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Making Room for Every Voice: Reimagining Person‐Centred Care in the Neurosciences

Miguel Toribio‐Mateas Orcid Logo, Gareth Noble Orcid Logo

Health Expectations, Volume: 28, Issue: 4, Start page: e70350

Swansea University Author: Gareth Noble Orcid Logo

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DOI (Published version): 10.1111/hex.70350

Abstract

Background: This Special Issue of Health Expectations brings together 38 articles that exemplify the growing commitment to person‐centred care in the neurosciences. Moving beyond a historically brain‐centric model, these contributions reflect a more human discipline that values lived experience alon...

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Published in: Health Expectations
ISSN: 1369-6513 1369-7625
Published: Wiley 2025
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URI: https://cronfa.swan.ac.uk/Record/cronfa70051
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last_indexed 2025-07-30T10:13:54Z
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Methods/Results: Spanning a wide range of neurological conditions, life stages and care settings, the papers explore interconnected themes including co&#x2010;creation, identity, equity, communication, service redesign, emotional well&#x2010;being, innovation and community engagement. The authors in this collection demonstrate that care becomes not only more effective but also more ethical when people are recognised as active partners rather than passive recipients. From co&#x2010;designed tools and culturally responsive resources to narrative inquiry and community&#x2010;led research, these works reveal the transformative power of relational approaches that reorient systems, promote autonomy and respond to what truly matters to those living with neurological conditions. Conclusions: Together, these articles challenge longstanding hierarchies and power dynamics, advocating for care that is grounded in trust, reciprocity and compassion. 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spelling 2025-07-29T14:39:52.1186269 v2 70051 2025-07-29 Making Room for Every Voice: Reimagining Person‐Centred Care in the Neurosciences 476946fc3ee4292ef85476dedad3e84b 0000-0002-4588-049X Gareth Noble Gareth Noble true false 2025-07-29 MEDS Background: This Special Issue of Health Expectations brings together 38 articles that exemplify the growing commitment to person‐centred care in the neurosciences. Moving beyond a historically brain‐centric model, these contributions reflect a more human discipline that values lived experience alongside clinical expertise. Methods/Results: Spanning a wide range of neurological conditions, life stages and care settings, the papers explore interconnected themes including co‐creation, identity, equity, communication, service redesign, emotional well‐being, innovation and community engagement. The authors in this collection demonstrate that care becomes not only more effective but also more ethical when people are recognised as active partners rather than passive recipients. From co‐designed tools and culturally responsive resources to narrative inquiry and community‐led research, these works reveal the transformative power of relational approaches that reorient systems, promote autonomy and respond to what truly matters to those living with neurological conditions. Conclusions: Together, these articles challenge longstanding hierarchies and power dynamics, advocating for care that is grounded in trust, reciprocity and compassion. They are more than a snapshot of current practice; they are a call to action, a provocation to imagine what neurological care could become. At its heart, this Special Issue invites researchers, clinicians and communities to co‐create a neuroscience that is more advanced and more attuned to the lives it seeks to serve. Patient or Public Contribution: This Special Issue was developed with a focus on highlighting the voices, experiences and expertise of people living with neurological conditions, their families and communities. Many of the 38 articles featured were co‐produced or co‐authored with individuals with lived experience, and we, as Guest Editors, have intentionally curated the issue to centre these perspectives. While patients or members of the public were not directly involved in the writing of this Editorial, their contributions are reflected throughout the Special Issue in the form of participatory research, co‐created resources and narrative accounts. The Editorial itself is informed by these works and seeks to honour their insights by amplifying their relevance and impact within the broader neuroscientific community. GuestArticle Health Expectations 28 4 e70350 Wiley 1369-6513 1369-7625 co-creation, community engagement, equity in healthcare, lived experience, neurosciences, person-centred care 29 7 2025 2025-07-29 10.1111/hex.70350 Editorial COLLEGE NANME Medical School COLLEGE CODE MEDS Swansea University Other The authors received no specific funding for this study. 2025-07-29T14:39:52.1186269 2025-07-29T14:12:47.3547743 Faculty of Medicine, Health and Life Sciences Swansea University Medical School - Biomedical Science Miguel Toribio‐Mateas 0000-0002-6549-8087 1 Gareth Noble 0000-0002-4588-049X 2 70051__34862__148372df999647eca93a27fbfee4a5a4.pdf hex.70350.pdf 2025-07-29T14:12:47.3471160 Output 251987 application/pdf Version of Record true © 2025 The Author(s). This is an open access article under the terms of the Creative Commons Attribution License (CC BY). true eng http://creativecommons.org/licenses/by/4.0/
title Making Room for Every Voice: Reimagining Person‐Centred Care in the Neurosciences
spellingShingle Making Room for Every Voice: Reimagining Person‐Centred Care in the Neurosciences
Gareth Noble
title_short Making Room for Every Voice: Reimagining Person‐Centred Care in the Neurosciences
title_full Making Room for Every Voice: Reimagining Person‐Centred Care in the Neurosciences
title_fullStr Making Room for Every Voice: Reimagining Person‐Centred Care in the Neurosciences
title_full_unstemmed Making Room for Every Voice: Reimagining Person‐Centred Care in the Neurosciences
title_sort Making Room for Every Voice: Reimagining Person‐Centred Care in the Neurosciences
author_id_str_mv 476946fc3ee4292ef85476dedad3e84b
author_id_fullname_str_mv 476946fc3ee4292ef85476dedad3e84b_***_Gareth Noble
author Gareth Noble
author2 Miguel Toribio‐Mateas
Gareth Noble
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container_volume 28
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publishDate 2025
institution Swansea University
issn 1369-6513
1369-7625
doi_str_mv 10.1111/hex.70350
publisher Wiley
college_str Faculty of Medicine, Health and Life Sciences
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hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str Swansea University Medical School - Biomedical Science{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}Swansea University Medical School - Biomedical Science
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description Background: This Special Issue of Health Expectations brings together 38 articles that exemplify the growing commitment to person‐centred care in the neurosciences. Moving beyond a historically brain‐centric model, these contributions reflect a more human discipline that values lived experience alongside clinical expertise. Methods/Results: Spanning a wide range of neurological conditions, life stages and care settings, the papers explore interconnected themes including co‐creation, identity, equity, communication, service redesign, emotional well‐being, innovation and community engagement. The authors in this collection demonstrate that care becomes not only more effective but also more ethical when people are recognised as active partners rather than passive recipients. From co‐designed tools and culturally responsive resources to narrative inquiry and community‐led research, these works reveal the transformative power of relational approaches that reorient systems, promote autonomy and respond to what truly matters to those living with neurological conditions. Conclusions: Together, these articles challenge longstanding hierarchies and power dynamics, advocating for care that is grounded in trust, reciprocity and compassion. They are more than a snapshot of current practice; they are a call to action, a provocation to imagine what neurological care could become. At its heart, this Special Issue invites researchers, clinicians and communities to co‐create a neuroscience that is more advanced and more attuned to the lives it seeks to serve. Patient or Public Contribution: This Special Issue was developed with a focus on highlighting the voices, experiences and expertise of people living with neurological conditions, their families and communities. Many of the 38 articles featured were co‐produced or co‐authored with individuals with lived experience, and we, as Guest Editors, have intentionally curated the issue to centre these perspectives. While patients or members of the public were not directly involved in the writing of this Editorial, their contributions are reflected throughout the Special Issue in the form of participatory research, co‐created resources and narrative accounts. The Editorial itself is informed by these works and seeks to honour their insights by amplifying their relevance and impact within the broader neuroscientific community.
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