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Defined by a Label: How Collective Action Brought about Change during the Second Half of the Twentieth Century for People with Cerebral Palsy / TERESA HILLIER

Swansea University Author: TERESA HILLIER

DOI (Published version): 10.23889/Suthesis.54527

Abstract

Inequality of access to the education system in Britain, in the second half of the twentieth century, effectively discriminated against many children with cerebral palsy. Individuals with the condition, were judged by their physical impairment and their cognitive abilities were ignored. This thesis...

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Published: Swansea 2020
Institution: Swansea University
Degree level: Doctoral
Degree name: Ph.D
Supervisor: Turner, David M. ; Clifford, Rebecca
URI: https://cronfa.swan.ac.uk/Record/cronfa54527
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first_indexed 2020-06-22T19:07:21Z
last_indexed 2020-06-27T19:06:44Z
id cronfa54527
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spelling 2020-06-27T14:23:37.2863120 v2 54527 2020-06-22 Defined by a Label: How Collective Action Brought about Change during the Second Half of the Twentieth Century for People with Cerebral Palsy 9788127bc439a4a2c66ef7ac58242303 TERESA HILLIER TERESA HILLIER true false 2020-06-22 Inequality of access to the education system in Britain, in the second half of the twentieth century, effectively discriminated against many children with cerebral palsy. Individuals with the condition, were judged by their physical impairment and their cognitive abilities were ignored. This thesis considers the key factors which brought about a change in attitudes and the provision of services for individuals with cerebral palsy. Concerned parents took action by forming parent-led associations, advocating on behalf of their children and establishing parent-led schools. Their proactive approach challenged medical authority and perceptions of cerebral palsy. Transnational networks provided a significant contribution to a greater understanding of the symptoms of cerebral palsy and effective treatment. National campaigns, to raise awareness and funds, utilised the media of the day, often employing emotive images to reinforce their message. The imagery portrayed presented a dichotomy for associations as it often hid the real progress that was being made. Social reform had a significant impact on individual and family lives, influencing change through the development of the voluntary sector. This sector has transformed from providing relief through, ‘charitable good works’, to delivering a professional multi-agency approach which now plays a significant role within society. An extensive analysis of the records of two parent-led associations, in Swansea and in the Midlands, reveals how successful these associations were at providing support and services. The influence and achievements of the national body for people with cerebral palsy are also considered. Despite achievements made, the actions taken by parent-led associations had an unforeseen effect on the future employment prospects for people with cerebral palsy as they contributed to the development of an institutional culture. Oral history records used in this thesis reveal the real-life experiences of people with cerebral palsy and how they were generally perceived in post-war Britain. E-Thesis Swansea Cerebral palsy, charity, disability, labelling and identity, advocacy, transnational influences, language and imagery 15 7 2020 2020-07-15 10.23889/Suthesis.54527 Appendix 9.2 (p.261-268) is redacted from this thesis. COLLEGE NANME COLLEGE CODE Swansea University Turner, David M. ; Clifford, Rebecca Doctoral Ph.D 2020-06-27T14:23:37.2863120 2020-06-22T13:12:33.3001223 TERESA HILLIER 1 54527__17557__50e6ff0fa0254eee9bcee22fcc7b3bd7.pdf Hillier_Teresa_PhD_Thesis_Final_Embargoed31.07.2021_Redacted.pdf 2020-06-22T15:51:08.4678405 Output 3055751 application/pdf Redacted version - open access true 2021-07-31T00:00:00.0000000 true eng
title Defined by a Label: How Collective Action Brought about Change during the Second Half of the Twentieth Century for People with Cerebral Palsy
spellingShingle Defined by a Label: How Collective Action Brought about Change during the Second Half of the Twentieth Century for People with Cerebral Palsy
TERESA HILLIER
title_short Defined by a Label: How Collective Action Brought about Change during the Second Half of the Twentieth Century for People with Cerebral Palsy
title_full Defined by a Label: How Collective Action Brought about Change during the Second Half of the Twentieth Century for People with Cerebral Palsy
title_fullStr Defined by a Label: How Collective Action Brought about Change during the Second Half of the Twentieth Century for People with Cerebral Palsy
title_full_unstemmed Defined by a Label: How Collective Action Brought about Change during the Second Half of the Twentieth Century for People with Cerebral Palsy
title_sort Defined by a Label: How Collective Action Brought about Change during the Second Half of the Twentieth Century for People with Cerebral Palsy
author_id_str_mv 9788127bc439a4a2c66ef7ac58242303
author_id_fullname_str_mv 9788127bc439a4a2c66ef7ac58242303_***_TERESA HILLIER
author TERESA HILLIER
author2 TERESA HILLIER
format E-Thesis
publishDate 2020
institution Swansea University
doi_str_mv 10.23889/Suthesis.54527
document_store_str 1
active_str 0
description Inequality of access to the education system in Britain, in the second half of the twentieth century, effectively discriminated against many children with cerebral palsy. Individuals with the condition, were judged by their physical impairment and their cognitive abilities were ignored. This thesis considers the key factors which brought about a change in attitudes and the provision of services for individuals with cerebral palsy. Concerned parents took action by forming parent-led associations, advocating on behalf of their children and establishing parent-led schools. Their proactive approach challenged medical authority and perceptions of cerebral palsy. Transnational networks provided a significant contribution to a greater understanding of the symptoms of cerebral palsy and effective treatment. National campaigns, to raise awareness and funds, utilised the media of the day, often employing emotive images to reinforce their message. The imagery portrayed presented a dichotomy for associations as it often hid the real progress that was being made. Social reform had a significant impact on individual and family lives, influencing change through the development of the voluntary sector. This sector has transformed from providing relief through, ‘charitable good works’, to delivering a professional multi-agency approach which now plays a significant role within society. An extensive analysis of the records of two parent-led associations, in Swansea and in the Midlands, reveals how successful these associations were at providing support and services. The influence and achievements of the national body for people with cerebral palsy are also considered. Despite achievements made, the actions taken by parent-led associations had an unforeseen effect on the future employment prospects for people with cerebral palsy as they contributed to the development of an institutional culture. Oral history records used in this thesis reveal the real-life experiences of people with cerebral palsy and how they were generally perceived in post-war Britain.
published_date 2020-07-15T04:08:07Z
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score 11.016258

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