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Data Resource: Children Receiving Care and Support and Children in Need, administrative records in Wales.

Alexandra Lee, Martin Elliott Orcid Logo, Jonathan Scourfield Orcid Logo, Stuart Bedston, Karen Broadhurst, David Ford Orcid Logo, Lucy Griffiths Orcid Logo

International Journal of Population Data Science, Volume: 7, Issue: 1

Swansea University Authors: Alexandra Lee, Stuart Bedston, David Ford Orcid Logo, Lucy Griffiths Orcid Logo

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DOI (Published version): 10.23889/ijpds.v7i1.1694

Abstract

IntroductionIn Wales, the Children in Need (CIN) dataset includes information relating to needs of children and social care support. Before the Social Services and Well-being (Wales) Act 2014 came into force in April 2016, this data collection was named the Children in Need census, changing to Child...

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Published in: International Journal of Population Data Science
ISSN: 2399-4908
Published: Swansea University 2022
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URI: https://cronfa.swan.ac.uk/Record/cronfa60351
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Before the Social Services and Well-being (Wales) Act 2014 came into force in April 2016, this data collection was named the Children in Need census, changing to Children Receiving Care and Support (CRCS) after this date to reflect better the children eligible for inclusion. This paper describes these datasets, their potential for research and their limitations. We describe data that researchers can access via the Secure Anonymised Information Linkage (SAIL) Databank and exploratory linkages made to health records.MethodsCIN and CRCS data were transferred to the SAIL Databank using a standardised approach to provide de-identified data with Anonymised Linking Fields (ALF) for successfully matched records. The linkage method relies on the use of Unique Pupil Numbers (UPN). As such, no records are currently available for children without a UPN, which includes most under age three. ALFs enabled linkage to individual-level health data within SAIL. Health service use was compared to non-CIN/CRCS populations.ResultsCRCS data held within the SAIL Databank comprises 25,972 records, 81% of the total number of records reported by the Welsh Government. The CIN data contains 108,449 records, 79% of the Welsh Government's records for this data collection. Health service use of children in need, and children receiving care and support, was roughly equal to that of the non-CIN/CRCS population, except GP visits, where children in need had fewer consultations, and children receiving care and support had more consultations than the comparison population.ConclusionResearchers can access Welsh CIN and CRCS datasets through the SAIL Databank, enabling research opportunities. Work is ongoing to improve records and to understand better the health and health service use among children captured by CIN and CRCS censuses.</abstract><type>Journal Article</type><journal>International Journal of Population Data Science</journal><volume>7</volume><journalNumber>1</journalNumber><paginationStart/><paginationEnd/><publisher>Swansea University</publisher><placeOfPublication/><isbnPrint/><isbnElectronic/><issnPrint/><issnElectronic>2399-4908</issnElectronic><keywords>social care; administrative data; data linkage; children</keywords><publishedDay>9</publishedDay><publishedMonth>5</publishedMonth><publishedYear>2022</publishedYear><publishedDate>2022-05-09</publishedDate><doi>10.23889/ijpds.v7i1.1694</doi><url/><notes/><college>COLLEGE NANME</college><department>Health Data Science</department><CollegeCode>COLLEGE CODE</CollegeCode><DepartmentCode>HDAT</DepartmentCode><institution>Swansea University</institution><apcterm/><funders>The CASCADE partnership receives infrastructure fundingfrom Health and Care Research Wales (517199).LJG and KB are funded by the Nuffield Family JusticeObservatory (FJO/43766).</funders><lastEdited>2022-07-13T14:59:38.6423852</lastEdited><Created>2022-07-01T15:55:50.9778626</Created><path><level id="1">Faculty of Medicine, Health and Life Sciences</level><level id="2">Swansea University Medical School - Medicine</level></path><authors><author><firstname>Alexandra</firstname><surname>Lee</surname><order>1</order></author><author><firstname>Martin</firstname><surname>Elliott</surname><orcid>0000-0002-8062-6913</orcid><order>2</order></author><author><firstname>Jonathan</firstname><surname>Scourfield</surname><orcid>0000-0001-6218-8158</orcid><order>3</order></author><author><firstname>Stuart</firstname><surname>Bedston</surname><order>4</order></author><author><firstname>Karen</firstname><surname>Broadhurst</surname><order>5</order></author><author><firstname>David</firstname><surname>Ford</surname><orcid>0000-0001-6551-721X</orcid><order>6</order></author><author><firstname>Lucy</firstname><surname>Griffiths</surname><orcid>0000-0001-9230-624X</orcid><order>7</order></author></authors><documents><document><filename>60351__24580__79629e9a3e834b659d4e3481f9890ca7.pdf</filename><originalFilename>60351_VoR.pdf</originalFilename><uploaded>2022-07-13T14:58:29.9006005</uploaded><type>Output</type><contentLength>1086193</contentLength><contentType>application/pdf</contentType><version>Version of Record</version><cronfaStatus>true</cronfaStatus><documentNotes>&#xA9; The Authors. 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spelling 2022-07-13T14:59:38.6423852 v2 60351 2022-07-01 Data Resource: Children Receiving Care and Support and Children in Need, administrative records in Wales. 7c6dc217555b0fea264ff0dd7d0aa374 Alexandra Lee Alexandra Lee true false c79d07eaba5c9515c0df82b372b76a41 Stuart Bedston Stuart Bedston true false 52fc0c473b0da1b7218d87f9fc68a3e6 0000-0001-6551-721X David Ford David Ford true false e35ea6ea4b429e812ef204b048131d93 0000-0001-9230-624X Lucy Griffiths Lucy Griffiths true false 2022-07-01 HDAT IntroductionIn Wales, the Children in Need (CIN) dataset includes information relating to needs of children and social care support. Before the Social Services and Well-being (Wales) Act 2014 came into force in April 2016, this data collection was named the Children in Need census, changing to Children Receiving Care and Support (CRCS) after this date to reflect better the children eligible for inclusion. This paper describes these datasets, their potential for research and their limitations. We describe data that researchers can access via the Secure Anonymised Information Linkage (SAIL) Databank and exploratory linkages made to health records.MethodsCIN and CRCS data were transferred to the SAIL Databank using a standardised approach to provide de-identified data with Anonymised Linking Fields (ALF) for successfully matched records. The linkage method relies on the use of Unique Pupil Numbers (UPN). As such, no records are currently available for children without a UPN, which includes most under age three. ALFs enabled linkage to individual-level health data within SAIL. Health service use was compared to non-CIN/CRCS populations.ResultsCRCS data held within the SAIL Databank comprises 25,972 records, 81% of the total number of records reported by the Welsh Government. The CIN data contains 108,449 records, 79% of the Welsh Government's records for this data collection. Health service use of children in need, and children receiving care and support, was roughly equal to that of the non-CIN/CRCS population, except GP visits, where children in need had fewer consultations, and children receiving care and support had more consultations than the comparison population.ConclusionResearchers can access Welsh CIN and CRCS datasets through the SAIL Databank, enabling research opportunities. Work is ongoing to improve records and to understand better the health and health service use among children captured by CIN and CRCS censuses. Journal Article International Journal of Population Data Science 7 1 Swansea University 2399-4908 social care; administrative data; data linkage; children 9 5 2022 2022-05-09 10.23889/ijpds.v7i1.1694 COLLEGE NANME Health Data Science COLLEGE CODE HDAT Swansea University The CASCADE partnership receives infrastructure fundingfrom Health and Care Research Wales (517199).LJG and KB are funded by the Nuffield Family JusticeObservatory (FJO/43766). 2022-07-13T14:59:38.6423852 2022-07-01T15:55:50.9778626 Faculty of Medicine, Health and Life Sciences Swansea University Medical School - Medicine Alexandra Lee 1 Martin Elliott 0000-0002-8062-6913 2 Jonathan Scourfield 0000-0001-6218-8158 3 Stuart Bedston 4 Karen Broadhurst 5 David Ford 0000-0001-6551-721X 6 Lucy Griffiths 0000-0001-9230-624X 7 60351__24580__79629e9a3e834b659d4e3481f9890ca7.pdf 60351_VoR.pdf 2022-07-13T14:58:29.9006005 Output 1086193 application/pdf Version of Record true © The Authors. Open Access under CC BY 4.0 true eng https://creativecommons.org/licenses/by/4.0/deed.en
title Data Resource: Children Receiving Care and Support and Children in Need, administrative records in Wales.
spellingShingle Data Resource: Children Receiving Care and Support and Children in Need, administrative records in Wales.
Alexandra Lee
Stuart Bedston
David Ford
Lucy Griffiths
title_short Data Resource: Children Receiving Care and Support and Children in Need, administrative records in Wales.
title_full Data Resource: Children Receiving Care and Support and Children in Need, administrative records in Wales.
title_fullStr Data Resource: Children Receiving Care and Support and Children in Need, administrative records in Wales.
title_full_unstemmed Data Resource: Children Receiving Care and Support and Children in Need, administrative records in Wales.
title_sort Data Resource: Children Receiving Care and Support and Children in Need, administrative records in Wales.
author_id_str_mv 7c6dc217555b0fea264ff0dd7d0aa374
c79d07eaba5c9515c0df82b372b76a41
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e35ea6ea4b429e812ef204b048131d93
author_id_fullname_str_mv 7c6dc217555b0fea264ff0dd7d0aa374_***_Alexandra Lee
c79d07eaba5c9515c0df82b372b76a41_***_Stuart Bedston
52fc0c473b0da1b7218d87f9fc68a3e6_***_David Ford
e35ea6ea4b429e812ef204b048131d93_***_Lucy Griffiths
author Alexandra Lee
Stuart Bedston
David Ford
Lucy Griffiths
author2 Alexandra Lee
Martin Elliott
Jonathan Scourfield
Stuart Bedston
Karen Broadhurst
David Ford
Lucy Griffiths
format Journal article
container_title International Journal of Population Data Science
container_volume 7
container_issue 1
publishDate 2022
institution Swansea University
issn 2399-4908
doi_str_mv 10.23889/ijpds.v7i1.1694
publisher Swansea University
college_str Faculty of Medicine, Health and Life Sciences
hierarchytype
hierarchy_top_id facultyofmedicinehealthandlifesciences
hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str Swansea University Medical School - Medicine{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}Swansea University Medical School - Medicine
document_store_str 1
active_str 0
description IntroductionIn Wales, the Children in Need (CIN) dataset includes information relating to needs of children and social care support. Before the Social Services and Well-being (Wales) Act 2014 came into force in April 2016, this data collection was named the Children in Need census, changing to Children Receiving Care and Support (CRCS) after this date to reflect better the children eligible for inclusion. This paper describes these datasets, their potential for research and their limitations. We describe data that researchers can access via the Secure Anonymised Information Linkage (SAIL) Databank and exploratory linkages made to health records.MethodsCIN and CRCS data were transferred to the SAIL Databank using a standardised approach to provide de-identified data with Anonymised Linking Fields (ALF) for successfully matched records. The linkage method relies on the use of Unique Pupil Numbers (UPN). As such, no records are currently available for children without a UPN, which includes most under age three. ALFs enabled linkage to individual-level health data within SAIL. Health service use was compared to non-CIN/CRCS populations.ResultsCRCS data held within the SAIL Databank comprises 25,972 records, 81% of the total number of records reported by the Welsh Government. The CIN data contains 108,449 records, 79% of the Welsh Government's records for this data collection. Health service use of children in need, and children receiving care and support, was roughly equal to that of the non-CIN/CRCS population, except GP visits, where children in need had fewer consultations, and children receiving care and support had more consultations than the comparison population.ConclusionResearchers can access Welsh CIN and CRCS datasets through the SAIL Databank, enabling research opportunities. Work is ongoing to improve records and to understand better the health and health service use among children captured by CIN and CRCS censuses.
published_date 2022-05-09T04:18:23Z
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