Journal article 699 views 66 downloads
Recommendations for a voluntary Long COVID Registry
,
Ilora Finlay,
Helen Howson,
Nicholas Rich
Journal of the Royal Society of Medicine, Volume: 115, Issue: 8, Pages: 322 - 324
Swansea University Authors:
Fern Davies , Helen Howson, Nicholas Rich
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DOI (Published version): 10.1177/01410768221114964
Abstract
Long COVID has had a profound impact on the lives and health of many people around the globe.1 Estimates of the number of people affected vary, but on the 6th May 2022, the Office of National Statistics (ONS) identified that there were 1.8 million (2.8%) people living in private households in the UK...
| Published in: | Journal of the Royal Society of Medicine |
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| ISSN: | 0141-0768 1758-1095 |
| Published: |
SAGE Publications
2022
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| Online Access: |
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| URI: | https://cronfa.swan.ac.uk/Record/cronfa60408 |
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| Abstract: |
Long COVID has had a profound impact on the lives and health of many people around the globe.1 Estimates of the number of people affected vary, but on the 6th May 2022, the Office of National Statistics (ONS) identified that there were 1.8 million (2.8%) people living in private households in the UK alone who were experiencing self-reported long COVID symptoms.2 The same data identified that symptoms adversely affect the day-to-day activities of 1.2 million people in the UK.2 However, the long-term consequences of SARS-CoV-2 infection and the subsequent impact on public health are still largely unknown and present a major challenge to health and care systems moving forward. A mechanism to facilitate long-term monitoring of long COVID is therefore essential to support research, service improvement and enhance understanding of the disease as it evolves. In response to this, the aim of this commentary is to outline key recommendations for a voluntary Long COVID Registry in Wales. In this paper, five key recommendations are highlighted that should be considered in the development of a Long COVID Registry. These include: 1) a dual purpose of research and service improvement; 2) experiential co-design with end-users; 3) recruitment of a self-referred population and inclusion of a control group; 4) utilisation of digital infrastructures and 6) a prudent and integrated approach. |
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| College: |
Faculty of Humanities and Social Sciences |
| Funders: |
The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: The Bevan Commission gratefully acknowledge the support of Welsh Government funding for the research activity presented in this paper. |
| Issue: |
8 |
| Start Page: |
322 |
| End Page: |
324 |