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Educational achievements of children aged 10-11 years with cystic fibrosis. A data linkage study in Wales
International Journal of Population Data Science, Volume: 7, Issue: 1
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IntroductionAs people with cystic fibrosis (CF) lead longer, healthier lives, educational qualifications and employment prospects are increasingly important. However, little is known about the social consequences of CF, in particular, any impact on educational achievements and the support children w...
|Published in:||International Journal of Population Data Science|
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IntroductionAs people with cystic fibrosis (CF) lead longer, healthier lives, educational qualifications and employment prospects are increasingly important. However, little is known about the social consequences of CF, in particular, any impact on educational achievements and the support children with CF receive in schools.ObjectivesTo assess the educational achievements of children with CF in Wales compared to the general Welsh population, and the additional learning support children with CF receive in schools.MethodsWe conducted a population-scale data linkage study of all children born in Wales using the Secure Anonymised Information Linkage (SAIL) Databank. We used anonymised individual-level population-scale health and administrative data sources to identify children with CF born between 2000 -- 2015, linked to educational attainment records. We calculated the percentage of children that reached expected levels in statutory assessment at age 10-11, Key Stage2 (KS2), and compared this to educational outcomes in the general population. We also assessed the percentage of children with CF that received extra learning support.ResultsOut of 150 eligible children, 119 had KS2 results. 77% (95% CI: 69%-84%) of children achieved expected levels in English, 81% (95% CI: 73% -87%) in Mathematics and 82% (95% CI: 75% - 88%) in Science. In the comparable general Welsh population, 83.4% to 91.1% achieved the expected level in English, 84.9% to 91.6% in Maths, and 87.1% to 92.2% in Science across the years of the study. 70% of children with CF received extra learning support.ConclusionsChildren with CF in Wales may have worse educational achievements than the general population. More research is needed to inform policies and interventions to better support children with CF to reach their full educational potential and employment opportunities.
data linkage; cystic fibrosis; education; SAIL Databank
Faculty of Medicine, Health and Life Sciences
This work was supported by the Strategic Research Centre 4“CF-EpiNet: Harnessing data to improve lives” funded by theCystic Fibrosis Trust and by Health Data Research UK, whichreceives its funding from HDR UK Ltd (HDR-9006) funded bythe UK Medical Research Council, Engineering and PhysicalSciences Research Council, Economic and Social ResearchCouncil, Department of Health and Social Care (England),Chief Scientist Office of the Scottish Government Health andSocial Care Directorates, Health and Social Care Researchand Development Division (Welsh Government), Public HealthAgency (Northern Ireland), British Heart Foundation (BHF)and the Wellcome Trust. DTR is funded by the MRC on aClinician Scientist Fellowship (MR/P008577/1).