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Effect of the COVID‐19 pandemic on the mental health of carers of people with intellectual disabilities

Paul Willner, John Rose, Biza Stenfert Kroese, Glynis H Murphy, Peter E Langdon, Claire Clifford, Hayley Hutchings Orcid Logo, Alan Watkins, Steve Hiles, Vivien Cooper

Journal of Applied Research in Intellectual Disabilities, Volume: 33, Issue: 6, Pages: 1523 - 1533

Swansea University Authors: Paul Willner, Hayley Hutchings Orcid Logo, Steve Hiles

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DOI (Published version): 10.1111/jar.12811

Abstract

Introduction: The measures implemented to manage the COVID‐19 pandemic have been shown to impair mental health. This problem is likely to be exacerbated for carers. Method: Informal carers (mainly parents) of children and adults with intellectual disabilities, and a comparison group of parents of ch...

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Published in: Journal of Applied Research in Intellectual Disabilities
ISSN: 1360-2322 1468-3148
Published: Wiley 2020
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URI: https://cronfa.swan.ac.uk/Record/cronfa55135
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spelling 2020-10-30T16:43:00.5007327 v2 55135 2020-09-07 Effect of the COVID‐19 pandemic on the mental health of carers of people with intellectual disabilities 4c278ffb6e4af6ab8816be40af66ecd3 Paul Willner Paul Willner true false bdf5d5f154d339dd92bb25884b7c3652 0000-0003-4155-1741 Hayley Hutchings Hayley Hutchings true false 5ecd70f8c0f27219f84a7f297d99b22b Steve Hiles Steve Hiles true false 2020-09-07 HPS Introduction: The measures implemented to manage the COVID‐19 pandemic have been shown to impair mental health. This problem is likely to be exacerbated for carers. Method: Informal carers (mainly parents) of children and adults with intellectual disabilities, and a comparison group of parents of children without disabilities, completed an online questionnaire. Almost all the data were collected while strict lockdown conditions were in place. Result: Relative to carers of children without intellectual disability, carers of both children and adults with intellectual disability had significantly greater levels of a wish fulfilment coping style, defeat/entrapment, anxiety, and depression. Differences were 2–3 times greater than reported in earlier pre‐pandemic studies. Positive correlations were found between objective stress scores and all mental health outcomes. Despite their greater mental health needs, carers of those with intellectual disability received less social support from a variety of sources. Conclusions:The greater mental health needs of carers in the context of lesser social support raises serious concerns. We consider the policy implications of these findings. Journal Article Journal of Applied Research in Intellectual Disabilities 33 6 1523 1533 Wiley 1360-2322 1468-3148 carers, COVID-19, depression, intellectual disability, mental health, social support, stress 1 11 2020 2020-11-01 10.1111/jar.12811 COLLEGE NANME Psychology COLLEGE CODE HPS Swansea University 2020-10-30T16:43:00.5007327 2020-09-07T11:58:25.0984392 Paul Willner 1 John Rose 2 Biza Stenfert Kroese 3 Glynis H Murphy 4 Peter E Langdon 5 Claire Clifford 6 Hayley Hutchings 0000-0003-4155-1741 7 Alan Watkins 8 Steve Hiles 9 Vivien Cooper 10 55135__18548__ad5e966b8cf94b13b4936eea509caf11.pdf 55135.pdf 2020-10-30T16:41:18.7615926 Output 516802 application/pdf Version of Record true This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. true eng https://creativecommons.org/licenses/by/4.0/
title Effect of the COVID‐19 pandemic on the mental health of carers of people with intellectual disabilities
spellingShingle Effect of the COVID‐19 pandemic on the mental health of carers of people with intellectual disabilities
Paul Willner
Hayley Hutchings
Steve Hiles
title_short Effect of the COVID‐19 pandemic on the mental health of carers of people with intellectual disabilities
title_full Effect of the COVID‐19 pandemic on the mental health of carers of people with intellectual disabilities
title_fullStr Effect of the COVID‐19 pandemic on the mental health of carers of people with intellectual disabilities
title_full_unstemmed Effect of the COVID‐19 pandemic on the mental health of carers of people with intellectual disabilities
title_sort Effect of the COVID‐19 pandemic on the mental health of carers of people with intellectual disabilities
author_id_str_mv 4c278ffb6e4af6ab8816be40af66ecd3
bdf5d5f154d339dd92bb25884b7c3652
5ecd70f8c0f27219f84a7f297d99b22b
author_id_fullname_str_mv 4c278ffb6e4af6ab8816be40af66ecd3_***_Paul Willner
bdf5d5f154d339dd92bb25884b7c3652_***_Hayley Hutchings
5ecd70f8c0f27219f84a7f297d99b22b_***_Steve Hiles
author Paul Willner
Hayley Hutchings
Steve Hiles
author2 Paul Willner
John Rose
Biza Stenfert Kroese
Glynis H Murphy
Peter E Langdon
Claire Clifford
Hayley Hutchings
Alan Watkins
Steve Hiles
Vivien Cooper
format Journal article
container_title Journal of Applied Research in Intellectual Disabilities
container_volume 33
container_issue 6
container_start_page 1523
publishDate 2020
institution Swansea University
issn 1360-2322
1468-3148
doi_str_mv 10.1111/jar.12811
publisher Wiley
document_store_str 1
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description Introduction: The measures implemented to manage the COVID‐19 pandemic have been shown to impair mental health. This problem is likely to be exacerbated for carers. Method: Informal carers (mainly parents) of children and adults with intellectual disabilities, and a comparison group of parents of children without disabilities, completed an online questionnaire. Almost all the data were collected while strict lockdown conditions were in place. Result: Relative to carers of children without intellectual disability, carers of both children and adults with intellectual disability had significantly greater levels of a wish fulfilment coping style, defeat/entrapment, anxiety, and depression. Differences were 2–3 times greater than reported in earlier pre‐pandemic studies. Positive correlations were found between objective stress scores and all mental health outcomes. Despite their greater mental health needs, carers of those with intellectual disability received less social support from a variety of sources. Conclusions:The greater mental health needs of carers in the context of lesser social support raises serious concerns. We consider the policy implications of these findings.
published_date 2020-11-01T04:10:04Z
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