Journal article 350 views 49 downloads
Living with vaccine-induced immune thrombocytopenia and thrombosis: a qualitative study
BMJ Open, Volume: 13, Issue: 7, Start page: e072658
Swansea University Authors: Paul Bennett, Filiz Celik
-
PDF | Version of Record
© Author(s) 2023. Distributed under the terms of a Creative Commons Attribution Non Commercial 4.0 Licence (CC BY-NC 4.0).
Download (255.26KB)
DOI (Published version): 10.1136/bmjopen-2023-072658
Abstract
Objectives: To explore the experiences of people up to 18 months after being diagnosed with vaccine-induced immune thrombocytopenia and thrombosis (VITT). Design: A semistructured qualitative study, conducted via Zoom, of a cohort of people with VITT. Setting: Participants discussed their experience...
Published in: | BMJ Open |
---|---|
ISSN: | 2044-6055 2044-6055 |
Published: |
BMJ
2023
|
Online Access: |
Check full text
|
URI: | https://cronfa.swan.ac.uk/Record/cronfa63896 |
Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
first_indexed |
2023-07-17T11:12:18Z |
---|---|
last_indexed |
2023-07-17T11:12:18Z |
id |
cronfa63896 |
recordtype |
SURis |
fullrecord |
<?xml version="1.0" encoding="utf-8"?><rfc1807 xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xmlns:xsd="http://www.w3.org/2001/XMLSchema"><bib-version>v2</bib-version><id>63896</id><entry>2023-07-17</entry><title>Living with vaccine-induced immune thrombocytopenia and thrombosis: a qualitative study</title><swanseaauthors><author><sid>20803717bf274c582f30f80916c596d3</sid><firstname>Paul</firstname><surname>Bennett</surname><name>Paul Bennett</name><active>true</active><ethesisStudent>false</ethesisStudent></author><author><sid>fa3b66a6d140d7ead7907869ee9448e7</sid><firstname>Filiz</firstname><surname>Celik</surname><name>Filiz Celik</name><active>true</active><ethesisStudent>false</ethesisStudent></author></swanseaauthors><date>2023-07-17</date><deptcode>FGMHL</deptcode><abstract>Objectives: To explore the experiences of people up to 18 months after being diagnosed with vaccine-induced immune thrombocytopenia and thrombosis (VITT). Design: A semistructured qualitative study, conducted via Zoom, of a cohort of people with VITT. Setting: Participants discussed their experiences of hospitalisation and following discharge. Participants: 14 individuals diagnosed with VITT, recruited via a Facebook support group and advertising on Twitter. Results: Thematic analysis identified challenges of obtaining medical care and diagnosis; fear of the severity of symptoms and unclear prognosis; and lack of family support due to isolation imposed by the COVID-19 pandemic. Once home, participants experienced continued significant symptoms; fear of recurrence; inadequate medical knowledge of their condition; and difficulties coping with residual physical disabilities and psychosocial losses. Also reported were feelings of isolation and abandonment due to lack of government support. Conclusions: This is a significantly challenged group of people, with multiple health, financial, social and psychological losses. These losses have been compounded by experiences of limited governmental and societal recognition of the problems they face.</abstract><type>Journal Article</type><journal>BMJ Open</journal><volume>13</volume><journalNumber>7</journalNumber><paginationStart>e072658</paginationStart><paginationEnd/><publisher>BMJ</publisher><placeOfPublication/><isbnPrint/><isbnElectronic/><issnPrint>2044-6055</issnPrint><issnElectronic>2044-6055</issnElectronic><keywords>Vaccine-induced immune thrombocytopenia and thrombosis, VITT, qualitative study, public health, psychology</keywords><publishedDay>9</publishedDay><publishedMonth>7</publishedMonth><publishedYear>2023</publishedYear><publishedDate>2023-07-09</publishedDate><doi>10.1136/bmjopen-2023-072658</doi><url>http://dx.doi.org/10.1136/bmjopen-2023-072658</url><notes/><college>COLLEGE NANME</college><department>Medicine, Health and Life Science - Faculty</department><CollegeCode>COLLEGE CODE</CollegeCode><DepartmentCode>FGMHL</DepartmentCode><institution>Swansea University</institution><apcterm>SU Library paid the OA fee (TA Institutional Deal)</apcterm><funders>Swansea University</funders><projectreference/><lastEdited>2023-08-23T12:06:00.1809664</lastEdited><Created>2023-07-17T12:06:52.5680860</Created><path><level id="1">Faculty of Medicine, Health and Life Sciences</level><level id="2">School of Psychology</level></path><authors><author><firstname>Paul</firstname><surname>Bennett</surname><order>1</order></author><author><firstname>Filiz</firstname><surname>Celik</surname><order>2</order></author><author><firstname>Jenna</firstname><surname>Winstanley</surname><order>3</order></author><author><firstname>Beverley J</firstname><surname>Hunt</surname><order>4</order></author><author><firstname>Sue</firstname><surname>Pavord</surname><order>5</order></author></authors><documents><document><filename>63896__28130__bccc61fed0c24ae98dbb0ecf4265c574.pdf</filename><originalFilename>63896.VOR.pdf</originalFilename><uploaded>2023-07-17T12:12:46.3441876</uploaded><type>Output</type><contentLength>261386</contentLength><contentType>application/pdf</contentType><version>Version of Record</version><cronfaStatus>true</cronfaStatus><documentNotes>© Author(s) 2023. Distributed under the terms of a Creative Commons Attribution Non Commercial 4.0 Licence (CC BY-NC 4.0).</documentNotes><copyrightCorrect>true</copyrightCorrect><language>eng</language><licence>https://creativecommons.org/licenses/by-nc/4.0/</licence></document></documents><OutputDurs/></rfc1807> |
spelling |
v2 63896 2023-07-17 Living with vaccine-induced immune thrombocytopenia and thrombosis: a qualitative study 20803717bf274c582f30f80916c596d3 Paul Bennett Paul Bennett true false fa3b66a6d140d7ead7907869ee9448e7 Filiz Celik Filiz Celik true false 2023-07-17 FGMHL Objectives: To explore the experiences of people up to 18 months after being diagnosed with vaccine-induced immune thrombocytopenia and thrombosis (VITT). Design: A semistructured qualitative study, conducted via Zoom, of a cohort of people with VITT. Setting: Participants discussed their experiences of hospitalisation and following discharge. Participants: 14 individuals diagnosed with VITT, recruited via a Facebook support group and advertising on Twitter. Results: Thematic analysis identified challenges of obtaining medical care and diagnosis; fear of the severity of symptoms and unclear prognosis; and lack of family support due to isolation imposed by the COVID-19 pandemic. Once home, participants experienced continued significant symptoms; fear of recurrence; inadequate medical knowledge of their condition; and difficulties coping with residual physical disabilities and psychosocial losses. Also reported were feelings of isolation and abandonment due to lack of government support. Conclusions: This is a significantly challenged group of people, with multiple health, financial, social and psychological losses. These losses have been compounded by experiences of limited governmental and societal recognition of the problems they face. Journal Article BMJ Open 13 7 e072658 BMJ 2044-6055 2044-6055 Vaccine-induced immune thrombocytopenia and thrombosis, VITT, qualitative study, public health, psychology 9 7 2023 2023-07-09 10.1136/bmjopen-2023-072658 http://dx.doi.org/10.1136/bmjopen-2023-072658 COLLEGE NANME Medicine, Health and Life Science - Faculty COLLEGE CODE FGMHL Swansea University SU Library paid the OA fee (TA Institutional Deal) Swansea University 2023-08-23T12:06:00.1809664 2023-07-17T12:06:52.5680860 Faculty of Medicine, Health and Life Sciences School of Psychology Paul Bennett 1 Filiz Celik 2 Jenna Winstanley 3 Beverley J Hunt 4 Sue Pavord 5 63896__28130__bccc61fed0c24ae98dbb0ecf4265c574.pdf 63896.VOR.pdf 2023-07-17T12:12:46.3441876 Output 261386 application/pdf Version of Record true © Author(s) 2023. Distributed under the terms of a Creative Commons Attribution Non Commercial 4.0 Licence (CC BY-NC 4.0). true eng https://creativecommons.org/licenses/by-nc/4.0/ |
title |
Living with vaccine-induced immune thrombocytopenia and thrombosis: a qualitative study |
spellingShingle |
Living with vaccine-induced immune thrombocytopenia and thrombosis: a qualitative study Paul Bennett Filiz Celik |
title_short |
Living with vaccine-induced immune thrombocytopenia and thrombosis: a qualitative study |
title_full |
Living with vaccine-induced immune thrombocytopenia and thrombosis: a qualitative study |
title_fullStr |
Living with vaccine-induced immune thrombocytopenia and thrombosis: a qualitative study |
title_full_unstemmed |
Living with vaccine-induced immune thrombocytopenia and thrombosis: a qualitative study |
title_sort |
Living with vaccine-induced immune thrombocytopenia and thrombosis: a qualitative study |
author_id_str_mv |
20803717bf274c582f30f80916c596d3 fa3b66a6d140d7ead7907869ee9448e7 |
author_id_fullname_str_mv |
20803717bf274c582f30f80916c596d3_***_Paul Bennett fa3b66a6d140d7ead7907869ee9448e7_***_Filiz Celik |
author |
Paul Bennett Filiz Celik |
author2 |
Paul Bennett Filiz Celik Jenna Winstanley Beverley J Hunt Sue Pavord |
format |
Journal article |
container_title |
BMJ Open |
container_volume |
13 |
container_issue |
7 |
container_start_page |
e072658 |
publishDate |
2023 |
institution |
Swansea University |
issn |
2044-6055 2044-6055 |
doi_str_mv |
10.1136/bmjopen-2023-072658 |
publisher |
BMJ |
college_str |
Faculty of Medicine, Health and Life Sciences |
hierarchytype |
|
hierarchy_top_id |
facultyofmedicinehealthandlifesciences |
hierarchy_top_title |
Faculty of Medicine, Health and Life Sciences |
hierarchy_parent_id |
facultyofmedicinehealthandlifesciences |
hierarchy_parent_title |
Faculty of Medicine, Health and Life Sciences |
department_str |
School of Psychology{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}School of Psychology |
url |
http://dx.doi.org/10.1136/bmjopen-2023-072658 |
document_store_str |
1 |
active_str |
0 |
description |
Objectives: To explore the experiences of people up to 18 months after being diagnosed with vaccine-induced immune thrombocytopenia and thrombosis (VITT). Design: A semistructured qualitative study, conducted via Zoom, of a cohort of people with VITT. Setting: Participants discussed their experiences of hospitalisation and following discharge. Participants: 14 individuals diagnosed with VITT, recruited via a Facebook support group and advertising on Twitter. Results: Thematic analysis identified challenges of obtaining medical care and diagnosis; fear of the severity of symptoms and unclear prognosis; and lack of family support due to isolation imposed by the COVID-19 pandemic. Once home, participants experienced continued significant symptoms; fear of recurrence; inadequate medical knowledge of their condition; and difficulties coping with residual physical disabilities and psychosocial losses. Also reported were feelings of isolation and abandonment due to lack of government support. Conclusions: This is a significantly challenged group of people, with multiple health, financial, social and psychological losses. These losses have been compounded by experiences of limited governmental and societal recognition of the problems they face. |
published_date |
2023-07-09T12:06:01Z |
_version_ |
1775017668296835072 |
score |
11.021648 |