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Comparison of employment among people with Multiple Sclerosis across Europe
,
Tina Parciak,
Waldemar Brola ,
Jan Hillert,
Rod Middleton ,
Alexander Stahmann ,
Christoph Thalheim,
Peter Flachenecker
Multiple Sclerosis Journal - Experimental, Translational and Clinical, Volume: 8, Issue: 2, Start page: 205521732210906
Swansea University Author:
Rod Middleton
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DOI (Published version): 10.1177/20552173221090653
Abstract
BackgroundPeople with Multiple Sclerosis (PwMS) suffer from an increased risk of unemployment during the course of the disease. In recent years progress has been made in increasing the time until patients have to leave the workforce permanently. Such a retirement is often associated with MS but the...
| Published in: | Multiple Sclerosis Journal - Experimental, Translational and Clinical |
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| ISSN: | 2055-2173 2055-2173 |
| Published: |
SAGE Publications
2022
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| Online Access: |
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| URI: | https://cronfa.swan.ac.uk/Record/cronfa61486 |
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| Abstract: |
BackgroundPeople with Multiple Sclerosis (PwMS) suffer from an increased risk of unemployment during the course of the disease. In recent years progress has been made in increasing the time until patients have to leave the workforce permanently. Such a retirement is often associated with MS but the driving factors including disability progression, support measures at the workplace, and societal aspects are not yet fully understood.MethodsWe consolidated data from four European MS databases from Germany, Poland, Sweden, and the United Kingdom, which were able to provide data on working status, disability progression and quality of life in accordance with the data harmonization framework of the EUReMS (European Registry in Multiple Sclerosis) project.ResultsFactors strongly associated with unemployment are disability progression, low quality of life and being close to the statutory retirement age. Overall, highest employment rate (77%) and lowest effects of gender and disease duration were found in Sweden.ConclusionsWe found remarkable differences between the European registers and the countries studied, which may indicate inequalities at European level. Furthermore, our findings suggest that it is feasible and useful to combine data from different MS registers in Europe, albeit the data structures are heterogeneous. |
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| Keywords: |
multiple sclerosis, harmonization, registries, employment |
| College: |
Faculty of Medicine, Health and Life Sciences |
| Funders: |
This work on patient reported outcomes and employment was initiated as part of the EUReMS project which has received (1) co-funding from the European Union, in the framework of the Second Health Programme 2008-2013, Priority Area: 3.3.2 Promote health – Promote healthier ways of life and reduce major diseases and injuries – Action: 3.3.2.7 Prevention of major and chronic diseases and rare diseases and (2) from the following sponsors: Hoffmann La Roche, BayerSchering, Biogen Idec, Merck serono, Almirall, Sanofi-Aventis, TEVA, Genzyme, Medtronic Foundation, Novartis, ECRIMS. Co-funding by Biogen allowed continuation of the previously unfinished analysis of already existing and newly collected PRO data, being provided by additional registries joining the project. |
| Issue: |
2 |
| Start Page: |
205521732210906 |