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Study to explore patient views of PROm data access, use, and VISualisatION (PROVISION): the PROVISION study

Laura Knight Orcid Logo, Kathleen Withers, Michael Beddard Orcid Logo, Christina Lloydwin Orcid Logo, Judith White Orcid Logo, Sarah Puntoni Orcid Logo, Sally Lewis Orcid Logo

IJQHC Communications, Volume: 6, Issue: 1

Swansea University Author: Sally Lewis Orcid Logo

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DOI (Published version): 10.1093/ijcoms/lyag012

Abstract

Background: Patient-reported outcome measures (PROMs) are standardised questionnaires completed by patients to measure health-related quality of life. It is unclear how these data are accessed by patients or clinicians and how it should be presented to optimize its use.Objective: The aim of this stu...

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Published in: IJQHC Communications
ISSN: 2634-5293
Published: Oxford University Press (OUP) 2026
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URI: https://cronfa.swan.ac.uk/Record/cronfa71962
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It is unclear how these data are accessed by patients or clinicians and how it should be presented to optimize its use.Objective: The aim of this study is to explore patient perspectives on PROM data access and visualisation.Design: A qualitative focus group study design was used. A topic guide was utilised throughout the focus groups with participants sent exemplar graphs to review beforehand to facilitate discussion around PROM visualisation.Setting: Participants were recruited from a tertiary care hospital and via social media between January 2023 and May 2024. All focus groups took place via Microsoft Teams and lasted &#x223C;1&#x2009;h.Participants: Thirteen participants from three clinical specialties (epilepsy, heart failure, and hip arthroplasty) and an additional group with any long-term condition requiring consultant led care were recruited and took part across four focus groups.Main Outcome Measure(s): Patient perspectives relating to PROM data access and method of data visualisation.Results: Access to PROM data was seen as beneficial. Accessibility in terms of technology use and readability of results was seen as a priority by participants. Therefore, the simpler visualisations used (e.g. bar charts) were seen as the preferred option compared to more complicated spider diagrams. Most felt that it would be preferable for their data to be discussed with a member of their care team, which would be important for those who could not access their data for technology and language reasons.Conclusions: Access and discussion of PROM data was seen as beneficial and could potentially aid in making positive changes to health behaviour. 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spelling 2026-06-04T11:47:29.9469420 v2 71962 2026-05-21 Study to explore patient views of PROm data access, use, and VISualisatION (PROVISION): the PROVISION study f800f55db95f30d9a4ebb0ed6e24fe8a 0000-0002-2369-2308 Sally Lewis Sally Lewis true false 2026-05-21 CBAE Background: Patient-reported outcome measures (PROMs) are standardised questionnaires completed by patients to measure health-related quality of life. It is unclear how these data are accessed by patients or clinicians and how it should be presented to optimize its use.Objective: The aim of this study is to explore patient perspectives on PROM data access and visualisation.Design: A qualitative focus group study design was used. A topic guide was utilised throughout the focus groups with participants sent exemplar graphs to review beforehand to facilitate discussion around PROM visualisation.Setting: Participants were recruited from a tertiary care hospital and via social media between January 2023 and May 2024. All focus groups took place via Microsoft Teams and lasted ∼1 h.Participants: Thirteen participants from three clinical specialties (epilepsy, heart failure, and hip arthroplasty) and an additional group with any long-term condition requiring consultant led care were recruited and took part across four focus groups.Main Outcome Measure(s): Patient perspectives relating to PROM data access and method of data visualisation.Results: Access to PROM data was seen as beneficial. Accessibility in terms of technology use and readability of results was seen as a priority by participants. Therefore, the simpler visualisations used (e.g. bar charts) were seen as the preferred option compared to more complicated spider diagrams. Most felt that it would be preferable for their data to be discussed with a member of their care team, which would be important for those who could not access their data for technology and language reasons.Conclusions: Access and discussion of PROM data was seen as beneficial and could potentially aid in making positive changes to health behaviour. However, it needs to be accessible to all in terms of physical access (i.e. via email or an app) but also readability of results. Journal Article IJQHC Communications 6 1 Oxford University Press (OUP) 2634-5293 PROM data visualisation, data accessibility, patient perspectives 30 4 2026 2026-04-30 10.1093/ijcoms/lyag012 COLLEGE NANME Management School COLLEGE CODE CBAE Swansea University Other This study was funded from an ongoing contract between CEDAR and Value Transformation (formerly the Welsh Value in Health Centre), part of NHS Wales Performance and Improvement. 2026-06-04T11:47:29.9469420 2026-05-21T09:24:10.9186978 Faculty of Humanities and Social Sciences School of Management - Business Management Laura Knight 0000-0001-9514-2025 1 Kathleen Withers 2 Michael Beddard 0000-0003-3152-124x 3 Christina Lloydwin 0000-0002-4601-3793 4 Judith White 0000-0002-4557-3393 5 Sarah Puntoni 0009-0002-1744-3273 6 Sally Lewis 0000-0002-2369-2308 7 71962__36859__4b858edb27ee4ad094ea291ff9e0e01c.pdf 71962.VoR.pdf 2026-06-04T11:44:53.0378794 Output 2575734 application/pdf Version of Record true © The Author(s) 2026. This is an Open Access article distributed under the terms of the Creative Commons Attribution License. true eng https://creativecommons.org/licenses/by/4.0/
title Study to explore patient views of PROm data access, use, and VISualisatION (PROVISION): the PROVISION study
spellingShingle Study to explore patient views of PROm data access, use, and VISualisatION (PROVISION): the PROVISION study
Sally Lewis
title_short Study to explore patient views of PROm data access, use, and VISualisatION (PROVISION): the PROVISION study
title_full Study to explore patient views of PROm data access, use, and VISualisatION (PROVISION): the PROVISION study
title_fullStr Study to explore patient views of PROm data access, use, and VISualisatION (PROVISION): the PROVISION study
title_full_unstemmed Study to explore patient views of PROm data access, use, and VISualisatION (PROVISION): the PROVISION study
title_sort Study to explore patient views of PROm data access, use, and VISualisatION (PROVISION): the PROVISION study
author_id_str_mv f800f55db95f30d9a4ebb0ed6e24fe8a
author_id_fullname_str_mv f800f55db95f30d9a4ebb0ed6e24fe8a_***_Sally Lewis
author Sally Lewis
author2 Laura Knight
Kathleen Withers
Michael Beddard
Christina Lloydwin
Judith White
Sarah Puntoni
Sally Lewis
format Journal article
container_title IJQHC Communications
container_volume 6
container_issue 1
publishDate 2026
institution Swansea University
issn 2634-5293
doi_str_mv 10.1093/ijcoms/lyag012
publisher Oxford University Press (OUP)
college_str Faculty of Humanities and Social Sciences
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hierarchy_top_id facultyofhumanitiesandsocialsciences
hierarchy_top_title Faculty of Humanities and Social Sciences
hierarchy_parent_id facultyofhumanitiesandsocialsciences
hierarchy_parent_title Faculty of Humanities and Social Sciences
department_str School of Management - Business Management{{{_:::_}}}Faculty of Humanities and Social Sciences{{{_:::_}}}School of Management - Business Management
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description Background: Patient-reported outcome measures (PROMs) are standardised questionnaires completed by patients to measure health-related quality of life. It is unclear how these data are accessed by patients or clinicians and how it should be presented to optimize its use.Objective: The aim of this study is to explore patient perspectives on PROM data access and visualisation.Design: A qualitative focus group study design was used. A topic guide was utilised throughout the focus groups with participants sent exemplar graphs to review beforehand to facilitate discussion around PROM visualisation.Setting: Participants were recruited from a tertiary care hospital and via social media between January 2023 and May 2024. All focus groups took place via Microsoft Teams and lasted ∼1 h.Participants: Thirteen participants from three clinical specialties (epilepsy, heart failure, and hip arthroplasty) and an additional group with any long-term condition requiring consultant led care were recruited and took part across four focus groups.Main Outcome Measure(s): Patient perspectives relating to PROM data access and method of data visualisation.Results: Access to PROM data was seen as beneficial. Accessibility in terms of technology use and readability of results was seen as a priority by participants. Therefore, the simpler visualisations used (e.g. bar charts) were seen as the preferred option compared to more complicated spider diagrams. Most felt that it would be preferable for their data to be discussed with a member of their care team, which would be important for those who could not access their data for technology and language reasons.Conclusions: Access and discussion of PROM data was seen as beneficial and could potentially aid in making positive changes to health behaviour. However, it needs to be accessible to all in terms of physical access (i.e. via email or an app) but also readability of results.
published_date 2026-04-30T09:54:05Z
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