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Glaucoma, dementia, and the “precipice of care”: transitions between states of medication adherence

Simon Read, Heather Waterman, James Morgan, Robert Harper, Anne Fiona Spencer, Penelope Stanford

Patient Preference and Adherence, Volume: 12, Pages: 1315 - 1325

Swansea University Author: Simon Read

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DOI (Published version): 10.2147/ppa.s167080

Abstract

Purpose: “She wouldn’t remember. Even when I go through, and she’s decided to go to bed, I’ll say I’ll come and do her drops. If I didn’t say that, they wouldn’t be done.” Dementia is widely considered as a key factor in whether patients take their medication as prescribed. However, few studies have...

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Published in: Patient Preference and Adherence
ISSN: 1177-889X
Published: Informa UK Limited 2018
Online Access: Check full text

URI: https://cronfa.swan.ac.uk/Record/cronfa57583
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Abstract: Purpose: “She wouldn’t remember. Even when I go through, and she’s decided to go to bed, I’ll say I’ll come and do her drops. If I didn’t say that, they wouldn’t be done.” Dementia is widely considered as a key factor in whether patients take their medication as prescribed. However, few studies have examined the effect of dementia on medication management strategies for glaucoma including how patient and carer needs impact adherence and long-term prognosis. We report findings from a qualitative grounded theory study incorporating the views of patients, carers, and healthcare professionals.Methods: Eighty-three semistructured interviews were conducted with 35 patients, 22 lay carers, and nine healthcare professionals across sites in Wales and Scotland. These explored understanding of eye drop regimens, barriers, and facilitators to drop administration, as well as attitudes toward glaucoma, dementia, and other comorbidities.Results: Using Pound’s synthesis of adherence behavior, we identified categories of active and passive acceptance of medicines, alongside modification or rejection of eye drop regimens. In relation to dementia, participants highlighted transitions between such categories, with a shift from active to passive acceptance commonly reported. This loss of self-medicating capability was referred to as the precipice of care, where entwinement of multiple conditions (eg, heart disease, glaucoma, and dementia) and sociocultural influences (eg, living alone) contributed to accelerated health declines. That said, numerous factors mitigated this, with a key role being the lay carer. Spouses and family members often acted as the monitor of eye drops for patients, seeking intervention when any behavioral changes influenced their administration.Conclusion: Though dementia was associated with progression toward the precipice of care, factors such as communication with healthcare professionals appeared to affect patient adherence. Recommendations for healthcare practice include better recording of dementia diagnoses and integrating eye drops into preexisting routines.
Keywords: memory loss, compliance, eye drops, qualitative research, grounded theory
College: Faculty of Medicine, Health and Life Sciences
Funders: This research study was funded by the International Glaucoma Association in conjunction with the Royal College of Nursing
Start Page: 1315
End Page: 1325