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Health equity and wellbeing among older people’s caregivers in New Zealand during COVID-19: Protocol for a qualitative study

Vanessa Burholt Orcid Logo, Deborah Balmer, Rosemary Frey Orcid Logo, Pare Meha, John Parsons, Mary Roberts, Mary Louisa Simpson, Janine Wiles, Moema Gregorzewski, Teuila Percival, Rangimahora Reddy

PLOS ONE, Volume: 17, Issue: 7, Start page: e0271114

Swansea University Author: Vanessa Burholt Orcid Logo

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DOI (Published version): 10.1371/journal.pone.0271114

Abstract

Background: Knowledge of the challenges unpaid caregivers faced providing care to older people during the COVID-19 pandemic is limited. Challenges may be especially pronounced for those experiencing inequitable access to health and social care. This participatory action research study, located in Ne...

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Published in: PLOS ONE
ISSN: 1932-6203
Published: Public Library of Science (PLoS) 2022
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URI: https://cronfa.swan.ac.uk/Record/cronfa60595
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This participatory action research study, located in New Zealand, has four main objectives, (i) to understand the challenges and rewards associated with caregiving to older care recipients during the COVID-19 pandemic restrictions; (ii) to map and collate resources developed (or mobilised) by organisations during the pandemic; (iii) to co-produce policy recommendations, identify useful caregiver resources and practices, prioritise unmet needs (challenges); and, (iv) to use project results in knowledge translation, in order to improve caregivers access to resources, and raise the profile and recognition of caregivers contribution to society.Methods and analysis: M&#x101;ori, Pacific and rural-dwelling caregivers to 30 older care-recipients, and 30 representatives from organisations supporting caregivers in New Zealand will be interviewed. Combining data from the interviews and caregivers letters (from an archive of older people's pandemic experiences), framework analysis will be used to examine the interrelated systems of the human ecological model and the impact on caregiving experiences during the pandemic. Resources that service providers had created or used for caregivers and older people will be collated and categorised. Through co-production with caregivers and community partners we will produce three short films describing caregivers' pandemic experiences; identify a suite of resources for caregivers to use in future events requiring self-isolation, and in everyday life; and generate ideas to address unresolved issues.</abstract><type>Journal Article</type><journal>PLOS ONE</journal><volume>17</volume><journalNumber>7</journalNumber><paginationStart>e0271114</paginationStart><paginationEnd/><publisher>Public Library of Science (PLoS)</publisher><placeOfPublication/><isbnPrint/><isbnElectronic/><issnPrint/><issnElectronic>1932-6203</issnElectronic><keywords/><publishedDay>15</publishedDay><publishedMonth>7</publishedMonth><publishedYear>2022</publishedYear><publishedDate>2022-07-15</publishedDate><doi>10.1371/journal.pone.0271114</doi><url/><notes>Data Availability Statement: The datasets generated and/or analysed during the study will not be made publicly available as restrictions apply to the availability of these data (intention of data analysis included in participant information forms) and sensitivity (i.e. human data, M&#x101;ori data sovereignty). These restrictions have been ratified by the Auckland Health Research Ethics Committee (AHREC) at the University of Auckland. Data will be available from AHREC (ahrec@auckland.ac.nz) on reasonable request. 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spelling 2022-08-18T10:24:52.1533516 v2 60595 2022-07-22 Health equity and wellbeing among older people’s caregivers in New Zealand during COVID-19: Protocol for a qualitative study cf7fe9863906cd54df5b0a99904d535e 0000-0002-6789-127X Vanessa Burholt Vanessa Burholt true false 2022-07-22 PHAC Background: Knowledge of the challenges unpaid caregivers faced providing care to older people during the COVID-19 pandemic is limited. Challenges may be especially pronounced for those experiencing inequitable access to health and social care. This participatory action research study, located in New Zealand, has four main objectives, (i) to understand the challenges and rewards associated with caregiving to older care recipients during the COVID-19 pandemic restrictions; (ii) to map and collate resources developed (or mobilised) by organisations during the pandemic; (iii) to co-produce policy recommendations, identify useful caregiver resources and practices, prioritise unmet needs (challenges); and, (iv) to use project results in knowledge translation, in order to improve caregivers access to resources, and raise the profile and recognition of caregivers contribution to society.Methods and analysis: Māori, Pacific and rural-dwelling caregivers to 30 older care-recipients, and 30 representatives from organisations supporting caregivers in New Zealand will be interviewed. Combining data from the interviews and caregivers letters (from an archive of older people's pandemic experiences), framework analysis will be used to examine the interrelated systems of the human ecological model and the impact on caregiving experiences during the pandemic. Resources that service providers had created or used for caregivers and older people will be collated and categorised. Through co-production with caregivers and community partners we will produce three short films describing caregivers' pandemic experiences; identify a suite of resources for caregivers to use in future events requiring self-isolation, and in everyday life; and generate ideas to address unresolved issues. Journal Article PLOS ONE 17 7 e0271114 Public Library of Science (PLoS) 1932-6203 15 7 2022 2022-07-15 10.1371/journal.pone.0271114 Data Availability Statement: The datasets generated and/or analysed during the study will not be made publicly available as restrictions apply to the availability of these data (intention of data analysis included in participant information forms) and sensitivity (i.e. human data, Māori data sovereignty). These restrictions have been ratified by the Auckland Health Research Ethics Committee (AHREC) at the University of Auckland. Data will be available from AHREC (ahrec@auckland.ac.nz) on reasonable request. Data will be located in a controlled access repository at the University of Auckland. COLLEGE NANME Public Health COLLEGE CODE PHAC Swansea University Another institution paid the OA fee This work was supported by Health Research Council of New Zealand (https://www. hrc.govt.nz/) Project Grant 20/1380 to Vanessa Burholt. 2022-08-18T10:24:52.1533516 2022-07-22T01:14:59.2298977 Faculty of Medicine, Health and Life Sciences The Centre for Innovative Ageing Vanessa Burholt 0000-0002-6789-127X 1 Deborah Balmer 2 Rosemary Frey 0000-0002-8758-5675 3 Pare Meha 4 John Parsons 5 Mary Roberts 6 Mary Louisa Simpson 7 Janine Wiles 8 Moema Gregorzewski 9 Teuila Percival 10 Rangimahora Reddy 11 60595__24705__977d3c3e46ed4c4d95dbeef450d3e20f.pdf Health equity and wellbeing Protocol offprint.pdf 2022-07-22T01:18:48.0714206 Output 940748 application/pdf Version of Record true © 2022 Burholt et al. This is an open access article distributed under the terms of the Creative Commons Attribution License true eng http://creativecommons.org/licenses/by/4.0/
title Health equity and wellbeing among older people’s caregivers in New Zealand during COVID-19: Protocol for a qualitative study
spellingShingle Health equity and wellbeing among older people’s caregivers in New Zealand during COVID-19: Protocol for a qualitative study
Vanessa Burholt
title_short Health equity and wellbeing among older people’s caregivers in New Zealand during COVID-19: Protocol for a qualitative study
title_full Health equity and wellbeing among older people’s caregivers in New Zealand during COVID-19: Protocol for a qualitative study
title_fullStr Health equity and wellbeing among older people’s caregivers in New Zealand during COVID-19: Protocol for a qualitative study
title_full_unstemmed Health equity and wellbeing among older people’s caregivers in New Zealand during COVID-19: Protocol for a qualitative study
title_sort Health equity and wellbeing among older people’s caregivers in New Zealand during COVID-19: Protocol for a qualitative study
author_id_str_mv cf7fe9863906cd54df5b0a99904d535e
author_id_fullname_str_mv cf7fe9863906cd54df5b0a99904d535e_***_Vanessa Burholt
author Vanessa Burholt
author2 Vanessa Burholt
Deborah Balmer
Rosemary Frey
Pare Meha
John Parsons
Mary Roberts
Mary Louisa Simpson
Janine Wiles
Moema Gregorzewski
Teuila Percival
Rangimahora Reddy
format Journal article
container_title PLOS ONE
container_volume 17
container_issue 7
container_start_page e0271114
publishDate 2022
institution Swansea University
issn 1932-6203
doi_str_mv 10.1371/journal.pone.0271114
publisher Public Library of Science (PLoS)
college_str Faculty of Medicine, Health and Life Sciences
hierarchytype
hierarchy_top_id facultyofmedicinehealthandlifesciences
hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str The Centre for Innovative Ageing{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}The Centre for Innovative Ageing
document_store_str 1
active_str 0
description Background: Knowledge of the challenges unpaid caregivers faced providing care to older people during the COVID-19 pandemic is limited. Challenges may be especially pronounced for those experiencing inequitable access to health and social care. This participatory action research study, located in New Zealand, has four main objectives, (i) to understand the challenges and rewards associated with caregiving to older care recipients during the COVID-19 pandemic restrictions; (ii) to map and collate resources developed (or mobilised) by organisations during the pandemic; (iii) to co-produce policy recommendations, identify useful caregiver resources and practices, prioritise unmet needs (challenges); and, (iv) to use project results in knowledge translation, in order to improve caregivers access to resources, and raise the profile and recognition of caregivers contribution to society.Methods and analysis: Māori, Pacific and rural-dwelling caregivers to 30 older care-recipients, and 30 representatives from organisations supporting caregivers in New Zealand will be interviewed. Combining data from the interviews and caregivers letters (from an archive of older people's pandemic experiences), framework analysis will be used to examine the interrelated systems of the human ecological model and the impact on caregiving experiences during the pandemic. Resources that service providers had created or used for caregivers and older people will be collated and categorised. Through co-production with caregivers and community partners we will produce three short films describing caregivers' pandemic experiences; identify a suite of resources for caregivers to use in future events requiring self-isolation, and in everyday life; and generate ideas to address unresolved issues.
published_date 2022-07-15T04:18:50Z
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