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Saving time and effort: Best practice for adapting existing patient-reported outcome measures in hepatology

Laith Alrubaiy, Hayley Hutchings Orcid Logo, Sarah Hughes, Thomas Dobbs

World Journal of Hepatology, Volume: 14, Issue: 5, Pages: 896 - 910

Swansea University Authors: Hayley Hutchings Orcid Logo, Sarah Hughes, Thomas Dobbs

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DOI (Published version): 10.4254/wjh.v14.i5.896

Abstract

It is increasingly recognised that collecting patient reported outcome measures (PROMs) data is an important part of healthcare and should be considered alongside traditional clinical assessments. As part of a more holistic view of healthcare provision, there has been an increased drive to implement...

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Published in: World Journal of Hepatology
ISSN: 1948-5182
Published: Baishideng Publishing Group Inc. 2022
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URI: https://cronfa.swan.ac.uk/Record/cronfa60071
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first_indexed 2022-05-24T11:17:03Z
last_indexed 2022-06-24T03:19:04Z
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spelling 2022-06-23T12:17:25.4724650 v2 60071 2022-05-24 Saving time and effort: Best practice for adapting existing patient-reported outcome measures in hepatology bdf5d5f154d339dd92bb25884b7c3652 0000-0003-4155-1741 Hayley Hutchings Hayley Hutchings true false 64e38e3658e1fcf0810801df47823207 Sarah Hughes Sarah Hughes true false d18101ae0b4e72051f735ef68f45e1a8 Thomas Dobbs Thomas Dobbs true false 2022-05-24 HDAT It is increasingly recognised that collecting patient reported outcome measures (PROMs) data is an important part of healthcare and should be considered alongside traditional clinical assessments. As part of a more holistic view of healthcare provision, there has been an increased drive to implement PROM collection as part of routine clinical care in hepatology. This drive has resulted in an increase in the number of PROMs currently developed to be used in various liver conditions. However, the development and validation of a new PROM is time-consuming and costly. Therefore, before deciding to develop a new PROM, researchers should consider identifying existing PROMs to assess their appropriateness and, if necessary, make adaptations to existing PROMs to ensure their rigour when used with the target population. Little is written in the literature on how to identify and adapt the existing PROMs in hepatology. This article aims to provide a summary of the current literature and guidance regarding identifying and adapting existing PROMs in clinical practice. Journal Article World Journal of Hepatology 14 5 896 910 Baishideng Publishing Group Inc. 1948-5182 Patient reported outcome measures; Adaptation; Content validation; Hepatology; Patient reported outcomes 27 5 2022 2022-05-27 10.4254/wjh.v14.i5.896 COLLEGE NANME Health Data Science COLLEGE CODE HDAT Swansea University Not Required 2022-06-23T12:17:25.4724650 2022-05-24T12:09:49.3490849 Faculty of Medicine, Health and Life Sciences Swansea University Medical School - Medicine Laith Alrubaiy 1 Hayley Hutchings 0000-0003-4155-1741 2 Sarah Hughes 3 Thomas Dobbs 4 60071__24378__351674abb00a4037b9ec7096674f769f.pdf 60071_VOR.pdf 2022-06-23T12:14:58.1480845 Output 566075 application/pdf Version of Record true ┬ęThe Author(s) 2022. This article is an open-access article distributed in accordance with the Creative Commons Attribution NonCommercial (CC BY NC 4.0) license true eng https://creativecommons.org/Licenses/by-nc/4.0/
title Saving time and effort: Best practice for adapting existing patient-reported outcome measures in hepatology
spellingShingle Saving time and effort: Best practice for adapting existing patient-reported outcome measures in hepatology
Hayley Hutchings
Sarah Hughes
Thomas Dobbs
title_short Saving time and effort: Best practice for adapting existing patient-reported outcome measures in hepatology
title_full Saving time and effort: Best practice for adapting existing patient-reported outcome measures in hepatology
title_fullStr Saving time and effort: Best practice for adapting existing patient-reported outcome measures in hepatology
title_full_unstemmed Saving time and effort: Best practice for adapting existing patient-reported outcome measures in hepatology
title_sort Saving time and effort: Best practice for adapting existing patient-reported outcome measures in hepatology
author_id_str_mv bdf5d5f154d339dd92bb25884b7c3652
64e38e3658e1fcf0810801df47823207
d18101ae0b4e72051f735ef68f45e1a8
author_id_fullname_str_mv bdf5d5f154d339dd92bb25884b7c3652_***_Hayley Hutchings
64e38e3658e1fcf0810801df47823207_***_Sarah Hughes
d18101ae0b4e72051f735ef68f45e1a8_***_Thomas Dobbs
author Hayley Hutchings
Sarah Hughes
Thomas Dobbs
author2 Laith Alrubaiy
Hayley Hutchings
Sarah Hughes
Thomas Dobbs
format Journal article
container_title World Journal of Hepatology
container_volume 14
container_issue 5
container_start_page 896
publishDate 2022
institution Swansea University
issn 1948-5182
doi_str_mv 10.4254/wjh.v14.i5.896
publisher Baishideng Publishing Group Inc.
college_str Faculty of Medicine, Health and Life Sciences
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hierarchy_top_id facultyofmedicinehealthandlifesciences
hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str Swansea University Medical School - Medicine{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}Swansea University Medical School - Medicine
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description It is increasingly recognised that collecting patient reported outcome measures (PROMs) data is an important part of healthcare and should be considered alongside traditional clinical assessments. As part of a more holistic view of healthcare provision, there has been an increased drive to implement PROM collection as part of routine clinical care in hepatology. This drive has resulted in an increase in the number of PROMs currently developed to be used in various liver conditions. However, the development and validation of a new PROM is time-consuming and costly. Therefore, before deciding to develop a new PROM, researchers should consider identifying existing PROMs to assess their appropriateness and, if necessary, make adaptations to existing PROMs to ensure their rigour when used with the target population. Little is written in the literature on how to identify and adapt the existing PROMs in hepatology. This article aims to provide a summary of the current literature and guidance regarding identifying and adapting existing PROMs in clinical practice.
published_date 2022-05-27T04:12:36Z
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