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SUDEP and mortality in epilepsy: The role of routinely collected healthcare data, registries, and health inequalities

William Owen Pickrell, Michael Patrick Kerr, Owen Pickrell Orcid Logo

Epilepsy & Behavior, Start page: 106453

Swansea University Author: Owen Pickrell Orcid Logo

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DOI (Published version): 10.1016/j.yebeh.2019.106453

Abstract

Routinely-collected data is a powerful research resource and offers the opportunity to further our understanding of epilepsy mortality and SUDEP. The advantages of using routinely-collected data include that it often covers whole populations, it is already collected, and can be easily linked to othe...

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Published in: Epilepsy & Behavior
ISSN: 15255050
Published: 2019
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URI: https://cronfa.swan.ac.uk/Record/cronfa51504
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first_indexed 2019-08-22T15:32:43Z
last_indexed 2019-09-13T14:29:57Z
id cronfa51504
recordtype SURis
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spelling 2019-09-13T11:56:39.8807930 v2 51504 2019-08-22 SUDEP and mortality in epilepsy: The role of routinely collected healthcare data, registries, and health inequalities 1c3044b5ff7a6552ff5e8c9e3901c807 0000-0003-4396-5657 Owen Pickrell Owen Pickrell true false 2019-08-22 FGMHL Routinely-collected data is a powerful research resource and offers the opportunity to further our understanding of epilepsy mortality and SUDEP. The advantages of using routinely-collected data include that it often covers whole populations, it is already collected, and can be easily linked to other data sources. A significant disadvantage is the difficulty in obtaining accurate causes of death and correctly identifying cases of SUDEP. Using and linking data from epilepsy death registries can improve the quality of mortality data for research. Epilepsy prevalence, incidence and mortality rates are associated with socio-economic deprivation. Further research into understanding the link between deprivation and epilepsy mortality could lead to ways to reduce epilepsy mortality Journal Article Epilepsy & Behavior 106453 15255050 Epilepsy Mortality, SUDEP, Deprivation, Register, Routinely collected data 31 12 2019 2019-12-31 10.1016/j.yebeh.2019.106453 COLLEGE NANME Medicine, Health and Life Science - Faculty COLLEGE CODE FGMHL Swansea University 2019-09-13T11:56:39.8807930 2019-08-22T08:15:34.3752484 Faculty of Medicine, Health and Life Sciences Swansea University Medical School - Medicine William Owen Pickrell 1 Michael Patrick Kerr 2 Owen Pickrell 0000-0003-4396-5657 3
title SUDEP and mortality in epilepsy: The role of routinely collected healthcare data, registries, and health inequalities
spellingShingle SUDEP and mortality in epilepsy: The role of routinely collected healthcare data, registries, and health inequalities
Owen Pickrell
title_short SUDEP and mortality in epilepsy: The role of routinely collected healthcare data, registries, and health inequalities
title_full SUDEP and mortality in epilepsy: The role of routinely collected healthcare data, registries, and health inequalities
title_fullStr SUDEP and mortality in epilepsy: The role of routinely collected healthcare data, registries, and health inequalities
title_full_unstemmed SUDEP and mortality in epilepsy: The role of routinely collected healthcare data, registries, and health inequalities
title_sort SUDEP and mortality in epilepsy: The role of routinely collected healthcare data, registries, and health inequalities
author_id_str_mv 1c3044b5ff7a6552ff5e8c9e3901c807
author_id_fullname_str_mv 1c3044b5ff7a6552ff5e8c9e3901c807_***_Owen Pickrell
author Owen Pickrell
author2 William Owen Pickrell
Michael Patrick Kerr
Owen Pickrell
format Journal article
container_title Epilepsy & Behavior
container_start_page 106453
publishDate 2019
institution Swansea University
issn 15255050
doi_str_mv 10.1016/j.yebeh.2019.106453
college_str Faculty of Medicine, Health and Life Sciences
hierarchytype
hierarchy_top_id facultyofmedicinehealthandlifesciences
hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str Swansea University Medical School - Medicine{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}Swansea University Medical School - Medicine
document_store_str 0
active_str 0
description Routinely-collected data is a powerful research resource and offers the opportunity to further our understanding of epilepsy mortality and SUDEP. The advantages of using routinely-collected data include that it often covers whole populations, it is already collected, and can be easily linked to other data sources. A significant disadvantage is the difficulty in obtaining accurate causes of death and correctly identifying cases of SUDEP. Using and linking data from epilepsy death registries can improve the quality of mortality data for research. Epilepsy prevalence, incidence and mortality rates are associated with socio-economic deprivation. Further research into understanding the link between deprivation and epilepsy mortality could lead to ways to reduce epilepsy mortality
published_date 2019-12-31T04:03:24Z
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score 11.016235

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