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The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period

Gemma Rogers, Gisela Perez‐Olivas, Biza Stenfert Kroese, Varsha Patel, Glynis Murphy, John Rose, Vivien Cooper, Peter E. Langdon, Steve Hiles, Clair Clifford, Paul Willner Orcid Logo

Journal of Applied Research in Intellectual Disabilities, Volume: 34, Issue: 6, Pages: 1421 - 1430

Swansea University Authors: Steve Hiles, Paul Willner Orcid Logo

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DOI (Published version): 10.1111/jar.12884

Abstract

Abstract: Background: Recent COVID‐19 lockdown restrictions resulted in reduced access to educational, professional and social support systems for children with intellectual disabilities and their carers. Aim: The aim of this study was to gain insight into the ways mothers of children with intellect...

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Published in: Journal of Applied Research in Intellectual Disabilities
ISSN: 1360-2322 1468-3148
Published: Wiley 2021
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URI: https://cronfa.swan.ac.uk/Record/cronfa58436
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spelling 2021-11-17T16:36:47.3070448 v2 58436 2021-10-20 The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period 5ecd70f8c0f27219f84a7f297d99b22b Steve Hiles Steve Hiles true false 4c278ffb6e4af6ab8816be40af66ecd3 0000-0001-5576-5260 Paul Willner Paul Willner true false 2021-10-20 HDAT Abstract: Background: Recent COVID‐19 lockdown restrictions resulted in reduced access to educational, professional and social support systems for children with intellectual disabilities and their carers. Aim: The aim of this study was to gain insight into the ways mothers of children with intellectual disabilities coped during the first 2020 lockdown period. Methods: Eight mothers of children with intellectual disabilities were interviewed. The recordings of these interviews were subjected to a thematic analysis. Results: Three main themes were identified: carrying the burden; a time of stress; and embracing change and looking to the future. Conclusions: All mothers experienced increased burden and stress. However, some also described some positive impact of lockdown conditions on them as well as on their child's well‐being and behaviour. These findings are discussed in the light of the (Journal of Applied Research in Intellectual Disabilities, 33, 2020, 1523) survey results on parental coping and suggestions for future service provision during pandemic conditions are proposed. Journal Article Journal of Applied Research in Intellectual Disabilities 34 6 1421 1430 Wiley 1360-2322 1468-3148 caring responsibility, children, Covid‐19, intellectual disabilities, mothers, young people 1 11 2021 2021-11-01 10.1111/jar.12884 COLLEGE NANME Health Data Science COLLEGE CODE HDAT Swansea University 2021-11-17T16:36:47.3070448 2021-10-20T13:33:20.2293104 Faculty of Medicine, Health and Life Sciences School of Psychology Gemma Rogers 1 Gisela Perez‐Olivas 2 Biza Stenfert Kroese 3 Varsha Patel 4 Glynis Murphy 5 John Rose 6 Vivien Cooper 7 Peter E. Langdon 8 Steve Hiles 9 Clair Clifford 10 Paul Willner 0000-0001-5576-5260 11 58436__21244__d4a43d5d2b004e2a8e4aa03b2d22ce0a.pdf 58436.pdf 2021-10-20T13:36:15.8710830 Output 445203 application/pdf Version of Record true © 2021 The Authors. This is an open access article under the terms of the Creative Commons Attribution License true eng http://creativecommons.org/licenses/by/4.0/
title The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period
spellingShingle The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period
Steve Hiles
Paul Willner
title_short The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period
title_full The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period
title_fullStr The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period
title_full_unstemmed The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period
title_sort The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period
author_id_str_mv 5ecd70f8c0f27219f84a7f297d99b22b
4c278ffb6e4af6ab8816be40af66ecd3
author_id_fullname_str_mv 5ecd70f8c0f27219f84a7f297d99b22b_***_Steve Hiles
4c278ffb6e4af6ab8816be40af66ecd3_***_Paul Willner
author Steve Hiles
Paul Willner
author2 Gemma Rogers
Gisela Perez‐Olivas
Biza Stenfert Kroese
Varsha Patel
Glynis Murphy
John Rose
Vivien Cooper
Peter E. Langdon
Steve Hiles
Clair Clifford
Paul Willner
format Journal article
container_title Journal of Applied Research in Intellectual Disabilities
container_volume 34
container_issue 6
container_start_page 1421
publishDate 2021
institution Swansea University
issn 1360-2322
1468-3148
doi_str_mv 10.1111/jar.12884
publisher Wiley
college_str Faculty of Medicine, Health and Life Sciences
hierarchytype
hierarchy_top_id facultyofmedicinehealthandlifesciences
hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str School of Psychology{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}School of Psychology
document_store_str 1
active_str 0
description Abstract: Background: Recent COVID‐19 lockdown restrictions resulted in reduced access to educational, professional and social support systems for children with intellectual disabilities and their carers. Aim: The aim of this study was to gain insight into the ways mothers of children with intellectual disabilities coped during the first 2020 lockdown period. Methods: Eight mothers of children with intellectual disabilities were interviewed. The recordings of these interviews were subjected to a thematic analysis. Results: Three main themes were identified: carrying the burden; a time of stress; and embracing change and looking to the future. Conclusions: All mothers experienced increased burden and stress. However, some also described some positive impact of lockdown conditions on them as well as on their child's well‐being and behaviour. These findings are discussed in the light of the (Journal of Applied Research in Intellectual Disabilities, 33, 2020, 1523) survey results on parental coping and suggestions for future service provision during pandemic conditions are proposed.
published_date 2021-11-01T04:14:58Z
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