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Some observations on remote delivery of eye‐movement desensitisation and reprocessing to people with intellectual disabilities

Gemma Unwin, Biza Stenfert‐Kroese, Gemma Rogers Orcid Logo, Sophie Swain, Steve Hiles, Clair Clifford, Derek Farrell, Paul Willner Orcid Logo

Journal of Policy and Practice in Intellectual Disabilities, Volume: 20, Issue: 2

Swansea University Author: Paul Willner Orcid Logo

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DOI (Published version): 10.1111/jppi.12452

Abstract

It is increasingly recognised that many people with intellectual disabilities suffer from post-traumatic stress disorder (PTSD). Eye-movement desensitisation and reprocessing (EMDR) has been proposed as a potentially helpful intervention that is less reliant on verbal skills than other effective tre...

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Published in: Journal of Policy and Practice in Intellectual Disabilities
ISSN: 1741-1122 1741-1130
Published: Wiley 2023
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URI: https://cronfa.swan.ac.uk/Record/cronfa62179
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Eye-movement desensitisation and reprocessing (EMDR) has been proposed as a potentially helpful intervention that is less reliant on verbal skills than other effective treatments for PTSD and therefore could be more effective than verbal interventions for people with intellectual disabilities. The Trauma-AID project is a randomised clinical trial (RCT) evaluating the effectiveness of a bespoke EMDR protocol for adults with intellectual disability and PTSD, which incorporates a prolonged phase of Psycho-Education and Stabilisation (PES) prior to the trauma confrontation phase of EMDR. The COVID-19 pandemic struck during the feasibility phase of the Trauma-AID project, necessitating a second feasibility study to evaluate the acceptability and feasibility of remote or hybrid delivery of the PES + EMDR protocol. To this end, we conducted two online surveys of therapists followed by interviews with clients, carers and senior therapists. The surveys were analysed descriptively. 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spelling v2 62179 2022-12-15 Some observations on remote delivery of eye‐movement desensitisation and reprocessing to people with intellectual disabilities 4c278ffb6e4af6ab8816be40af66ecd3 0000-0001-5576-5260 Paul Willner Paul Willner true false 2022-12-15 HPS It is increasingly recognised that many people with intellectual disabilities suffer from post-traumatic stress disorder (PTSD). Eye-movement desensitisation and reprocessing (EMDR) has been proposed as a potentially helpful intervention that is less reliant on verbal skills than other effective treatments for PTSD and therefore could be more effective than verbal interventions for people with intellectual disabilities. The Trauma-AID project is a randomised clinical trial (RCT) evaluating the effectiveness of a bespoke EMDR protocol for adults with intellectual disability and PTSD, which incorporates a prolonged phase of Psycho-Education and Stabilisation (PES) prior to the trauma confrontation phase of EMDR. The COVID-19 pandemic struck during the feasibility phase of the Trauma-AID project, necessitating a second feasibility study to evaluate the acceptability and feasibility of remote or hybrid delivery of the PES + EMDR protocol. To this end, we conducted two online surveys of therapists followed by interviews with clients, carers and senior therapists. The surveys were analysed descriptively. Content analysis was used for client and carer interviews, and framework analysis for therapist interviews. All stakeholders reported positive experiences of EMDR; however, some challenges were identified. The majority of clients, carers and therapists interviewed reported that the intervention, whether PES alone or the full PES-EMDR package, had improved symptoms of PTSD and psychological well-being, and carers also reported decreases in challenging behaviour. A full account of the data is provided in four Supplementary Digital files. PES-EMDR therapy appears both feasible and acceptable for clients with intellectual disabilities and therapists, whether delivered face-to-face or in a remote or hybrid mode, though remote working appears easier for the PES phase than the EMDR phase of the intervention. Journal Article Journal of Policy and Practice in Intellectual Disabilities 20 2 Wiley 1741-1122 1741-1130 acceptability, eye-movement desensitisation and reprocessing, feasibility, hybrid delivery, intellectual disability, post-traumatic stress disorder, remote delivery 13 1 2023 2023-01-13 10.1111/jppi.12452 COLLEGE NANME Psychology COLLEGE CODE HPS Swansea University SU Library paid the OA fee (TA Institutional Deal) National Institute for Health Research (NIHR). Grant Number: 17/125/04 2023-07-11T14:59:28.0210708 2022-12-15T18:31:03.9376100 Faculty of Medicine, Health and Life Sciences School of Psychology Gemma Unwin 1 Biza Stenfert‐Kroese 2 Gemma Rogers 0000-0003-0211-6085 3 Sophie Swain 4 Steve Hiles 5 Clair Clifford 6 Derek Farrell 7 Paul Willner 0000-0001-5576-5260 8 62179__26395__ccfb81f168a34909b2f575b483ea8725.pdf 62179.pdf 2023-01-25T13:53:46.3637041 Output 573716 application/pdf Version of Record true © 2023 The Authors. This is an open access article under the terms of the Creative Commons Attribution License true eng http://creativecommons.org/licenses/by/4.0/
title Some observations on remote delivery of eye‐movement desensitisation and reprocessing to people with intellectual disabilities
spellingShingle Some observations on remote delivery of eye‐movement desensitisation and reprocessing to people with intellectual disabilities
Paul Willner
title_short Some observations on remote delivery of eye‐movement desensitisation and reprocessing to people with intellectual disabilities
title_full Some observations on remote delivery of eye‐movement desensitisation and reprocessing to people with intellectual disabilities
title_fullStr Some observations on remote delivery of eye‐movement desensitisation and reprocessing to people with intellectual disabilities
title_full_unstemmed Some observations on remote delivery of eye‐movement desensitisation and reprocessing to people with intellectual disabilities
title_sort Some observations on remote delivery of eye‐movement desensitisation and reprocessing to people with intellectual disabilities
author_id_str_mv 4c278ffb6e4af6ab8816be40af66ecd3
author_id_fullname_str_mv 4c278ffb6e4af6ab8816be40af66ecd3_***_Paul Willner
author Paul Willner
author2 Gemma Unwin
Biza Stenfert‐Kroese
Gemma Rogers
Sophie Swain
Steve Hiles
Clair Clifford
Derek Farrell
Paul Willner
format Journal article
container_title Journal of Policy and Practice in Intellectual Disabilities
container_volume 20
container_issue 2
publishDate 2023
institution Swansea University
issn 1741-1122
1741-1130
doi_str_mv 10.1111/jppi.12452
publisher Wiley
college_str Faculty of Medicine, Health and Life Sciences
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hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str School of Psychology{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}School of Psychology
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description It is increasingly recognised that many people with intellectual disabilities suffer from post-traumatic stress disorder (PTSD). Eye-movement desensitisation and reprocessing (EMDR) has been proposed as a potentially helpful intervention that is less reliant on verbal skills than other effective treatments for PTSD and therefore could be more effective than verbal interventions for people with intellectual disabilities. The Trauma-AID project is a randomised clinical trial (RCT) evaluating the effectiveness of a bespoke EMDR protocol for adults with intellectual disability and PTSD, which incorporates a prolonged phase of Psycho-Education and Stabilisation (PES) prior to the trauma confrontation phase of EMDR. The COVID-19 pandemic struck during the feasibility phase of the Trauma-AID project, necessitating a second feasibility study to evaluate the acceptability and feasibility of remote or hybrid delivery of the PES + EMDR protocol. To this end, we conducted two online surveys of therapists followed by interviews with clients, carers and senior therapists. The surveys were analysed descriptively. Content analysis was used for client and carer interviews, and framework analysis for therapist interviews. All stakeholders reported positive experiences of EMDR; however, some challenges were identified. The majority of clients, carers and therapists interviewed reported that the intervention, whether PES alone or the full PES-EMDR package, had improved symptoms of PTSD and psychological well-being, and carers also reported decreases in challenging behaviour. A full account of the data is provided in four Supplementary Digital files. PES-EMDR therapy appears both feasible and acceptable for clients with intellectual disabilities and therapists, whether delivered face-to-face or in a remote or hybrid mode, though remote working appears easier for the PES phase than the EMDR phase of the intervention.
published_date 2023-01-13T14:59:24Z
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