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Health equity and wellbeing among older people’s caregivers in New Zealand during COVID-19: Protocol for a qualitative study
PLOS ONE, Volume: 17, Issue: 7, Start page: e0271114
Swansea University Author: Vanessa Burholt
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Background: Knowledge of the challenges unpaid caregivers faced providing care to older people during the COVID-19 pandemic is limited. Challenges may be especially pronounced for those experiencing inequitable access to health and social care. This participatory action research study, located in Ne...
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Background: Knowledge of the challenges unpaid caregivers faced providing care to older people during the COVID-19 pandemic is limited. Challenges may be especially pronounced for those experiencing inequitable access to health and social care. This participatory action research study, located in New Zealand, has four main objectives, (i) to understand the challenges and rewards associated with caregiving to older care recipients during the COVID-19 pandemic restrictions; (ii) to map and collate resources developed (or mobilised) by organisations during the pandemic; (iii) to co-produce policy recommendations, identify useful caregiver resources and practices, prioritise unmet needs (challenges); and, (iv) to use project results in knowledge translation, in order to improve caregivers access to resources, and raise the profile and recognition of caregivers contribution to society.Methods and analysis: Māori, Pacific and rural-dwelling caregivers to 30 older care-recipients, and 30 representatives from organisations supporting caregivers in New Zealand will be interviewed. Combining data from the interviews and caregivers letters (from an archive of older people's pandemic experiences), framework analysis will be used to examine the interrelated systems of the human ecological model and the impact on caregiving experiences during the pandemic. Resources that service providers had created or used for caregivers and older people will be collated and categorised. Through co-production with caregivers and community partners we will produce three short films describing caregivers' pandemic experiences; identify a suite of resources for caregivers to use in future events requiring self-isolation, and in everyday life; and generate ideas to address unresolved issues.
Data Availability Statement: The datasets generated and/or analysed during the study will not be made publicly available as restrictions apply to the availability of these data (intention of data analysis included in participant information forms) and sensitivity (i.e. human data, Māori data sovereignty). These restrictions have been ratified by the Auckland Health Research Ethics Committee (AHREC) at the University of Auckland. Data will be available from AHREC (firstname.lastname@example.org) on reasonable request. Data will be located in a controlled access repository at the University of Auckland.
Faculty of Medicine, Health and Life Sciences
This work was supported by Health Research Council of New Zealand (https://www. hrc.govt.nz/) Project Grant 20/1380 to Vanessa Burholt.