
title_sort Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review
author_id_str_mv c13b3cd0a6f8cbac2e461b54b3cdd839
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author_id_fullname_str_mv c13b3cd0a6f8cbac2e461b54b3cdd839_***_Kerina Jones
a054902cb884be2476d0f097f0016294_***_Helen Daniels
61f095d8f6942db1b4fd65e2053091f5_***_Sharon Heys
b69d245574e754d2637cc9e76379fe11_***_Arron Lacey
52fc0c473b0da1b7218d87f9fc68a3e6_***_David Ford
author Kerina Jones
Helen Daniels
Sharon Heys
Arron Lacey
David Ford
author2 Kerina Jones
Helen Daniels
Sharon Heys
Arron Lacey
David Ford
format Journal article
container_title Journal of Medical Internet Research
container_volume 22
container_issue 5
container_start_page e16346
publishDate 2020
institution Swansea University
issn 1438-8871
doi_str_mv 10.2196/16346
publisher JMIR Publications Inc.
document_store_str 1
active_str 0
published_date 2020-05-15T04:45:19Z
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