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Development of a person-centred, theory-based self-management intervention specific to young adults with chronic kidney disease / Paula Krawiec

Swansea University Author: Paula Krawiec

DOI (Published version): 10.23889/SUthesis.68105

Abstract

Chronic Kidney Disease (CKD) is a rapidly increasing health concern. Healthcare interventions, including self-management interventions (SMIs), can save thousands of lives between now and 2033 (Kidney Research, 2023). CKD management is complex, requiring life-long modifications, especially for young...

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Published: Swansea, Wales, UK 2024
Institution: Swansea University
Degree level: Doctoral
Degree name: Ph.D
Supervisor: Rance, Jaynie ; Bennett, Paul ; Gatzemeier, Jennifer
URI: https://cronfa.swan.ac.uk/Record/cronfa68105
first_indexed 2024-10-29T15:29:05Z
last_indexed 2024-11-25T14:21:26Z
id cronfa68105
recordtype RisThesis
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spelling 2024-10-29T15:50:16.6911692 v2 68105 2024-10-29 Development of a person-centred, theory-based self-management intervention specific to young adults with chronic kidney disease 544ef5b302d12fe0661acfb531a4af3f Paula Krawiec Paula Krawiec true false 2024-10-29 PSYS Chronic Kidney Disease (CKD) is a rapidly increasing health concern. Healthcare interventions, including self-management interventions (SMIs), can save thousands of lives between now and 2033 (Kidney Research, 2023). CKD management is complex, requiring life-long modifications, especially for young adults (YAs) who simultaneously undergo a major life transition. However, support for this vulnerable group is lacking and more research is needed to understand how CKD affects their lives in all aspects. This multi-phase study aimed to review the literature to establish key elements of the existing CKD SMIs (Phase 1) and identify gaps through the collection of quantitative and qualitative data (Phase 2), to inform the development of an appropriate SMI for YAs (aged 18-35 years old) with CKD (all stages), guided by French et al.’ (2012) four-step approach (Phase 3). The literature review identified a lack of personalised, theory-based interventions and emphasised the potential of SMIs in improving self-efficacy compared to usual care. The quantitative (questionnaire study) and qualitative (semi-structured interviews) syntheses revealed a strong agreement on the unmet needs, social factors, psychological disorders, and inconsistent care experienced by YAs, based on their experience and those who look after them. The differences between the two analyses highlighted the complexity of self-managing CKD, emphasising the importance of understanding the various factors that influence it. Finally, the intervention development phase resulted in highly personalised to the unique needs of the target population, theory-based behavioural SMI enhancing YAs’ participation in social activities by improving their communication and self-advocacy skills, enabling them to articulate needs, preferences, and concerns, navigate social perceptions and influences, and seek emotional support when required. This novel intervention holds promise, offering a conceptual basis for understanding how it may operate, however, its future implication and evaluation are necessary to assess its feasibility in real-world settings and capture changes over time. E-Thesis Swansea, Wales, UK Chronic Kidney Disease; young adults; theory-based self-management interventions; person-centred care; self-efficacy 17 10 2024 2024-10-17 10.23889/SUthesis.68105 COLLEGE NANME Psychology School COLLEGE CODE PSYS Swansea University Rance, Jaynie ; Bennett, Paul ; Gatzemeier, Jennifer Doctoral Ph.D Swansea University; Kidney Wales Foundation Swansea University; Kidney Wales Foundation 2024-10-29T15:50:16.6911692 2024-10-29T15:24:47.4041982 Faculty of Medicine, Health and Life Sciences School of Psychology Paula Krawiec 1 68105__32787__fab19daa89e0440586b2ef55a41ffbc8.pdf Krawiec_Paula_PhD_Thesis_Final_Cronfa.pdf 2024-10-29T15:44:51.7354175 Output 10016915 application/pdf E-Thesis – open access true Copyright: The author, Paula Krawiec, 2024. true eng
title Development of a person-centred, theory-based self-management intervention specific to young adults with chronic kidney disease
spellingShingle Development of a person-centred, theory-based self-management intervention specific to young adults with chronic kidney disease
Paula Krawiec
title_short Development of a person-centred, theory-based self-management intervention specific to young adults with chronic kidney disease
title_full Development of a person-centred, theory-based self-management intervention specific to young adults with chronic kidney disease
title_fullStr Development of a person-centred, theory-based self-management intervention specific to young adults with chronic kidney disease
title_full_unstemmed Development of a person-centred, theory-based self-management intervention specific to young adults with chronic kidney disease
title_sort Development of a person-centred, theory-based self-management intervention specific to young adults with chronic kidney disease
author_id_str_mv 544ef5b302d12fe0661acfb531a4af3f
author_id_fullname_str_mv 544ef5b302d12fe0661acfb531a4af3f_***_Paula Krawiec
author Paula Krawiec
author2 Paula Krawiec
format E-Thesis
publishDate 2024
institution Swansea University
doi_str_mv 10.23889/SUthesis.68105
college_str Faculty of Medicine, Health and Life Sciences
hierarchytype
hierarchy_top_id facultyofmedicinehealthandlifesciences
hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str School of Psychology{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}School of Psychology
document_store_str 1
active_str 0
description Chronic Kidney Disease (CKD) is a rapidly increasing health concern. Healthcare interventions, including self-management interventions (SMIs), can save thousands of lives between now and 2033 (Kidney Research, 2023). CKD management is complex, requiring life-long modifications, especially for young adults (YAs) who simultaneously undergo a major life transition. However, support for this vulnerable group is lacking and more research is needed to understand how CKD affects their lives in all aspects. This multi-phase study aimed to review the literature to establish key elements of the existing CKD SMIs (Phase 1) and identify gaps through the collection of quantitative and qualitative data (Phase 2), to inform the development of an appropriate SMI for YAs (aged 18-35 years old) with CKD (all stages), guided by French et al.’ (2012) four-step approach (Phase 3). The literature review identified a lack of personalised, theory-based interventions and emphasised the potential of SMIs in improving self-efficacy compared to usual care. The quantitative (questionnaire study) and qualitative (semi-structured interviews) syntheses revealed a strong agreement on the unmet needs, social factors, psychological disorders, and inconsistent care experienced by YAs, based on their experience and those who look after them. The differences between the two analyses highlighted the complexity of self-managing CKD, emphasising the importance of understanding the various factors that influence it. Finally, the intervention development phase resulted in highly personalised to the unique needs of the target population, theory-based behavioural SMI enhancing YAs’ participation in social activities by improving their communication and self-advocacy skills, enabling them to articulate needs, preferences, and concerns, navigate social perceptions and influences, and seek emotional support when required. This novel intervention holds promise, offering a conceptual basis for understanding how it may operate, however, its future implication and evaluation are necessary to assess its feasibility in real-world settings and capture changes over time.
published_date 2024-10-17T05:20:26Z
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score 11.089967

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