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Understanding the impact of COVID-19 pandemic on health-related quality of life amongst Iranian patients with beta thalassemia major: a grounded theory

Mahdieh Arian, Mojtaba Vaismoradi, Zahra Badiee, Mohsen Soleimani

Primary Health Care Research & Development, Volume: 22

Swansea University Author: Mojtaba Vaismoradi

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DOI (Published version): 10.1017/s146342362100013x

Abstract

Background:The coronavirus disease 2019 (COVID-19) pandemic and the resulting measures can impact daily life and healthcare management amongst patients with beta thalassemia major.Methods:The Corbin and Strauss method of grounded theory was used to explore the impact of the COVID-19 pandemic on heal...

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Published in: Primary Health Care Research & Development
ISSN: 1463-4236 1477-1128
Published: Cambridge University Press (CUP) 2021
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URI: https://cronfa.swan.ac.uk/Record/cronfa58638
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first_indexed 2021-11-12T15:55:06Z
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Semi-structured interviews with 16 patients with thalassemia major in the eastern of Iran were performed. Data collection was conducted from 19 September through 18 November 2020. Collected data were recorded, transcribed, and coded to develop themes and subthemes. Paradigm components were sought to find out what happened to these patients and explore the process and events.Results:Insights from these interviews led to five major themes: ‘changing physical health’, ‘emotional and psychological reactions’, ‘changing the nature of relationships and the scope of social support’, ‘metamorphosis of ongoing healthcare, and ‘functionality and adaptation to new realities.’ The emerging core concept was labelled: ‘maintaining well-being balance.’ The COVID-19 pandemic disturbed the balance of life and health of the patients. Multiple strategies to maintain balance and reduce the negative effects of the COVID-19 pandemic on HRQoL were used by the patients, the healthcare team, and support systems.Conclusions:Due to the fear of COVID-19, the patients with beta thalassemia were less likely to contact healthcare professionals. They considered postponing blood transfusion and abandoned evaluating disease complications. Reduced access to the healthcare system and shifting resources from existing programmes to COVID-19 by the healthcare system were incompatible policies. These policies and strategies had strong and negative effects on the physical domain of HRQoL. The patients experienced a deterioration of emotional functioning. They reported a strong reduction in social functioning and felt lonely. 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spelling v2 58638 2021-11-12 Understanding the impact of COVID-19 pandemic on health-related quality of life amongst Iranian patients with beta thalassemia major: a grounded theory b865b33654e99f5cbccdb11350f7b069 Mojtaba Vaismoradi Mojtaba Vaismoradi true false 2021-11-12 FGMHL Background:The coronavirus disease 2019 (COVID-19) pandemic and the resulting measures can impact daily life and healthcare management amongst patients with beta thalassemia major.Methods:The Corbin and Strauss method of grounded theory was used to explore the impact of the COVID-19 pandemic on health-related quality of life (HRQoL) amongst Iranian patients with beta thalassemia major. Semi-structured interviews with 16 patients with thalassemia major in the eastern of Iran were performed. Data collection was conducted from 19 September through 18 November 2020. Collected data were recorded, transcribed, and coded to develop themes and subthemes. Paradigm components were sought to find out what happened to these patients and explore the process and events.Results:Insights from these interviews led to five major themes: ‘changing physical health’, ‘emotional and psychological reactions’, ‘changing the nature of relationships and the scope of social support’, ‘metamorphosis of ongoing healthcare, and ‘functionality and adaptation to new realities.’ The emerging core concept was labelled: ‘maintaining well-being balance.’ The COVID-19 pandemic disturbed the balance of life and health of the patients. Multiple strategies to maintain balance and reduce the negative effects of the COVID-19 pandemic on HRQoL were used by the patients, the healthcare team, and support systems.Conclusions:Due to the fear of COVID-19, the patients with beta thalassemia were less likely to contact healthcare professionals. They considered postponing blood transfusion and abandoned evaluating disease complications. Reduced access to the healthcare system and shifting resources from existing programmes to COVID-19 by the healthcare system were incompatible policies. These policies and strategies had strong and negative effects on the physical domain of HRQoL. The patients experienced a deterioration of emotional functioning. They reported a strong reduction in social functioning and felt lonely. Online interventions supporting mental health and social interactions and telemedicine can help during the times of social distancing and lockdowns. Journal Article Primary Health Care Research & Development 22 Cambridge University Press (CUP) 1463-4236 1477-1128 coronavirus; grounded theory; health care; quality of life; beta thalassemia major 10 11 2021 2021-11-10 10.1017/s146342362100013x COLLEGE NANME Medicine, Health and Life Science - Faculty COLLEGE CODE FGMHL Swansea University Not Required This study was one part of the first author’s PhD dissertation in nursing supported financially by the Semnan University of Medical Sciences, Iran (decree code: IR.SEMUMS.REC.1397.244). 2023-06-28T15:11:32.2027287 2021-11-12T15:51:39.6783801 Faculty of Medicine, Health and Life Sciences School of Health and Social Care - Nursing Mahdieh Arian 1 Mojtaba Vaismoradi 2 Zahra Badiee 3 Mohsen Soleimani 4 58638__21518__0564157a596d40c0ab89fc0b569c2e3d.pdf understanding-the-impact-of-covid-19-pandemic-on-health-related-quality-of-life-amongst-iranian-patients-with-beta-thalassemia-major-a-grounded-theory.pdf 2021-11-12T15:54:48.0594230 Output 613764 application/pdf Version of Record true © The Author(s), 2021. This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence true eng http://creativecommons.org/licenses/by/4.0/
title Understanding the impact of COVID-19 pandemic on health-related quality of life amongst Iranian patients with beta thalassemia major: a grounded theory
spellingShingle Understanding the impact of COVID-19 pandemic on health-related quality of life amongst Iranian patients with beta thalassemia major: a grounded theory
Mojtaba Vaismoradi
title_short Understanding the impact of COVID-19 pandemic on health-related quality of life amongst Iranian patients with beta thalassemia major: a grounded theory
title_full Understanding the impact of COVID-19 pandemic on health-related quality of life amongst Iranian patients with beta thalassemia major: a grounded theory
title_fullStr Understanding the impact of COVID-19 pandemic on health-related quality of life amongst Iranian patients with beta thalassemia major: a grounded theory
title_full_unstemmed Understanding the impact of COVID-19 pandemic on health-related quality of life amongst Iranian patients with beta thalassemia major: a grounded theory
title_sort Understanding the impact of COVID-19 pandemic on health-related quality of life amongst Iranian patients with beta thalassemia major: a grounded theory
author_id_str_mv b865b33654e99f5cbccdb11350f7b069
author_id_fullname_str_mv b865b33654e99f5cbccdb11350f7b069_***_Mojtaba Vaismoradi
author Mojtaba Vaismoradi
author2 Mahdieh Arian
Mojtaba Vaismoradi
Zahra Badiee
Mohsen Soleimani
format Journal article
container_title Primary Health Care Research & Development
container_volume 22
publishDate 2021
institution Swansea University
issn 1463-4236
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doi_str_mv 10.1017/s146342362100013x
publisher Cambridge University Press (CUP)
college_str Faculty of Medicine, Health and Life Sciences
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hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str School of Health and Social Care - Nursing{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}School of Health and Social Care - Nursing
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description Background:The coronavirus disease 2019 (COVID-19) pandemic and the resulting measures can impact daily life and healthcare management amongst patients with beta thalassemia major.Methods:The Corbin and Strauss method of grounded theory was used to explore the impact of the COVID-19 pandemic on health-related quality of life (HRQoL) amongst Iranian patients with beta thalassemia major. Semi-structured interviews with 16 patients with thalassemia major in the eastern of Iran were performed. Data collection was conducted from 19 September through 18 November 2020. Collected data were recorded, transcribed, and coded to develop themes and subthemes. Paradigm components were sought to find out what happened to these patients and explore the process and events.Results:Insights from these interviews led to five major themes: ‘changing physical health’, ‘emotional and psychological reactions’, ‘changing the nature of relationships and the scope of social support’, ‘metamorphosis of ongoing healthcare, and ‘functionality and adaptation to new realities.’ The emerging core concept was labelled: ‘maintaining well-being balance.’ The COVID-19 pandemic disturbed the balance of life and health of the patients. Multiple strategies to maintain balance and reduce the negative effects of the COVID-19 pandemic on HRQoL were used by the patients, the healthcare team, and support systems.Conclusions:Due to the fear of COVID-19, the patients with beta thalassemia were less likely to contact healthcare professionals. They considered postponing blood transfusion and abandoned evaluating disease complications. Reduced access to the healthcare system and shifting resources from existing programmes to COVID-19 by the healthcare system were incompatible policies. These policies and strategies had strong and negative effects on the physical domain of HRQoL. The patients experienced a deterioration of emotional functioning. They reported a strong reduction in social functioning and felt lonely. Online interventions supporting mental health and social interactions and telemedicine can help during the times of social distancing and lockdowns.
published_date 2021-11-10T15:11:28Z
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