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#BeSeen: Understanding young people’s views of the motivations and impacts of sharing self-harm imagery online and use of their social media data for research- a UK participatory arts-led qualitative study

Dana Dekel Orcid Logo, AMANDA MARCHANT, Karen Ingham, Ann John Orcid Logo, Todd Smith , Harley Morgan, Sarah Tombs , Ashra Khanom Orcid Logo

BMJ Open

Swansea University Authors: Dana Dekel Orcid Logo, AMANDA MARCHANT, Karen Ingham, Ann John Orcid Logo, Ashra Khanom Orcid Logo

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DOI (Published version): 10.1136/bmjopen-2023-076981

Abstract

Objectives: This study explored the views of young people from diverse backgrounds, with or without a history of self-harm, on the motivation and impacts of sharing self-harm imagery online and use of their social media data for mental health research. Design: Thematic analysis of 27 semi-structured...

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Design: Thematic analysis of 27 semi-structured one-to-one interviews.Setting: Two workshops were conducted in 2021 Participants: We recruited 27 study participants aged 16-24 (60% male). Sixteen (59%) participants were refugee and asylum seekers (RAS). Results: Two main themes were generated: 1. Online imagery of self-harm captured perceived motivations for sharing such images, the potential impacts on others, and possible need of censorship. This theme was characterised by mixed attitudes toward motivations for sharing, with some perceiving this as attention seeking while others thought of it as help seeking or sharing of pain. Overall participants agreed that images of self-harm can be triggering and should include trigger warnings. 2. Data sharing for mental health and self-harm research captured views on use of social media posts and images for research purposes, and levels of trust in public and private organisations. It outlined positive views on their data being shared for research for public benefit, but highlighted issues of consent. The two most trusted organizations to hold and conduct research were the National Health Service and Universities. Participants from the RAS group were more inclined to agree to their data being used and had higher levels of trust in government. Conclusion: Young people care about their privacy and use of their data even when it is publicly available. Co-production with young people of resources to support understanding and develop innovative solutions to gaining informed consent for data sharing and research for public benefit is required. Young people from excluded communities, post-immigration RAS and males should be purposively involved in future social media research.</abstract><type>Journal Article</type><journal>BMJ Open</journal><volume/><journalNumber/><paginationStart/><paginationEnd/><publisher/><placeOfPublication/><isbnPrint/><isbnElectronic/><issnPrint/><issnElectronic/><keywords/><publishedDay>0</publishedDay><publishedMonth>0</publishedMonth><publishedYear>0</publishedYear><publishedDate>0001-01-01</publishedDate><doi>10.1136/bmjopen-2023-076981</doi><url/><notes/><college>COLLEGE NANME</college><department>Psychology School</department><CollegeCode>COLLEGE CODE</CollegeCode><DepartmentCode>PSYS</DepartmentCode><institution>Swansea University</institution><apcterm>SU Library paid the OA fee (TA Institutional Deal)</apcterm><funders>This work was funded by the MRC (MR/T046597/1; MR/W014386/1) and the Wolfson Centre for Young Peoples Mental Health (Grant Reference 517483). The funding bodies played no role in the design, analysis, and interpretation of the data nor in the writing of the manuscript.</funders><projectreference/><lastEdited>2024-07-11T16:12:30.6211966</lastEdited><Created>2024-06-27T10:30:52.8412337</Created><path><level id="1">Faculty of Medicine, Health and Life Sciences</level><level id="2">Swansea University Medical School - Health Data Science</level></path><authors><author><firstname>Dana</firstname><surname>Dekel</surname><orcid>0000-0003-0137-5149</orcid><order>1</order></author><author><firstname>AMANDA</firstname><surname>MARCHANT</surname><order>2</order></author><author><firstname>Karen</firstname><surname>Ingham</surname><order>3</order></author><author><firstname>Ann</firstname><surname>John</surname><orcid>0000-0002-5657-6995</orcid><order>4</order></author><author><firstname>Todd Smith</firstname><surname/><order>5</order></author><author><firstname>Harley</firstname><surname>Morgan</surname><order>6</order></author><author><firstname>Sarah Tombs</firstname><surname/><order>7</order></author><author><firstname>Ashra</firstname><surname>Khanom</surname><orcid>0000-0002-5735-6601</orcid><order>8</order></author></authors><documents/><OutputDurs/></rfc1807>
spelling v2 66901 2024-06-27 #BeSeen: Understanding young people’s views of the motivations and impacts of sharing self-harm imagery online and use of their social media data for research- a UK participatory arts-led qualitative study 7904c581b4da2217c348434c9f04f165 0000-0003-0137-5149 Dana Dekel Dana Dekel true false 73185085caa93af2991ed0e6dc9613a4 AMANDA MARCHANT AMANDA MARCHANT true false 640f6cabd226bf9552395a38023ff2c4 Karen Ingham Karen Ingham true false ed8a9c37bd7b7235b762d941ef18ee55 0000-0002-5657-6995 Ann John Ann John true false 1f0f14742e3a36e8fd6d29f59374a009 0000-0002-5735-6601 Ashra Khanom Ashra Khanom true false 2024-06-27 PSYS Objectives: This study explored the views of young people from diverse backgrounds, with or without a history of self-harm, on the motivation and impacts of sharing self-harm imagery online and use of their social media data for mental health research. Design: Thematic analysis of 27 semi-structured one-to-one interviews.Setting: Two workshops were conducted in 2021 Participants: We recruited 27 study participants aged 16-24 (60% male). Sixteen (59%) participants were refugee and asylum seekers (RAS). Results: Two main themes were generated: 1. Online imagery of self-harm captured perceived motivations for sharing such images, the potential impacts on others, and possible need of censorship. This theme was characterised by mixed attitudes toward motivations for sharing, with some perceiving this as attention seeking while others thought of it as help seeking or sharing of pain. Overall participants agreed that images of self-harm can be triggering and should include trigger warnings. 2. Data sharing for mental health and self-harm research captured views on use of social media posts and images for research purposes, and levels of trust in public and private organisations. It outlined positive views on their data being shared for research for public benefit, but highlighted issues of consent. The two most trusted organizations to hold and conduct research were the National Health Service and Universities. Participants from the RAS group were more inclined to agree to their data being used and had higher levels of trust in government. Conclusion: Young people care about their privacy and use of their data even when it is publicly available. Co-production with young people of resources to support understanding and develop innovative solutions to gaining informed consent for data sharing and research for public benefit is required. Young people from excluded communities, post-immigration RAS and males should be purposively involved in future social media research. Journal Article BMJ Open 0 0 0 0001-01-01 10.1136/bmjopen-2023-076981 COLLEGE NANME Psychology School COLLEGE CODE PSYS Swansea University SU Library paid the OA fee (TA Institutional Deal) This work was funded by the MRC (MR/T046597/1; MR/W014386/1) and the Wolfson Centre for Young Peoples Mental Health (Grant Reference 517483). The funding bodies played no role in the design, analysis, and interpretation of the data nor in the writing of the manuscript. 2024-07-11T16:12:30.6211966 2024-06-27T10:30:52.8412337 Faculty of Medicine, Health and Life Sciences Swansea University Medical School - Health Data Science Dana Dekel 0000-0003-0137-5149 1 AMANDA MARCHANT 2 Karen Ingham 3 Ann John 0000-0002-5657-6995 4 Todd Smith 5 Harley Morgan 6 Sarah Tombs 7 Ashra Khanom 0000-0002-5735-6601 8
title #BeSeen: Understanding young people’s views of the motivations and impacts of sharing self-harm imagery online and use of their social media data for research- a UK participatory arts-led qualitative study
spellingShingle #BeSeen: Understanding young people’s views of the motivations and impacts of sharing self-harm imagery online and use of their social media data for research- a UK participatory arts-led qualitative study
Dana Dekel
AMANDA MARCHANT
Karen Ingham
Ann John
Ashra Khanom
title_short #BeSeen: Understanding young people’s views of the motivations and impacts of sharing self-harm imagery online and use of their social media data for research- a UK participatory arts-led qualitative study
title_full #BeSeen: Understanding young people’s views of the motivations and impacts of sharing self-harm imagery online and use of their social media data for research- a UK participatory arts-led qualitative study
title_fullStr #BeSeen: Understanding young people’s views of the motivations and impacts of sharing self-harm imagery online and use of their social media data for research- a UK participatory arts-led qualitative study
title_full_unstemmed #BeSeen: Understanding young people’s views of the motivations and impacts of sharing self-harm imagery online and use of their social media data for research- a UK participatory arts-led qualitative study
title_sort #BeSeen: Understanding young people’s views of the motivations and impacts of sharing self-harm imagery online and use of their social media data for research- a UK participatory arts-led qualitative study
author_id_str_mv 7904c581b4da2217c348434c9f04f165
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author_id_fullname_str_mv 7904c581b4da2217c348434c9f04f165_***_Dana Dekel
73185085caa93af2991ed0e6dc9613a4_***_AMANDA MARCHANT
640f6cabd226bf9552395a38023ff2c4_***_Karen Ingham
ed8a9c37bd7b7235b762d941ef18ee55_***_Ann John
1f0f14742e3a36e8fd6d29f59374a009_***_Ashra Khanom
author Dana Dekel
AMANDA MARCHANT
Karen Ingham
Ann John
Ashra Khanom
author2 Dana Dekel
AMANDA MARCHANT
Karen Ingham
Ann John
Todd Smith
Harley Morgan
Sarah Tombs
Ashra Khanom
format Journal article
container_title BMJ Open
institution Swansea University
doi_str_mv 10.1136/bmjopen-2023-076981
college_str Faculty of Medicine, Health and Life Sciences
hierarchytype
hierarchy_top_id facultyofmedicinehealthandlifesciences
hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str Swansea University Medical School - Health Data Science{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}Swansea University Medical School - Health Data Science
document_store_str 0
active_str 0
description Objectives: This study explored the views of young people from diverse backgrounds, with or without a history of self-harm, on the motivation and impacts of sharing self-harm imagery online and use of their social media data for mental health research. Design: Thematic analysis of 27 semi-structured one-to-one interviews.Setting: Two workshops were conducted in 2021 Participants: We recruited 27 study participants aged 16-24 (60% male). Sixteen (59%) participants were refugee and asylum seekers (RAS). Results: Two main themes were generated: 1. Online imagery of self-harm captured perceived motivations for sharing such images, the potential impacts on others, and possible need of censorship. This theme was characterised by mixed attitudes toward motivations for sharing, with some perceiving this as attention seeking while others thought of it as help seeking or sharing of pain. Overall participants agreed that images of self-harm can be triggering and should include trigger warnings. 2. Data sharing for mental health and self-harm research captured views on use of social media posts and images for research purposes, and levels of trust in public and private organisations. It outlined positive views on their data being shared for research for public benefit, but highlighted issues of consent. The two most trusted organizations to hold and conduct research were the National Health Service and Universities. Participants from the RAS group were more inclined to agree to their data being used and had higher levels of trust in government. Conclusion: Young people care about their privacy and use of their data even when it is publicly available. Co-production with young people of resources to support understanding and develop innovative solutions to gaining informed consent for data sharing and research for public benefit is required. Young people from excluded communities, post-immigration RAS and males should be purposively involved in future social media research.
published_date 0001-01-01T16:12:29Z
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