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A research agenda for promoting continence for people living with dementia in the community: Recommendations based on a critical review and expert‐by‐experience opinion
Journal of Clinical Nursing, Volume: 31, Issue: 13-14, Pages: 1933 - 1946
Swansea University Authors:
Vanessa Burholt , Jane Mullins, Zoe Shoemark
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DOI (Published version): 10.1111/jocn.15537
Abstract
Aims and objectivesTo identify research undertaken in the last decade addressing continence for people living with dementia (PLWD) in the community. To highlight gaps and develop recommendations for future research, taking into account the experiences and priorities of PLWD, caregivers and healthcar...
Published in: | Journal of Clinical Nursing |
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ISSN: | 0962-1067 1365-2702 |
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Wiley
2022
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URI: | https://cronfa.swan.ac.uk/Record/cronfa58061 |
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<?xml version="1.0"?><rfc1807><datestamp>2022-10-27T15:28:22.3042179</datestamp><bib-version>v2</bib-version><id>58061</id><entry>2021-09-23</entry><title>A research agenda for promoting continence for people living with dementia in the community: Recommendations based on a critical review and expert‐by‐experience opinion</title><swanseaauthors><author><sid>cf7fe9863906cd54df5b0a99904d535e</sid><ORCID>0000-0002-6789-127X</ORCID><firstname>Vanessa</firstname><surname>Burholt</surname><name>Vanessa Burholt</name><active>true</active><ethesisStudent>false</ethesisStudent></author><author><sid>8cf6ea7df3c765aab153019617f3e0ad</sid><firstname>Jane</firstname><surname>Mullins</surname><name>Jane Mullins</name><active>true</active><ethesisStudent>false</ethesisStudent></author><author><sid>a1bcb39e38e95369cbe82d026d72b8e9</sid><firstname>Zoe</firstname><surname>Shoemark</surname><name>Zoe Shoemark</name><active>true</active><ethesisStudent>false</ethesisStudent></author></swanseaauthors><date>2021-09-23</date><deptcode>PHAC</deptcode><abstract>Aims and objectivesTo identify research undertaken in the last decade addressing continence for people living with dementia (PLWD) in the community. To highlight gaps and develop recommendations for future research, taking into account the experiences and priorities of PLWD, caregivers and healthcare professionals.MethodsA critical review with an Expert Review Group (ERG) comprising researchers, PLWD and facing continence issues, caregivers and other professional stakeholders. Findings are reported in line with the COREQ and Preferred Reporting Items for Systematic reviews and Meta-Analyses extension for Scoping Reviews checklists.BackgroundCaregivers rate the independent use of the toilet as the most important activity for PLWD to retain. However, in 2009 a review identified shortfalls in knowledge and praxis around promoting continence and managing incontinence for PLWD in the community. As absolute numbers of people with dementia are predicted to increase, it is imperative to examine whether these deficits have been addressed.ResultsOf 3,563 records identified, 57 full-text articles were reviewed. The ERG developed a conceptual model to summarise research evidence according to the extent of the challenge (neuropathology and clinicopathology, prevalence and incidence), gateways to continence services, effectiveness of interventions, outcomes and the potential influences of personal resources, socio-cultural factors and environmental contexts.ConclusionsResearch on (in)continence for PLWD in the community is under-developed and has not increased substantially over the last decade. ERG recommendations for future research included user involvement to identify appropriate quality indicators to assess the effectiveness of interventions.</abstract><type>Journal Article</type><journal>Journal of Clinical Nursing</journal><volume>31</volume><journalNumber>13-14</journalNumber><paginationStart>1933</paginationStart><paginationEnd>1946</paginationEnd><publisher>Wiley</publisher><placeOfPublication/><isbnPrint/><isbnElectronic/><issnPrint>0962-1067</issnPrint><issnElectronic>1365-2702</issnElectronic><keywords>caregivers, community dwelling, continence, dementia, home care, social care</keywords><publishedDay>1</publishedDay><publishedMonth>7</publishedMonth><publishedYear>2022</publishedYear><publishedDate>2022-07-01</publishedDate><doi>10.1111/jocn.15537</doi><url/><notes/><college>COLLEGE NANME</college><department>Public Health</department><CollegeCode>COLLEGE CODE</CollegeCode><DepartmentCode>PHAC</DepartmentCode><institution>Swansea University</institution><apcterm/><funders>Health and Care Research Wales Senior Research Leader fund</funders><projectreference/><lastEdited>2022-10-27T15:28:22.3042179</lastEdited><Created>2021-09-23T21:15:59.3886503</Created><path><level id="1">Faculty of Medicine, Health and Life Sciences</level><level id="2">The Centre for Innovative Ageing</level></path><authors><author><firstname>Vanessa</firstname><surname>Burholt</surname><orcid>0000-0002-6789-127X</orcid><order>1</order></author><author><firstname>Johanna</firstname><surname>Davies</surname><order>2</order></author><author><firstname>Michal</firstname><surname>Boyd</surname><order>3</order></author><author><firstname>Jane</firstname><surname>Mullins</surname><order>4</order></author><author><firstname>Zoe</firstname><surname>Shoemark</surname><order>5</order></author></authors><documents><document><filename>58061__20991__481f9ac6ee4a414981f0da98fe17b959.pdf</filename><originalFilename>A research agenda for promoting continence for PLWD in the community (OFFPRINT).pdf</originalFilename><uploaded>2021-09-23T21:44:10.1692183</uploaded><type>Output</type><contentLength>1021165</contentLength><contentType>application/pdf</contentType><version>Version of Record</version><cronfaStatus>true</cronfaStatus><documentNotes>© 2020 The Authors. 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2022-10-27T15:28:22.3042179 v2 58061 2021-09-23 A research agenda for promoting continence for people living with dementia in the community: Recommendations based on a critical review and expert‐by‐experience opinion cf7fe9863906cd54df5b0a99904d535e 0000-0002-6789-127X Vanessa Burholt Vanessa Burholt true false 8cf6ea7df3c765aab153019617f3e0ad Jane Mullins Jane Mullins true false a1bcb39e38e95369cbe82d026d72b8e9 Zoe Shoemark Zoe Shoemark true false 2021-09-23 PHAC Aims and objectivesTo identify research undertaken in the last decade addressing continence for people living with dementia (PLWD) in the community. To highlight gaps and develop recommendations for future research, taking into account the experiences and priorities of PLWD, caregivers and healthcare professionals.MethodsA critical review with an Expert Review Group (ERG) comprising researchers, PLWD and facing continence issues, caregivers and other professional stakeholders. Findings are reported in line with the COREQ and Preferred Reporting Items for Systematic reviews and Meta-Analyses extension for Scoping Reviews checklists.BackgroundCaregivers rate the independent use of the toilet as the most important activity for PLWD to retain. However, in 2009 a review identified shortfalls in knowledge and praxis around promoting continence and managing incontinence for PLWD in the community. As absolute numbers of people with dementia are predicted to increase, it is imperative to examine whether these deficits have been addressed.ResultsOf 3,563 records identified, 57 full-text articles were reviewed. The ERG developed a conceptual model to summarise research evidence according to the extent of the challenge (neuropathology and clinicopathology, prevalence and incidence), gateways to continence services, effectiveness of interventions, outcomes and the potential influences of personal resources, socio-cultural factors and environmental contexts.ConclusionsResearch on (in)continence for PLWD in the community is under-developed and has not increased substantially over the last decade. ERG recommendations for future research included user involvement to identify appropriate quality indicators to assess the effectiveness of interventions. Journal Article Journal of Clinical Nursing 31 13-14 1933 1946 Wiley 0962-1067 1365-2702 caregivers, community dwelling, continence, dementia, home care, social care 1 7 2022 2022-07-01 10.1111/jocn.15537 COLLEGE NANME Public Health COLLEGE CODE PHAC Swansea University Health and Care Research Wales Senior Research Leader fund 2022-10-27T15:28:22.3042179 2021-09-23T21:15:59.3886503 Faculty of Medicine, Health and Life Sciences The Centre for Innovative Ageing Vanessa Burholt 0000-0002-6789-127X 1 Johanna Davies 2 Michal Boyd 3 Jane Mullins 4 Zoe Shoemark 5 58061__20991__481f9ac6ee4a414981f0da98fe17b959.pdf A research agenda for promoting continence for PLWD in the community (OFFPRINT).pdf 2021-09-23T21:44:10.1692183 Output 1021165 application/pdf Version of Record true © 2020 The Authors. This is an open access article under the terms of the Creative Commons Attribution-NonCommercial License true eng http://creativecommons.org/licenses/by-nc/4.0/ |
title |
A research agenda for promoting continence for people living with dementia in the community: Recommendations based on a critical review and expert‐by‐experience opinion |
spellingShingle |
A research agenda for promoting continence for people living with dementia in the community: Recommendations based on a critical review and expert‐by‐experience opinion Vanessa Burholt Jane Mullins Zoe Shoemark |
title_short |
A research agenda for promoting continence for people living with dementia in the community: Recommendations based on a critical review and expert‐by‐experience opinion |
title_full |
A research agenda for promoting continence for people living with dementia in the community: Recommendations based on a critical review and expert‐by‐experience opinion |
title_fullStr |
A research agenda for promoting continence for people living with dementia in the community: Recommendations based on a critical review and expert‐by‐experience opinion |
title_full_unstemmed |
A research agenda for promoting continence for people living with dementia in the community: Recommendations based on a critical review and expert‐by‐experience opinion |
title_sort |
A research agenda for promoting continence for people living with dementia in the community: Recommendations based on a critical review and expert‐by‐experience opinion |
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cf7fe9863906cd54df5b0a99904d535e 8cf6ea7df3c765aab153019617f3e0ad a1bcb39e38e95369cbe82d026d72b8e9 |
author_id_fullname_str_mv |
cf7fe9863906cd54df5b0a99904d535e_***_Vanessa Burholt 8cf6ea7df3c765aab153019617f3e0ad_***_Jane Mullins a1bcb39e38e95369cbe82d026d72b8e9_***_Zoe Shoemark |
author |
Vanessa Burholt Jane Mullins Zoe Shoemark |
author2 |
Vanessa Burholt Johanna Davies Michal Boyd Jane Mullins Zoe Shoemark |
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Journal of Clinical Nursing |
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31 |
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13-14 |
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1933 |
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2022 |
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Swansea University |
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0962-1067 1365-2702 |
doi_str_mv |
10.1111/jocn.15537 |
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Wiley |
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Faculty of Medicine, Health and Life Sciences |
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The Centre for Innovative Ageing{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}The Centre for Innovative Ageing |
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description |
Aims and objectivesTo identify research undertaken in the last decade addressing continence for people living with dementia (PLWD) in the community. To highlight gaps and develop recommendations for future research, taking into account the experiences and priorities of PLWD, caregivers and healthcare professionals.MethodsA critical review with an Expert Review Group (ERG) comprising researchers, PLWD and facing continence issues, caregivers and other professional stakeholders. Findings are reported in line with the COREQ and Preferred Reporting Items for Systematic reviews and Meta-Analyses extension for Scoping Reviews checklists.BackgroundCaregivers rate the independent use of the toilet as the most important activity for PLWD to retain. However, in 2009 a review identified shortfalls in knowledge and praxis around promoting continence and managing incontinence for PLWD in the community. As absolute numbers of people with dementia are predicted to increase, it is imperative to examine whether these deficits have been addressed.ResultsOf 3,563 records identified, 57 full-text articles were reviewed. The ERG developed a conceptual model to summarise research evidence according to the extent of the challenge (neuropathology and clinicopathology, prevalence and incidence), gateways to continence services, effectiveness of interventions, outcomes and the potential influences of personal resources, socio-cultural factors and environmental contexts.ConclusionsResearch on (in)continence for PLWD in the community is under-developed and has not increased substantially over the last decade. ERG recommendations for future research included user involvement to identify appropriate quality indicators to assess the effectiveness of interventions. |
published_date |
2022-07-01T04:14:17Z |
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1763753965255655424 |
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11.021648 |