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The Exeter Activity Unlimited statement on physical activity and exercise for cystic fibrosis: methodology and results of an international, multidisciplinary, evidence-driven expert consensus

Craig A Williams, Alan R Barker, Sarah Denford, Samantha B van Beurden, Mayara S Bianchim, Jessica E Caterini, Narelle S Cox, Kelly Mackintosh Orcid Logo, Melitta McNarry Orcid Logo, Sarah Rand, Jane E Schneiderman Orcid Logo, Greg D Wells, Peter Anderson, Daniel Beever, Z Beverley, Ronan Buckley, Brenda Button, Adam J Causer, Máire Curran, Tiffany J Dwyer Orcid Logo, Warren Gordon, Mathieu Gruet, Ryan A Harris Orcid Logo, Elpis Hatziagorou, HJ (Erik) Hulzebos, Asterios Kampouras, Lisa Morrison, Marietta N Cámara, Clare M Reilly, Abbey Sawyer, Zoe L Saynor, James Shelley, Grace Spencer, Gemma E Stanford, Don S Urquhart, Rachel Young, Owen W Tomlinson Orcid Logo, (on behalf of the Youth Activity Unlimited – A Strategic Research Centre of the UK Cystic Fibrosis Trust)

Chronic Respiratory Disease, Volume: 19, Start page: 147997312211216

Swansea University Authors: Kelly Mackintosh Orcid Logo, Melitta McNarry Orcid Logo

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DOI (Published version): 10.1177/14799731221121670

Abstract

Background: The roles of physical activity (PA) and exercise within the management of cystic fibrosis (CF) are recognised by their inclusion in numerous standards of care and treatment guidelines. However, information is brief, and both PA and exercise as multi-faceted behaviours require extensive s...

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Published in: Chronic Respiratory Disease
ISSN: 1479-9731 1479-9731
Published: SAGE Publications 2022
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URI: https://cronfa.swan.ac.uk/Record/cronfa60706
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fullrecord <?xml version="1.0"?><rfc1807><datestamp>2022-11-18T15:42:03.5863943</datestamp><bib-version>v2</bib-version><id>60706</id><entry>2022-08-02</entry><title>The Exeter Activity Unlimited statement on physical activity and exercise for cystic fibrosis: methodology and results of an international, multidisciplinary, evidence-driven expert consensus</title><swanseaauthors><author><sid>bdb20e3f31bcccf95c7bc116070c4214</sid><ORCID>0000-0003-0355-6357</ORCID><firstname>Kelly</firstname><surname>Mackintosh</surname><name>Kelly Mackintosh</name><active>true</active><ethesisStudent>false</ethesisStudent></author><author><sid>062f5697ff59f004bc8c713955988398</sid><ORCID>0000-0003-0813-7477</ORCID><firstname>Melitta</firstname><surname>McNarry</surname><name>Melitta McNarry</name><active>true</active><ethesisStudent>false</ethesisStudent></author></swanseaauthors><date>2022-08-02</date><deptcode>STSC</deptcode><abstract>Background: The roles of physical activity (PA) and exercise within the management of cystic fibrosis (CF) are recognised by their inclusion in numerous standards of care and treatment guidelines. However, information is brief, and both PA and exercise as multi-faceted behaviours require extensive stakeholder input when developing and promoting such guidelines. Method: On 30th June and 1st July 2021, 39 stakeholders from 11 countries, including researchers, healthcare professionals and patients participated in a virtual conference to agree an evidence-based and informed expert consensus about PA and exercise for people with CF. This consensus presents the agreement across six themes: i) patient and system centred outcomes, ii) health benefits, iii) measurement, iv) prescription, v) clinical considerations, and vi) future directions. The consensus was achieved by a stepwise process, involving: i) written evidence-based synopses; ii) peer critique of synopses; iii) oral presentation to consensus group and peer challenge of revised synopses; and iv) anonymous voting on final proposed synopses for adoption to the consensus statement. Results: The final consensus document includes 24 statements which surpassed the consensus threshold (&gt;80% agreement) out of 30 proposed statements. Conclusion: This consensus can be used to support health promotion by relevant stakeholders for people with CF.</abstract><type>Journal Article</type><journal>Chronic Respiratory Disease</journal><volume>19</volume><journalNumber/><paginationStart>147997312211216</paginationStart><paginationEnd/><publisher>SAGE Publications</publisher><placeOfPublication/><isbnPrint/><isbnElectronic/><issnPrint>1479-9731</issnPrint><issnElectronic>1479-9731</issnElectronic><keywords>Respiratory disease, lifestyle, health, clinical practice</keywords><publishedDay>6</publishedDay><publishedMonth>9</publishedMonth><publishedYear>2022</publishedYear><publishedDate>2022-09-06</publishedDate><doi>10.1177/14799731221121670</doi><url/><notes/><college>COLLEGE NANME</college><department>Sport and Exercise Sciences</department><CollegeCode>COLLEGE CODE</CollegeCode><DepartmentCode>STSC</DepartmentCode><institution>Swansea University</institution><apcterm/><funders>This work is part of the &#x2018;Youth Activity Unlimited&#x2019; Strategic Research Centre, funded by the Cystic Fibrosis Trust (SRC#008).</funders><projectreference/><lastEdited>2022-11-18T15:42:03.5863943</lastEdited><Created>2022-08-02T13:54:08.4276642</Created><path><level id="1">Faculty of Science and Engineering</level><level id="2">School of Aerospace, Civil, Electrical, General and Mechanical Engineering - Sport and Exercise Sciences</level></path><authors><author><firstname>Craig A</firstname><surname>Williams</surname><order>1</order></author><author><firstname>Alan R</firstname><surname>Barker</surname><order>2</order></author><author><firstname>Sarah</firstname><surname>Denford</surname><order>3</order></author><author><firstname>Samantha B van</firstname><surname>Beurden</surname><order>4</order></author><author><firstname>Mayara S</firstname><surname>Bianchim</surname><order>5</order></author><author><firstname>Jessica E</firstname><surname>Caterini</surname><order>6</order></author><author><firstname>Narelle S</firstname><surname>Cox</surname><order>7</order></author><author><firstname>Kelly</firstname><surname>Mackintosh</surname><orcid>0000-0003-0355-6357</orcid><order>8</order></author><author><firstname>Melitta</firstname><surname>McNarry</surname><orcid>0000-0003-0813-7477</orcid><order>9</order></author><author><firstname>Sarah</firstname><surname>Rand</surname><order>10</order></author><author><firstname>Jane E</firstname><surname>Schneiderman</surname><orcid>0000-0002-8271-9101</orcid><order>11</order></author><author><firstname>Greg D</firstname><surname>Wells</surname><order>12</order></author><author><firstname>Peter</firstname><surname>Anderson</surname><order>13</order></author><author><firstname>Daniel</firstname><surname>Beever</surname><order>14</order></author><author><firstname>Z</firstname><surname>Beverley</surname><order>15</order></author><author><firstname>Ronan</firstname><surname>Buckley</surname><order>16</order></author><author><firstname>Brenda</firstname><surname>Button</surname><order>17</order></author><author><firstname>Adam J</firstname><surname>Causer</surname><order>18</order></author><author><firstname>M&#xE1;ire</firstname><surname>Curran</surname><order>19</order></author><author><firstname>Tiffany J</firstname><surname>Dwyer</surname><orcid>0000-0001-6403-2894</orcid><order>20</order></author><author><firstname>Warren</firstname><surname>Gordon</surname><order>21</order></author><author><firstname>Mathieu</firstname><surname>Gruet</surname><order>22</order></author><author><firstname>Ryan A</firstname><surname>Harris</surname><orcid>0000-0002-8826-681x</orcid><order>23</order></author><author><firstname>Elpis</firstname><surname>Hatziagorou</surname><order>24</order></author><author><firstname>HJ (Erik)</firstname><surname>Hulzebos</surname><order>25</order></author><author><firstname>Asterios</firstname><surname>Kampouras</surname><order>26</order></author><author><firstname>Lisa</firstname><surname>Morrison</surname><order>27</order></author><author><firstname>Marietta N</firstname><surname>C&#xE1;mara</surname><order>28</order></author><author><firstname>Clare M</firstname><surname>Reilly</surname><order>29</order></author><author><firstname>Abbey</firstname><surname>Sawyer</surname><order>30</order></author><author><firstname>Zoe L</firstname><surname>Saynor</surname><order>31</order></author><author><firstname>James</firstname><surname>Shelley</surname><order>32</order></author><author><firstname>Grace</firstname><surname>Spencer</surname><order>33</order></author><author><firstname>Gemma E</firstname><surname>Stanford</surname><order>34</order></author><author><firstname>Don S</firstname><surname>Urquhart</surname><order>35</order></author><author><firstname>Rachel</firstname><surname>Young</surname><order>36</order></author><author><firstname>Owen W</firstname><surname>Tomlinson</surname><orcid>0000-0003-4063-7682</orcid><order>37</order></author><author><firstname>(on behalf of the Youth Activity Unlimited &#x2013; 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spelling 2022-11-18T15:42:03.5863943 v2 60706 2022-08-02 The Exeter Activity Unlimited statement on physical activity and exercise for cystic fibrosis: methodology and results of an international, multidisciplinary, evidence-driven expert consensus bdb20e3f31bcccf95c7bc116070c4214 0000-0003-0355-6357 Kelly Mackintosh Kelly Mackintosh true false 062f5697ff59f004bc8c713955988398 0000-0003-0813-7477 Melitta McNarry Melitta McNarry true false 2022-08-02 STSC Background: The roles of physical activity (PA) and exercise within the management of cystic fibrosis (CF) are recognised by their inclusion in numerous standards of care and treatment guidelines. However, information is brief, and both PA and exercise as multi-faceted behaviours require extensive stakeholder input when developing and promoting such guidelines. Method: On 30th June and 1st July 2021, 39 stakeholders from 11 countries, including researchers, healthcare professionals and patients participated in a virtual conference to agree an evidence-based and informed expert consensus about PA and exercise for people with CF. This consensus presents the agreement across six themes: i) patient and system centred outcomes, ii) health benefits, iii) measurement, iv) prescription, v) clinical considerations, and vi) future directions. The consensus was achieved by a stepwise process, involving: i) written evidence-based synopses; ii) peer critique of synopses; iii) oral presentation to consensus group and peer challenge of revised synopses; and iv) anonymous voting on final proposed synopses for adoption to the consensus statement. Results: The final consensus document includes 24 statements which surpassed the consensus threshold (>80% agreement) out of 30 proposed statements. Conclusion: This consensus can be used to support health promotion by relevant stakeholders for people with CF. Journal Article Chronic Respiratory Disease 19 147997312211216 SAGE Publications 1479-9731 1479-9731 Respiratory disease, lifestyle, health, clinical practice 6 9 2022 2022-09-06 10.1177/14799731221121670 COLLEGE NANME Sport and Exercise Sciences COLLEGE CODE STSC Swansea University This work is part of the ‘Youth Activity Unlimited’ Strategic Research Centre, funded by the Cystic Fibrosis Trust (SRC#008). 2022-11-18T15:42:03.5863943 2022-08-02T13:54:08.4276642 Faculty of Science and Engineering School of Aerospace, Civil, Electrical, General and Mechanical Engineering - Sport and Exercise Sciences Craig A Williams 1 Alan R Barker 2 Sarah Denford 3 Samantha B van Beurden 4 Mayara S Bianchim 5 Jessica E Caterini 6 Narelle S Cox 7 Kelly Mackintosh 0000-0003-0355-6357 8 Melitta McNarry 0000-0003-0813-7477 9 Sarah Rand 10 Jane E Schneiderman 0000-0002-8271-9101 11 Greg D Wells 12 Peter Anderson 13 Daniel Beever 14 Z Beverley 15 Ronan Buckley 16 Brenda Button 17 Adam J Causer 18 Máire Curran 19 Tiffany J Dwyer 0000-0001-6403-2894 20 Warren Gordon 21 Mathieu Gruet 22 Ryan A Harris 0000-0002-8826-681x 23 Elpis Hatziagorou 24 HJ (Erik) Hulzebos 25 Asterios Kampouras 26 Lisa Morrison 27 Marietta N Cámara 28 Clare M Reilly 29 Abbey Sawyer 30 Zoe L Saynor 31 James Shelley 32 Grace Spencer 33 Gemma E Stanford 34 Don S Urquhart 35 Rachel Young 36 Owen W Tomlinson 0000-0003-4063-7682 37 (on behalf of the Youth Activity Unlimited – A Strategic Research Centre of the UK Cystic Fibrosis Trust) 38 60706__25830__dcaec302c79d428593dfda22d683d0bc.pdf 60706.pdf 2022-11-18T15:39:26.2571747 Output 786634 application/pdf Version of Record true This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License true eng https://creativecommons.org/licenses/by-nc/4.0/
title The Exeter Activity Unlimited statement on physical activity and exercise for cystic fibrosis: methodology and results of an international, multidisciplinary, evidence-driven expert consensus
spellingShingle The Exeter Activity Unlimited statement on physical activity and exercise for cystic fibrosis: methodology and results of an international, multidisciplinary, evidence-driven expert consensus
Kelly Mackintosh
Melitta McNarry
title_short The Exeter Activity Unlimited statement on physical activity and exercise for cystic fibrosis: methodology and results of an international, multidisciplinary, evidence-driven expert consensus
title_full The Exeter Activity Unlimited statement on physical activity and exercise for cystic fibrosis: methodology and results of an international, multidisciplinary, evidence-driven expert consensus
title_fullStr The Exeter Activity Unlimited statement on physical activity and exercise for cystic fibrosis: methodology and results of an international, multidisciplinary, evidence-driven expert consensus
title_full_unstemmed The Exeter Activity Unlimited statement on physical activity and exercise for cystic fibrosis: methodology and results of an international, multidisciplinary, evidence-driven expert consensus
title_sort The Exeter Activity Unlimited statement on physical activity and exercise for cystic fibrosis: methodology and results of an international, multidisciplinary, evidence-driven expert consensus
author_id_str_mv bdb20e3f31bcccf95c7bc116070c4214
062f5697ff59f004bc8c713955988398
author_id_fullname_str_mv bdb20e3f31bcccf95c7bc116070c4214_***_Kelly Mackintosh
062f5697ff59f004bc8c713955988398_***_Melitta McNarry
author Kelly Mackintosh
Melitta McNarry
author2 Craig A Williams
Alan R Barker
Sarah Denford
Samantha B van Beurden
Mayara S Bianchim
Jessica E Caterini
Narelle S Cox
Kelly Mackintosh
Melitta McNarry
Sarah Rand
Jane E Schneiderman
Greg D Wells
Peter Anderson
Daniel Beever
Z Beverley
Ronan Buckley
Brenda Button
Adam J Causer
Máire Curran
Tiffany J Dwyer
Warren Gordon
Mathieu Gruet
Ryan A Harris
Elpis Hatziagorou
HJ (Erik) Hulzebos
Asterios Kampouras
Lisa Morrison
Marietta N Cámara
Clare M Reilly
Abbey Sawyer
Zoe L Saynor
James Shelley
Grace Spencer
Gemma E Stanford
Don S Urquhart
Rachel Young
Owen W Tomlinson
(on behalf of the Youth Activity Unlimited – A Strategic Research Centre of the UK Cystic Fibrosis Trust)
format Journal article
container_title Chronic Respiratory Disease
container_volume 19
container_start_page 147997312211216
publishDate 2022
institution Swansea University
issn 1479-9731
1479-9731
doi_str_mv 10.1177/14799731221121670
publisher SAGE Publications
college_str Faculty of Science and Engineering
hierarchytype
hierarchy_top_id facultyofscienceandengineering
hierarchy_top_title Faculty of Science and Engineering
hierarchy_parent_id facultyofscienceandengineering
hierarchy_parent_title Faculty of Science and Engineering
department_str School of Aerospace, Civil, Electrical, General and Mechanical Engineering - Sport and Exercise Sciences{{{_:::_}}}Faculty of Science and Engineering{{{_:::_}}}School of Aerospace, Civil, Electrical, General and Mechanical Engineering - Sport and Exercise Sciences
document_store_str 1
active_str 0
description Background: The roles of physical activity (PA) and exercise within the management of cystic fibrosis (CF) are recognised by their inclusion in numerous standards of care and treatment guidelines. However, information is brief, and both PA and exercise as multi-faceted behaviours require extensive stakeholder input when developing and promoting such guidelines. Method: On 30th June and 1st July 2021, 39 stakeholders from 11 countries, including researchers, healthcare professionals and patients participated in a virtual conference to agree an evidence-based and informed expert consensus about PA and exercise for people with CF. This consensus presents the agreement across six themes: i) patient and system centred outcomes, ii) health benefits, iii) measurement, iv) prescription, v) clinical considerations, and vi) future directions. The consensus was achieved by a stepwise process, involving: i) written evidence-based synopses; ii) peer critique of synopses; iii) oral presentation to consensus group and peer challenge of revised synopses; and iv) anonymous voting on final proposed synopses for adoption to the consensus statement. Results: The final consensus document includes 24 statements which surpassed the consensus threshold (>80% agreement) out of 30 proposed statements. Conclusion: This consensus can be used to support health promotion by relevant stakeholders for people with CF.
published_date 2022-09-06T04:19:02Z
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score 11.012678

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