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‘Rekindling couplehood’ using a multisensory suitcase of memories: a pilot study of people living with moderate dementia and their partners

Jane Mullins, Andrea Tales Orcid Logo, Charles Musselwhite Orcid Logo, Nicholas Rich Orcid Logo

Ageing and Society, Pages: 1 - 19

Swansea University Authors: Jane Mullins, Andrea Tales Orcid Logo, Charles Musselwhite Orcid Logo, Nicholas Rich Orcid Logo

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Abstract

Creating individualised activities in partnership with people who have moderate dementia and their partners at home has rarely been achieved, as such interventions are usually pre planned and prepared by researchers or professionals. The academic gap is in the activity design being led by the person...

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Published in: Ageing and Society
ISSN: 0144-686X 1469-1779
Published: Cambridge University Press (CUP) 2022
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URI: https://cronfa.swan.ac.uk/Record/cronfa58930
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The academic gap is in the activity design being led by the person who has dementia and their partner and how to pragmatically engage them in a meaningful manner which rekindles positive joint memories and improves the quality of their current relationship. This explores the meaning and significance of recalling holiday memories for people living with moderate dementia and their partners, using multisensory reminiscence. A sensory ethnography research methodology was employed to overcome the challenges of engaging individuals with cognition, decision making and communication difficulties and to enhance co-production of the activity with the person living with dementia and her spouse. This processual and longitudinal methodology allowed individuals, who are often excluded from research, to express themselves and co-design activities over 5 home visits using multisensory reminiscence of shared holiday memories. The co-produced research culminated in the creation of a digital story, the sharing of food and drink and re-enactment through exploration of their holiday memorabilia: which formed their “suitcase of memories” (SOM). The study extends the current academic debate in the subjects of co-produced interventions and identifies the critical themes of Holidays as life; Freedom; View seen, viewpoint heard and Strengthened self-identity with younger self emerged from the research. Such areas of sensory reminiscence have supported positive recollections, discourse, and, when combined, resulted in a beneficial impact on the partners shared relationship. A significant research outcome was the transition from a negative life view dominated by dementia to positively rekindling their relationship as a result of the SOM intervention and sensory methodology. Future research will continue to work with new couples to see if similar results are achieved with more case studies. 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spelling v2 58930 2021-12-06 ‘Rekindling couplehood’ using a multisensory suitcase of memories: a pilot study of people living with moderate dementia and their partners c6c476921791488002537e3e9c4fd3cf Jane Mullins Jane Mullins true false 9b53a866ddacb566c38ee336706aef5f 0000-0003-4825-4555 Andrea Tales Andrea Tales true false c9a49f25a5adb54c55612ae49560100c 0000-0002-4831-2092 Charles Musselwhite Charles Musselwhite true false 272a3165694c25efa85725e514ebbcd3 0000-0003-0216-2807 Nicholas Rich Nicholas Rich true false 2021-12-06 Creating individualised activities in partnership with people who have moderate dementia and their partners at home has rarely been achieved, as such interventions are usually pre planned and prepared by researchers or professionals. The academic gap is in the activity design being led by the person who has dementia and their partner and how to pragmatically engage them in a meaningful manner which rekindles positive joint memories and improves the quality of their current relationship. This explores the meaning and significance of recalling holiday memories for people living with moderate dementia and their partners, using multisensory reminiscence. A sensory ethnography research methodology was employed to overcome the challenges of engaging individuals with cognition, decision making and communication difficulties and to enhance co-production of the activity with the person living with dementia and her spouse. This processual and longitudinal methodology allowed individuals, who are often excluded from research, to express themselves and co-design activities over 5 home visits using multisensory reminiscence of shared holiday memories. The co-produced research culminated in the creation of a digital story, the sharing of food and drink and re-enactment through exploration of their holiday memorabilia: which formed their “suitcase of memories” (SOM). The study extends the current academic debate in the subjects of co-produced interventions and identifies the critical themes of Holidays as life; Freedom; View seen, viewpoint heard and Strengthened self-identity with younger self emerged from the research. Such areas of sensory reminiscence have supported positive recollections, discourse, and, when combined, resulted in a beneficial impact on the partners shared relationship. A significant research outcome was the transition from a negative life view dominated by dementia to positively rekindling their relationship as a result of the SOM intervention and sensory methodology. Future research will continue to work with new couples to see if similar results are achieved with more case studies. Key WordsDementia, Couplehood, Reminiscence, Tourism, Sensory, Memories, “Sensory Ethnography” Journal Article Ageing and Society 0 1 19 Cambridge University Press (CUP) 0144-686X 1469-1779 Dementia, Couplehood, Reminiscence, Tourism, Sensory, Memories, “Sensory Ethnography” 27 1 2022 2022-01-27 10.1017/s0144686x21001926 COLLEGE NANME COLLEGE CODE Swansea University SU Library paid the OA fee (TA Institutional Deal) 2022-07-27T11:47:33.8183532 2021-12-06T16:32:53.9152957 School of Management Business Jane Mullins 1 Andrea Tales 0000-0003-4825-4555 2 Charles Musselwhite 0000-0002-4831-2092 3 Nicholas Rich 0000-0003-0216-2807 4 58930__24763__03f87b5500b340d3aa216d550504822a.pdf 58930.pdf 2022-07-27T11:45:54.7406203 Output 375226 application/pdf Version of Record true © The Author(s), 2022. This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence true eng http://creativecommons.org/licenses/by/4.0/
title ‘Rekindling couplehood’ using a multisensory suitcase of memories: a pilot study of people living with moderate dementia and their partners
spellingShingle ‘Rekindling couplehood’ using a multisensory suitcase of memories: a pilot study of people living with moderate dementia and their partners
Jane Mullins
Andrea Tales
Charles Musselwhite
Nicholas Rich
title_short ‘Rekindling couplehood’ using a multisensory suitcase of memories: a pilot study of people living with moderate dementia and their partners
title_full ‘Rekindling couplehood’ using a multisensory suitcase of memories: a pilot study of people living with moderate dementia and their partners
title_fullStr ‘Rekindling couplehood’ using a multisensory suitcase of memories: a pilot study of people living with moderate dementia and their partners
title_full_unstemmed ‘Rekindling couplehood’ using a multisensory suitcase of memories: a pilot study of people living with moderate dementia and their partners
title_sort ‘Rekindling couplehood’ using a multisensory suitcase of memories: a pilot study of people living with moderate dementia and their partners
author_id_str_mv c6c476921791488002537e3e9c4fd3cf
9b53a866ddacb566c38ee336706aef5f
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272a3165694c25efa85725e514ebbcd3
author_id_fullname_str_mv c6c476921791488002537e3e9c4fd3cf_***_Jane Mullins
9b53a866ddacb566c38ee336706aef5f_***_Andrea Tales
c9a49f25a5adb54c55612ae49560100c_***_Charles Musselwhite
272a3165694c25efa85725e514ebbcd3_***_Nicholas Rich
author Jane Mullins
Andrea Tales
Charles Musselwhite
Nicholas Rich
author2 Jane Mullins
Andrea Tales
Charles Musselwhite
Nicholas Rich
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description Creating individualised activities in partnership with people who have moderate dementia and their partners at home has rarely been achieved, as such interventions are usually pre planned and prepared by researchers or professionals. The academic gap is in the activity design being led by the person who has dementia and their partner and how to pragmatically engage them in a meaningful manner which rekindles positive joint memories and improves the quality of their current relationship. This explores the meaning and significance of recalling holiday memories for people living with moderate dementia and their partners, using multisensory reminiscence. A sensory ethnography research methodology was employed to overcome the challenges of engaging individuals with cognition, decision making and communication difficulties and to enhance co-production of the activity with the person living with dementia and her spouse. This processual and longitudinal methodology allowed individuals, who are often excluded from research, to express themselves and co-design activities over 5 home visits using multisensory reminiscence of shared holiday memories. The co-produced research culminated in the creation of a digital story, the sharing of food and drink and re-enactment through exploration of their holiday memorabilia: which formed their “suitcase of memories” (SOM). The study extends the current academic debate in the subjects of co-produced interventions and identifies the critical themes of Holidays as life; Freedom; View seen, viewpoint heard and Strengthened self-identity with younger self emerged from the research. Such areas of sensory reminiscence have supported positive recollections, discourse, and, when combined, resulted in a beneficial impact on the partners shared relationship. A significant research outcome was the transition from a negative life view dominated by dementia to positively rekindling their relationship as a result of the SOM intervention and sensory methodology. Future research will continue to work with new couples to see if similar results are achieved with more case studies. Key WordsDementia, Couplehood, Reminiscence, Tourism, Sensory, Memories, “Sensory Ethnography”
published_date 2022-01-27T11:47:32Z
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