No Cover Image

Journal article 200 views 215 downloads

Dementia Early-Stage Cognitive Aids New Trial (DESCANT) of memory aids and guidance for people with dementia: randomised controlled trial

Paul Clarkson Orcid Logo, Rosa Pitts, Saiful Islam Orcid Logo, Julie Peconi, Ian Russell Orcid Logo, Greg Fegan, Rebecca Beresford, Charlotte Entwistle, Vincent Gillan, Martin Orrell, David Challis Orcid Logo, Helen Chester, Jane Hughes, Narinder Kapur, Brenda Roe, Baber Malik, Catherine Robinson

Journal of Neurology, Neurosurgery & Psychiatry, Volume: 93, Issue: 9, Pages: 1001 - 1009

Swansea University Authors: Saiful Islam Orcid Logo, Julie Peconi, Ian Russell Orcid Logo, Greg Fegan

Abstract

Common memory aids for people with dementia at home are recommended. However, rigorous evaluation is lacking, particularly what guidance or support is valued. To investigate effects of memory aids and guidance by dementia support practitioners (DSPs) for people in early-stage dementia through a prag...

Full description

Published in: Journal of Neurology, Neurosurgery & Psychiatry
ISSN: 0022-3050 1468-330X
Published: BMJ 2022
Online Access: Check full text

URI: https://cronfa.swan.ac.uk/Record/cronfa58545
Tags: Add Tag
No Tags, Be the first to tag this record!
Abstract: Common memory aids for people with dementia at home are recommended. However, rigorous evaluation is lacking, particularly what guidance or support is valued. To investigate effects of memory aids and guidance by dementia support practitioners (DSPs) for people in early-stage dementia through a pragmatic, randomised controlled trial. Of 469 people with mild-to-moderate dementia and their informal carers, 468 were randomised to a DSP with memory aids or to usual care plus existing dementia guide. Allocation was stratified by Trust/Health Board; time since first attendance at memory service; gender; age; and living with primary carer or not. Primary outcome was Bristol Activities of Daily Living Scale (BADLS) Score at 3 and 6 months (primary end-point). Secondary outcomes for people with dementia: quality of life (CASP-19; DEMQOL); cognition and functioning (Clinical Dementia Rating Scale; S-MMSE); capability (ICECAP-O); social networks (LSNS-R); and instrumental daily living activities (R-IDDD). Secondary outcomes for carers: psychological health (GHQ-12); sense of competence (SSCQ). DSPs were successfully trained, compliance was good and welcomed by participants. Mean 6 months BADLS Score increased to 14.6 (SD: 10.4) in intervention and 12.6 (SD: 8.1) in comparator, indicative of greater dependence in the activities of daily living. Adjusted between-group difference was 0.38 (95% CI: -0.89 to 1.65, p=0.56). Though this suggests greater dependency in the intervention group the difference was not significant. No differences were found in secondary outcomes. This intervention did not maintain independence in the activities of daily living with no improvement in other outcomes for people with dementia or carers. Current Controlled Trials ISRCTN12591717. [Abstract copyright: © Author(s) (or their employer(s)) 2021. No commercial re-use. See rights and permissions. Published by BMJ.]
Keywords: AIDS, dementia, memory
College: Faculty of Medicine, Health and Life Sciences
Issue: 9
Start Page: 1001
End Page: 1009