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Comparison of employment among people with Multiple Sclerosis across Europe

David Ellenberger Orcid Logo, Tina Parciak, Waldemar Brola Orcid Logo, Jan Hillert, Rod Middleton Orcid Logo, Alexander Stahmann Orcid Logo, Christoph Thalheim, Peter Flachenecker

Multiple Sclerosis Journal - Experimental, Translational and Clinical, Volume: 8, Issue: 2, Start page: 205521732210906

Swansea University Author: Rod Middleton Orcid Logo

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DOI (Published version): 10.1177/20552173221090653

Abstract

BackgroundPeople with Multiple Sclerosis (PwMS) suffer from an increased risk of unemployment during the course of the disease. In recent years progress has been made in increasing the time until patients have to leave the workforce permanently. Such a retirement is often associated with MS but the...

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Published in: Multiple Sclerosis Journal - Experimental, Translational and Clinical
ISSN: 2055-2173 2055-2173
Published: SAGE Publications 2022
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URI: https://cronfa.swan.ac.uk/Record/cronfa61486
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fullrecord <?xml version="1.0"?><rfc1807><datestamp>2022-10-20T14:48:06.1739837</datestamp><bib-version>v2</bib-version><id>61486</id><entry>2022-10-07</entry><title>Comparison of employment among people with Multiple Sclerosis across Europe</title><swanseaauthors><author><sid>005518f819ef1a2a13fdf438529bdfcd</sid><ORCID>0000-0002-2130-4420</ORCID><firstname>Rod</firstname><surname>Middleton</surname><name>Rod Middleton</name><active>true</active><ethesisStudent>false</ethesisStudent></author></swanseaauthors><date>2022-10-07</date><deptcode>HDAT</deptcode><abstract>BackgroundPeople with Multiple Sclerosis (PwMS) suffer from an increased risk of unemployment during the course of the disease. In recent years progress has been made in increasing the time until patients have to leave the workforce permanently. Such a retirement is often associated with MS but the driving factors including disability progression, support measures at the workplace, and societal aspects are not yet fully understood.MethodsWe consolidated data from four European MS databases from Germany, Poland, Sweden, and the United Kingdom, which were able to provide data on working status, disability progression and quality of life in accordance with the data harmonization framework of the EUReMS (European Registry in Multiple Sclerosis) project.ResultsFactors strongly associated with unemployment are disability progression, low quality of life and being close to the statutory retirement age. Overall, highest employment rate (77%) and lowest effects of gender and disease duration were found in Sweden.ConclusionsWe found remarkable differences between the European registers and the countries studied, which may indicate inequalities at European level. 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spelling 2022-10-20T14:48:06.1739837 v2 61486 2022-10-07 Comparison of employment among people with Multiple Sclerosis across Europe 005518f819ef1a2a13fdf438529bdfcd 0000-0002-2130-4420 Rod Middleton Rod Middleton true false 2022-10-07 HDAT BackgroundPeople with Multiple Sclerosis (PwMS) suffer from an increased risk of unemployment during the course of the disease. In recent years progress has been made in increasing the time until patients have to leave the workforce permanently. Such a retirement is often associated with MS but the driving factors including disability progression, support measures at the workplace, and societal aspects are not yet fully understood.MethodsWe consolidated data from four European MS databases from Germany, Poland, Sweden, and the United Kingdom, which were able to provide data on working status, disability progression and quality of life in accordance with the data harmonization framework of the EUReMS (European Registry in Multiple Sclerosis) project.ResultsFactors strongly associated with unemployment are disability progression, low quality of life and being close to the statutory retirement age. Overall, highest employment rate (77%) and lowest effects of gender and disease duration were found in Sweden.ConclusionsWe found remarkable differences between the European registers and the countries studied, which may indicate inequalities at European level. Furthermore, our findings suggest that it is feasible and useful to combine data from different MS registers in Europe, albeit the data structures are heterogeneous. Journal Article Multiple Sclerosis Journal - Experimental, Translational and Clinical 8 2 205521732210906 SAGE Publications 2055-2173 2055-2173 multiple sclerosis, harmonization, registries, employment 27 4 2022 2022-04-27 10.1177/20552173221090653 COLLEGE NANME Health Data Science COLLEGE CODE HDAT Swansea University This work on patient reported outcomes and employment was initiated as part of the EUReMS project which has received (1) co-funding from the European Union, in the framework of the Second Health Programme 2008-2013, Priority Area: 3.3.2 Promote health – Promote healthier ways of life and reduce major diseases and injuries – Action: 3.3.2.7 Prevention of major and chronic diseases and rare diseases and (2) from the following sponsors: Hoffmann La Roche, BayerSchering, Biogen Idec, Merck serono, Almirall, Sanofi-Aventis, TEVA, Genzyme, Medtronic Foundation, Novartis, ECRIMS. Co-funding by Biogen allowed continuation of the previously unfinished analysis of already existing and newly collected PRO data, being provided by additional registries joining the project. 2022-10-20T14:48:06.1739837 2022-10-07T12:12:06.6143358 Faculty of Medicine, Health and Life Sciences Swansea University Medical School - Medicine David Ellenberger 0000-0002-2274-5025 1 Tina Parciak 2 Waldemar Brola 0000-0002-7955-3454 3 Jan Hillert 4 Rod Middleton 0000-0002-2130-4420 5 Alexander Stahmann 0000-0001-5308-105x 6 Christoph Thalheim 7 Peter Flachenecker 8 61486__25533__7fbc865f83da43e7a7398068f134da14.pdf 61486_VoR.pdf 2022-10-20T14:46:36.8274147 Output 1430137 application/pdf Version of Record true © The Author(s), 2022. This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License true eng https://creativecommons.org/licenses/by-nc/4.0/
title Comparison of employment among people with Multiple Sclerosis across Europe
spellingShingle Comparison of employment among people with Multiple Sclerosis across Europe
Rod Middleton
title_short Comparison of employment among people with Multiple Sclerosis across Europe
title_full Comparison of employment among people with Multiple Sclerosis across Europe
title_fullStr Comparison of employment among people with Multiple Sclerosis across Europe
title_full_unstemmed Comparison of employment among people with Multiple Sclerosis across Europe
title_sort Comparison of employment among people with Multiple Sclerosis across Europe
author_id_str_mv 005518f819ef1a2a13fdf438529bdfcd
author_id_fullname_str_mv 005518f819ef1a2a13fdf438529bdfcd_***_Rod Middleton
author Rod Middleton
author2 David Ellenberger
Tina Parciak
Waldemar Brola
Jan Hillert
Rod Middleton
Alexander Stahmann
Christoph Thalheim
Peter Flachenecker
format Journal article
container_title Multiple Sclerosis Journal - Experimental, Translational and Clinical
container_volume 8
container_issue 2
container_start_page 205521732210906
publishDate 2022
institution Swansea University
issn 2055-2173
2055-2173
doi_str_mv 10.1177/20552173221090653
publisher SAGE Publications
college_str Faculty of Medicine, Health and Life Sciences
hierarchytype
hierarchy_top_id facultyofmedicinehealthandlifesciences
hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str Swansea University Medical School - Medicine{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}Swansea University Medical School - Medicine
document_store_str 1
active_str 0
description BackgroundPeople with Multiple Sclerosis (PwMS) suffer from an increased risk of unemployment during the course of the disease. In recent years progress has been made in increasing the time until patients have to leave the workforce permanently. Such a retirement is often associated with MS but the driving factors including disability progression, support measures at the workplace, and societal aspects are not yet fully understood.MethodsWe consolidated data from four European MS databases from Germany, Poland, Sweden, and the United Kingdom, which were able to provide data on working status, disability progression and quality of life in accordance with the data harmonization framework of the EUReMS (European Registry in Multiple Sclerosis) project.ResultsFactors strongly associated with unemployment are disability progression, low quality of life and being close to the statutory retirement age. Overall, highest employment rate (77%) and lowest effects of gender and disease duration were found in Sweden.ConclusionsWe found remarkable differences between the European registers and the countries studied, which may indicate inequalities at European level. Furthermore, our findings suggest that it is feasible and useful to combine data from different MS registers in Europe, albeit the data structures are heterogeneous.
published_date 2022-04-27T04:20:20Z
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