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Parents' stories of sensitive and insensitive care by paediatricians in the time leading up to and including diagnostic disclosure of a life-limiting condition in their child. / Ruth Davies; Bryn Davies; Jo Sibert

Child: Care, Health and Development, Volume: 29, Issue: 1, Pages: 77 - 82

Swansea University Author: Davies, Ruth

Abstract

This study explored parents’ experiences of care by paediatricians and included diagnostic disclosure of a life-limiting condition in their child. Analysis of qualitative in-depth interviews with a purposive sample of 30 parents showed their stories centred upon their need to have their concerns and...

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Published in: Child: Care, Health and Development
Published: 2003
URI: https://cronfa.swan.ac.uk/Record/cronfa17854
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Abstract: This study explored parents’ experiences of care by paediatricians and included diagnostic disclosure of a life-limiting condition in their child. Analysis of qualitative in-depth interviews with a purposive sample of 30 parents showed their stories centred upon their need to have their concerns and needs as parents validated by paediatricians. Demonstrable differences were shown to exist between the sensitive and insensitive clinical practices of paediatricians. Parents’ stories identify the need for clinical practice to be based upon a humanistic approach to care and sensitive paediatricians achieved this ideal through meeting the ‘double obligation’ of combining technical skills with an understanding of their needs as parents
Keywords: Sensitive and Insensitive Care Paediatricians 'Double Obligation'
College: College of Human and Health Sciences
Issue: 1
Start Page: 77
End Page: 82