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“I am afraid of being treated badly if I show it”: A cross-sectional study of healthcare accessibility and Autism Health Passports among UK Autistic adults

Aimee Grant Orcid Logo, Sarah Turner, Sebastian C. K. Shaw Orcid Logo, Kathryn Williams Orcid Logo, Hayley Morgan, Rebecca Ellis Orcid Logo, Amy Brown Orcid Logo

PLOS ONE, Volume: 19, Issue: 5, Start page: e0303873

Swansea University Authors: Aimee Grant Orcid Logo, Hayley Morgan, Rebecca Ellis Orcid Logo, Amy Brown Orcid Logo

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DOI (Published version): 10.1371/journal.pone.0303873

Abstract

Autistic people are more likely to experience stigma, communication barriers and anxiety during healthcare. Autism Health Passports (AHPs) are a communication tool that aim to provide information about healthcare needs in a standardised way. They are recommended in research and policy to improve hea...

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Published in: PLOS ONE
ISSN: 1932-6203
Published: Public Library of Science (PLoS) 2024
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URI: https://cronfa.swan.ac.uk/Record/cronfa66916
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spelling v2 66916 2024-07-01 “I am afraid of being treated badly if I show it”: A cross-sectional study of healthcare accessibility and Autism Health Passports among UK Autistic adults 6a1ce3bc54c692c804e858b70d2e4bd2 0000-0001-7205-5869 Aimee Grant Aimee Grant true false 0045e234c403535c6ec31a11f2284694 Hayley Morgan Hayley Morgan true false 8ea1fbb848d05d2f0262c6d03cfc9698 0000-0002-7761-468X Rebecca Ellis Rebecca Ellis true false 37aea6965461cb0510473d109411a0c3 0000-0002-0438-0157 Amy Brown Amy Brown true false 2024-07-01 HSOC Autistic people are more likely to experience stigma, communication barriers and anxiety during healthcare. Autism Health Passports (AHPs) are a communication tool that aim to provide information about healthcare needs in a standardised way. They are recommended in research and policy to improve healthcare quality. Journal Article PLOS ONE 19 5 e0303873 Public Library of Science (PLoS) 1932-6203 Autism, healthcare, diagnostic medicine, surveys, pregnancy, pain sensation, social communication, physicians 29 5 2024 2024-05-29 10.1371/journal.pone.0303873 http://dx.doi.org/10.1371/journal.pone.0303873 COLLEGE NANME Health and Social Care School COLLEGE CODE HSOC Swansea University SU Library paid the OA fee (TA Institutional Deal) AG, KW, AB and EH received funding for this research from the Swansea University Accelerate Health Tech Centre. Reference: 07/09/21. HM and RE's time was funded by this grant. 2024-07-01T11:43:10.6631395 2024-07-01T11:33:14.1769612 Faculty of Medicine, Health and Life Sciences School of Health and Social Care - Public Health Aimee Grant 0000-0001-7205-5869 1 Sarah Turner 2 Sebastian C. K. Shaw 0000-0001-9597-7436 3 Kathryn Williams 0000-0001-7274-3493 4 Hayley Morgan 5 Rebecca Ellis 0000-0002-7761-468X 6 Amy Brown 0000-0002-0438-0157 7 66916__30784__97f1ebf75ca44f859a7d5fa3b277d9fb.pdf 66916.VOR.pdf 2024-07-01T11:42:43.6210783 Output 541699 application/pdf Version of Record true Copyright: © 2024 Grant et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. true eng http://creativecommons.org/licenses/by/4.0/
title “I am afraid of being treated badly if I show it”: A cross-sectional study of healthcare accessibility and Autism Health Passports among UK Autistic adults
spellingShingle “I am afraid of being treated badly if I show it”: A cross-sectional study of healthcare accessibility and Autism Health Passports among UK Autistic adults
Aimee Grant
Hayley Morgan
Rebecca Ellis
Amy Brown
title_short “I am afraid of being treated badly if I show it”: A cross-sectional study of healthcare accessibility and Autism Health Passports among UK Autistic adults
title_full “I am afraid of being treated badly if I show it”: A cross-sectional study of healthcare accessibility and Autism Health Passports among UK Autistic adults
title_fullStr “I am afraid of being treated badly if I show it”: A cross-sectional study of healthcare accessibility and Autism Health Passports among UK Autistic adults
title_full_unstemmed “I am afraid of being treated badly if I show it”: A cross-sectional study of healthcare accessibility and Autism Health Passports among UK Autistic adults
title_sort “I am afraid of being treated badly if I show it”: A cross-sectional study of healthcare accessibility and Autism Health Passports among UK Autistic adults
author_id_str_mv 6a1ce3bc54c692c804e858b70d2e4bd2
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author_id_fullname_str_mv 6a1ce3bc54c692c804e858b70d2e4bd2_***_Aimee Grant
0045e234c403535c6ec31a11f2284694_***_Hayley Morgan
8ea1fbb848d05d2f0262c6d03cfc9698_***_Rebecca Ellis
37aea6965461cb0510473d109411a0c3_***_Amy Brown
author Aimee Grant
Hayley Morgan
Rebecca Ellis
Amy Brown
author2 Aimee Grant
Sarah Turner
Sebastian C. K. Shaw
Kathryn Williams
Hayley Morgan
Rebecca Ellis
Amy Brown
format Journal article
container_title PLOS ONE
container_volume 19
container_issue 5
container_start_page e0303873
publishDate 2024
institution Swansea University
issn 1932-6203
doi_str_mv 10.1371/journal.pone.0303873
publisher Public Library of Science (PLoS)
college_str Faculty of Medicine, Health and Life Sciences
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hierarchy_top_id facultyofmedicinehealthandlifesciences
hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str School of Health and Social Care - Public Health{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}School of Health and Social Care - Public Health
url http://dx.doi.org/10.1371/journal.pone.0303873
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description Autistic people are more likely to experience stigma, communication barriers and anxiety during healthcare. Autism Health Passports (AHPs) are a communication tool that aim to provide information about healthcare needs in a standardised way. They are recommended in research and policy to improve healthcare quality.
published_date 2024-05-29T11:43:09Z
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