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Parents' stories of sensitive and insensitive care by paediatricians in the time leading up to and including diagnostic disclosure of a life-limiting condition in their child. / Ruth Davies; Bryn Davies; Jo Sibert

Child: Care, Health and Development, Volume: 29, Issue: 1, Pages: 77 - 82

Swansea University Author: Davies, Ruth

Abstract

This study explored parents’ experiences of care by paediatricians and included diagnostic disclosure of a life-limiting condition in their child. Analysis of qualitative in-depth interviews with a purposive sample of 30 parents showed their stories centred upon their need to have their concerns and...

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Published in: Child: Care, Health and Development
Published: 2003
URI: https://cronfa.swan.ac.uk/Record/cronfa17854
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last_indexed 2018-02-09T04:51:54Z
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spelling 2014-04-23T09:54:56Z v2 17854 2014-04-23 Parents' stories of sensitive and insensitive care by paediatricians in the time leading up to and including diagnostic disclosure of a life-limiting condition in their child. Ruth Davies Ruth Davies true false f8b96236900b6b922a6be63037854d2c d41d8cd98f00b204e9800998ecf8427e nZ5t+O3E3ZmVgqGuesqZ+g== 2014-04-23 CHHS This study explored parents’ experiences of care by paediatricians and included diagnostic disclosure of a life-limiting condition in their child. Analysis of qualitative in-depth interviews with a purposive sample of 30 parents showed their stories centred upon their need to have their concerns and needs as parents validated by paediatricians. Demonstrable differences were shown to exist between the sensitive and insensitive clinical practices of paediatricians. Parents’ stories identify the need for clinical practice to be based upon a humanistic approach to care and sensitive paediatricians achieved this ideal through meeting the ‘double obligation’ of combining technical skills with an understanding of their needs as parents Journal article Child: Care, Health and Development 29 1 77 82 Sensitive and Insensitive Care Paediatricians 'Double Obligation' 0 0 2003 2003-01-01 College of Human and Health Sciences College CHHS CHHS Swansea University Nursing and Practice Development None 2014-04-23T09:54:56Z 2014-04-23T09:53:15Z College of Human and Health Sciences Nursing Ruth Davies 1 Bryn Davies 2 Jo Sibert 3
title Parents' stories of sensitive and insensitive care by paediatricians in the time leading up to and including diagnostic disclosure of a life-limiting condition in their child.
spellingShingle Parents' stories of sensitive and insensitive care by paediatricians in the time leading up to and including diagnostic disclosure of a life-limiting condition in their child.
Davies, Ruth
title_short Parents' stories of sensitive and insensitive care by paediatricians in the time leading up to and including diagnostic disclosure of a life-limiting condition in their child.
title_full Parents' stories of sensitive and insensitive care by paediatricians in the time leading up to and including diagnostic disclosure of a life-limiting condition in their child.
title_fullStr Parents' stories of sensitive and insensitive care by paediatricians in the time leading up to and including diagnostic disclosure of a life-limiting condition in their child.
title_full_unstemmed Parents' stories of sensitive and insensitive care by paediatricians in the time leading up to and including diagnostic disclosure of a life-limiting condition in their child.
title_sort Parents' stories of sensitive and insensitive care by paediatricians in the time leading up to and including diagnostic disclosure of a life-limiting condition in their child.
author_id_str_mv f8b96236900b6b922a6be63037854d2c
author_id_fullname_str_mv f8b96236900b6b922a6be63037854d2c_***_Davies, Ruth
author Davies, Ruth
author2 Ruth Davies
Bryn Davies
Jo Sibert
format Journal article
container_title Child: Care, Health and Development
container_volume 29
container_issue 1
container_start_page 77
publishDate 2003
institution Swansea University
college_str College of Human and Health Sciences
hierarchytype
hierarchy_top_id collegeofhumanandhealthsciences
hierarchy_top_title College of Human and Health Sciences
hierarchy_parent_id collegeofhumanandhealthsciences
hierarchy_parent_title College of Human and Health Sciences
department_str Nursing{{{_:::_}}}College of Human and Health Sciences{{{_:::_}}}Nursing
document_store_str 0
active_str 1
researchgroup_str Nursing and Practice Development
description This study explored parents’ experiences of care by paediatricians and included diagnostic disclosure of a life-limiting condition in their child. Analysis of qualitative in-depth interviews with a purposive sample of 30 parents showed their stories centred upon their need to have their concerns and needs as parents validated by paediatricians. Demonstrable differences were shown to exist between the sensitive and insensitive clinical practices of paediatricians. Parents’ stories identify the need for clinical practice to be based upon a humanistic approach to care and sensitive paediatricians achieved this ideal through meeting the ‘double obligation’ of combining technical skills with an understanding of their needs as parents
published_date 2003-01-01T13:01:17Z
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