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Severe mental illness and last year of life: Identifying service use from a National Health Service digital dashboard in Wales, UK

Michael Coffey Orcid Logo, Fiona Lugg-Widger Orcid Logo, Ben Hannigan Orcid Logo, Viktoriya Velikova Orcid Logo, Anthony Byrne Orcid Logo

Journal of Mental Health, Volume: 34, Issue: 5, Pages: 549 - 555

Swansea University Author: Michael Coffey Orcid Logo

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DOI (Published version): 10.1080/09638237.2025.2512306

Abstract

Background: Systematic reviews have identified variation and inequity in care provision for people with pre-existing severe mental illnesses who have palliative or end-of-life care needs. Aim: To analyse service use and variation for people with severe mental illness in the last year of life in Wale...

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Published in: Journal of Mental Health
ISSN: 0963-8237 1360-0567
Published: Informa UK Limited 2025
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URI: https://cronfa.swan.ac.uk/Record/cronfa69373
first_indexed 2025-04-30T16:01:49Z
last_indexed 2025-10-08T19:47:33Z
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spelling 2025-10-07T12:08:33.3969547 v2 69373 2025-04-30 Severe mental illness and last year of life: Identifying service use from a National Health Service digital dashboard in Wales, UK 12112bd2ce15561464c98607f3a8eb0b 0000-0002-0380-4704 Michael Coffey Michael Coffey true false 2025-04-30 HSOC Background: Systematic reviews have identified variation and inequity in care provision for people with pre-existing severe mental illnesses who have palliative or end-of-life care needs. Aim: To analyse service use and variation for people with severe mental illness in the last year of life in Wales. Methods: This is an observational retrospective cohort study between 2018 – 2023 using anonymised linked routinely collected health datasets within a data dashboard. Results: We identified n=4722 (2.3%) deaths with ICD-10 codes for severe mental illness for the period 2018-2023. As a group people with severe mental illness die younger, are in receipt of specialist palliative care at lower rates, die more often in institutional settings rather than their own homes and comorbidity indicates more unscheduled care use in the last year of life. Conclusions: Unscheduled care use in the last year of life is associated with comorbidity indicating opportunities for upstream intervention to improve treatment, experience and quality of life for people with severe mental illness. Further investigation such as mixed methods approaches to examine experiences of those with severe mental illness in the last year of life, and the human and systems factors influencing the nature and effectiveness of unscheduled delivery, are needed. Journal Article Journal of Mental Health 34 5 549 555 Informa UK Limited 0963-8237 1360-0567 Mental illness, end-of-life care, dashboard systems 2 6 2025 2025-06-02 10.1080/09638237.2025.2512306 https://www.tandfonline.com/doi/full/10.1080/09638237.2025.2512306 COLLEGE NANME Health and Social Care School COLLEGE CODE HSOC Swansea University SU Library paid the OA fee (TA Institutional Deal) This study/research is supported by Digital Health and Care Wales (DHCW) through the provision of data. 2025-10-07T12:08:33.3969547 2025-04-30T15:05:14.8207400 Faculty of Medicine, Health and Life Sciences School of Health and Social Care - Public Health Michael Coffey 0000-0002-0380-4704 1 Fiona Lugg-Widger 0000-0003-0029-9703 2 Ben Hannigan 0000-0002-2512-6721 3 Viktoriya Velikova 0009-0006-2608-5614 4 Anthony Byrne 0000-0002-1413-1496 5 69373__34560__a899ae4477d34957a802fcd02484e994.pdf 69373.VOR.pdf 2025-06-24T14:17:04.1510403 Output 1664814 application/pdf Version of Record true © 2025 The Author(s). This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives License (CC BY-NC-ND). true eng http://creativecommons.org/licenses/by-nc-nd/4.0/
title Severe mental illness and last year of life: Identifying service use from a National Health Service digital dashboard in Wales, UK
spellingShingle Severe mental illness and last year of life: Identifying service use from a National Health Service digital dashboard in Wales, UK
Michael Coffey
title_short Severe mental illness and last year of life: Identifying service use from a National Health Service digital dashboard in Wales, UK
title_full Severe mental illness and last year of life: Identifying service use from a National Health Service digital dashboard in Wales, UK
title_fullStr Severe mental illness and last year of life: Identifying service use from a National Health Service digital dashboard in Wales, UK
title_full_unstemmed Severe mental illness and last year of life: Identifying service use from a National Health Service digital dashboard in Wales, UK
title_sort Severe mental illness and last year of life: Identifying service use from a National Health Service digital dashboard in Wales, UK
author_id_str_mv 12112bd2ce15561464c98607f3a8eb0b
author_id_fullname_str_mv 12112bd2ce15561464c98607f3a8eb0b_***_Michael Coffey
author Michael Coffey
author2 Michael Coffey
Fiona Lugg-Widger
Ben Hannigan
Viktoriya Velikova
Anthony Byrne
format Journal article
container_title Journal of Mental Health
container_volume 34
container_issue 5
container_start_page 549
publishDate 2025
institution Swansea University
issn 0963-8237
1360-0567
doi_str_mv 10.1080/09638237.2025.2512306
publisher Informa UK Limited
college_str Faculty of Medicine, Health and Life Sciences
hierarchytype
hierarchy_top_id facultyofmedicinehealthandlifesciences
hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str School of Health and Social Care - Public Health{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}School of Health and Social Care - Public Health
url https://www.tandfonline.com/doi/full/10.1080/09638237.2025.2512306
document_store_str 1
active_str 0
description Background: Systematic reviews have identified variation and inequity in care provision for people with pre-existing severe mental illnesses who have palliative or end-of-life care needs. Aim: To analyse service use and variation for people with severe mental illness in the last year of life in Wales. Methods: This is an observational retrospective cohort study between 2018 – 2023 using anonymised linked routinely collected health datasets within a data dashboard. Results: We identified n=4722 (2.3%) deaths with ICD-10 codes for severe mental illness for the period 2018-2023. As a group people with severe mental illness die younger, are in receipt of specialist palliative care at lower rates, die more often in institutional settings rather than their own homes and comorbidity indicates more unscheduled care use in the last year of life. Conclusions: Unscheduled care use in the last year of life is associated with comorbidity indicating opportunities for upstream intervention to improve treatment, experience and quality of life for people with severe mental illness. Further investigation such as mixed methods approaches to examine experiences of those with severe mental illness in the last year of life, and the human and systems factors influencing the nature and effectiveness of unscheduled delivery, are needed.
published_date 2025-06-02T05:26:47Z
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