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The role of social support networks in the dementia literacy of older adults in Wales / CAROL MADDOCK

Swansea University Author: CAROL MADDOCK

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DOI (Published version): 10.23889/SUthesis.61499

Abstract

Dementia is a global and national priority although knowledge about it within the general public is low. Raising awareness of dementia has been established as an important area of public health policy. This thesis examined the relationship between general understandings of dementia and influences on...

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Published: Swansea 2019
Institution: Swansea University
Degree level: Doctoral
Degree name: Ph.D
Supervisor: Keating, Norah C. ; Hyde, Martin
URI: https://cronfa.swan.ac.uk/Record/cronfa61499
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first_indexed 2022-10-10T12:00:30Z
last_indexed 2023-01-13T19:22:17Z
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spelling 2022-10-10T15:39:07.7505370 v2 61499 2022-10-10 The role of social support networks in the dementia literacy of older adults in Wales e05c383a523d082418f5ee922e0856ca CAROL MADDOCK CAROL MADDOCK true false 2022-10-10 Dementia is a global and national priority although knowledge about it within the general public is low. Raising awareness of dementia has been established as an important area of public health policy. This thesis examined the relationship between general understandings of dementia and influences on attitudes towards risks and lifestyle behaviours, how views are shared, and how interactions with individuals are affected. These relationships are encapsulated within the concept of dementia literacy. Dementia literacy is a relatively new area of investigation, set within the overarching construct of health literacy. Health literacy concerns the capacities of people to meet the complex demands of health, including promoting health and preventing illness, and is important for individuals and communities. This study’s mixed methods approach examined levels of population health literacy and explored understandings of dementia literacy within the older Welsh population. A health literacy measure was imputed using data from the Cognitive Functioning and Ageing Study Wales, a nationally representative survey of older adults. The measure enabled relationships between health literacy and social factors to be determined. In depth interviews with a subset of participants were conducted to provide a picture of dementia literacy and how it was shared within networks. Data were analysed using a qualitative framework approach. Findings indicate that levels of health literacy differ by support network type and social participation. Interviews identified imbalanced, fragmentary and distorted dementia knowledge and an aversion to learning more. Negative attitudes towards dementia discouraged engagement in dementia literacy. Participant’s social contexts did not facilitate knowing more about dementia, due to a mix of fear, fatalism and stigmatising attitudes. Participants reported that support network members frequently deflected attempts to discuss personal worrisome symptoms. Effective DL strategies must incorporate strategies to address fear, fatalism and stigma. An enhanced definition and framework of dementia literacy is suggested. E-Thesis Swansea ORCiD identifier: https://orcid.org/0000-0001-8039-1854 5 12 2019 2019-12-05 10.23889/SUthesis.61499 COLLEGE NANME COLLEGE CODE Swansea University Keating, Norah C. ; Hyde, Martin Doctoral Ph.D 2022-10-10T15:39:07.7505370 2022-10-10T12:57:38.4629204 Faculty of Medicine, Health and Life Sciences The Centre for Innovative Ageing CAROL MADDOCK 1 61499__25389__4198618e4c334bfaa653061d169b6785.pdf Maddock_Carol_PhD_Thesis_Final_Redacted_Signature.pdf 2022-10-10T15:38:23.1230486 Output 4596490 application/pdf E-Thesis – open access true Copyright: The author, Carol Maddock, 2019. Released under the terms of a Creative Commons Attribution-Only (CC-BY) License.Third party content is excluded for use under the license terms. true eng https://creativecommons.org/licenses/by/4.0/
title The role of social support networks in the dementia literacy of older adults in Wales
spellingShingle The role of social support networks in the dementia literacy of older adults in Wales
CAROL MADDOCK
title_short The role of social support networks in the dementia literacy of older adults in Wales
title_full The role of social support networks in the dementia literacy of older adults in Wales
title_fullStr The role of social support networks in the dementia literacy of older adults in Wales
title_full_unstemmed The role of social support networks in the dementia literacy of older adults in Wales
title_sort The role of social support networks in the dementia literacy of older adults in Wales
author_id_str_mv e05c383a523d082418f5ee922e0856ca
author_id_fullname_str_mv e05c383a523d082418f5ee922e0856ca_***_CAROL MADDOCK
author CAROL MADDOCK
author2 CAROL MADDOCK
format E-Thesis
publishDate 2019
institution Swansea University
doi_str_mv 10.23889/SUthesis.61499
college_str Faculty of Medicine, Health and Life Sciences
hierarchytype
hierarchy_top_id facultyofmedicinehealthandlifesciences
hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str The Centre for Innovative Ageing{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}The Centre for Innovative Ageing
document_store_str 1
active_str 0
description Dementia is a global and national priority although knowledge about it within the general public is low. Raising awareness of dementia has been established as an important area of public health policy. This thesis examined the relationship between general understandings of dementia and influences on attitudes towards risks and lifestyle behaviours, how views are shared, and how interactions with individuals are affected. These relationships are encapsulated within the concept of dementia literacy. Dementia literacy is a relatively new area of investigation, set within the overarching construct of health literacy. Health literacy concerns the capacities of people to meet the complex demands of health, including promoting health and preventing illness, and is important for individuals and communities. This study’s mixed methods approach examined levels of population health literacy and explored understandings of dementia literacy within the older Welsh population. A health literacy measure was imputed using data from the Cognitive Functioning and Ageing Study Wales, a nationally representative survey of older adults. The measure enabled relationships between health literacy and social factors to be determined. In depth interviews with a subset of participants were conducted to provide a picture of dementia literacy and how it was shared within networks. Data were analysed using a qualitative framework approach. Findings indicate that levels of health literacy differ by support network type and social participation. Interviews identified imbalanced, fragmentary and distorted dementia knowledge and an aversion to learning more. Negative attitudes towards dementia discouraged engagement in dementia literacy. Participant’s social contexts did not facilitate knowing more about dementia, due to a mix of fear, fatalism and stigmatising attitudes. Participants reported that support network members frequently deflected attempts to discuss personal worrisome symptoms. Effective DL strategies must incorporate strategies to address fear, fatalism and stigma. An enhanced definition and framework of dementia literacy is suggested.
published_date 2019-12-05T04:20:21Z
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score 11.016235

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