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SUDEP and mortality in epilepsy: The role of routinely collected healthcare data, registries, and health inequalities / William Owen Pickrell; Michael Patrick Kerr; Owen Pickrell

Epilepsy & Behavior, Start page: 106453

Swansea University Author: Owen, Pickrell

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Abstract

Routinely-collected data is a powerful research resource and offers the opportunity to further our understanding of epilepsy mortality and SUDEP. The advantages of using routinely-collected data include that it often covers whole populations, it is already collected, and can be easily linked to othe...

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Published in: Epilepsy & Behavior
ISSN: 15255050
Published: 2019
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URI: https://cronfa.swan.ac.uk/Record/cronfa51504
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Abstract: Routinely-collected data is a powerful research resource and offers the opportunity to further our understanding of epilepsy mortality and SUDEP. The advantages of using routinely-collected data include that it often covers whole populations, it is already collected, and can be easily linked to other data sources. A significant disadvantage is the difficulty in obtaining accurate causes of death and correctly identifying cases of SUDEP. Using and linking data from epilepsy death registries can improve the quality of mortality data for research. Epilepsy prevalence, incidence and mortality rates are associated with socio-economic deprivation. Further research into understanding the link between deprivation and epilepsy mortality could lead to ways to reduce epilepsy mortality
Keywords: Epilepsy Mortality, SUDEP, Deprivation, Register, Routinely collected data
College: Swansea University Medical School
Start Page: 106453