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Analysing Data With Members of a Stigmatised Community: Experiences, Reflections and Recommendations for Best Practice From the Finding the Formula Community Analysis Group

Aimee Grant Orcid Logo, Tara McNamara, Jonie Cooper, Susan Dvorak, Abbie Dolling, Rebecca Ellis Orcid Logo, Carol McIntyre, Sara Jones Orcid Logo, Amy Brown Orcid Logo

International Journal of Qualitative Methods, Volume: 23

Swansea University Authors: Aimee Grant Orcid Logo, Rebecca Ellis Orcid Logo, Sara Jones Orcid Logo, Amy Brown Orcid Logo

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DOI (Published version): 10.1177/16094069241229983

Abstract

Participatory research approaches hold potential to better understand society through valuing lived experience. Formula feeding babies is routinely stigmatised in the UK, despite inadequate support to facilitate breastfeeding. Our community science project investigated the safety of powdered infant...

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Published in: International Journal of Qualitative Methods
ISSN: 1609-4069 1609-4069
Published: London SAGE Publications 2024
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URI: https://cronfa.swan.ac.uk/Record/cronfa65498
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Formula feeding babies is routinely stigmatised in the UK, despite inadequate support to facilitate breastfeeding. Our community science project investigated the safety of powdered infant formula preparation in the home through the completion of an at-home experiment and a research diary with closed and open questions (n=151). To add validity to the interpretation of open text, data in research diaries and to contextualise this, a community analysis group of five formula-feeding mothers was established. The community analysts undertook inductive thematic analysis through a series of analysis group meetings around data extracts, contributed to the study&#x2019;s empirical outputs and this methodological output, meeting 23 times over a nine-month period. Detailed notes were taken during meetings and the methodological elements of these were thematically analysed with the community analysts to produce this article, with extracts from the academic researchers&#x2019; field notes added where relevant. The overarching themes, presenting both positive experiences and areas for improvement, focused on: (i) clarity of expectations and the impact this had on community analysts&#x2019; confidence, (ii) the stigmatising topic area and how this was managed by the facilitators, and (iii) feeling valued, in relation to honoraria, inclusion in outputs and community analysts coming to recognise their own expertise. Furthermore, the community analysts co-produced recommendations for including community analysts in future research. It provides guidance on how this can be appropriately funded and supported by funding bodies and research teams, as well as providing guidance on recruitment and chairing meetings. 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spelling 2024-07-15T11:35:14.9781173 v2 65498 2024-01-23 Analysing Data With Members of a Stigmatised Community: Experiences, Reflections and Recommendations for Best Practice From the Finding the Formula Community Analysis Group 6a1ce3bc54c692c804e858b70d2e4bd2 0000-0001-7205-5869 Aimee Grant Aimee Grant true false 8ea1fbb848d05d2f0262c6d03cfc9698 0000-0002-7761-468X Rebecca Ellis Rebecca Ellis true false e6ed433db8a59b5e3077e3de5888a98a 0000-0003-2182-6314 Sara Jones Sara Jones true false 37aea6965461cb0510473d109411a0c3 0000-0002-0438-0157 Amy Brown Amy Brown true false 2024-01-23 HSOC Participatory research approaches hold potential to better understand society through valuing lived experience. Formula feeding babies is routinely stigmatised in the UK, despite inadequate support to facilitate breastfeeding. Our community science project investigated the safety of powdered infant formula preparation in the home through the completion of an at-home experiment and a research diary with closed and open questions (n=151). To add validity to the interpretation of open text, data in research diaries and to contextualise this, a community analysis group of five formula-feeding mothers was established. The community analysts undertook inductive thematic analysis through a series of analysis group meetings around data extracts, contributed to the study’s empirical outputs and this methodological output, meeting 23 times over a nine-month period. Detailed notes were taken during meetings and the methodological elements of these were thematically analysed with the community analysts to produce this article, with extracts from the academic researchers’ field notes added where relevant. The overarching themes, presenting both positive experiences and areas for improvement, focused on: (i) clarity of expectations and the impact this had on community analysts’ confidence, (ii) the stigmatising topic area and how this was managed by the facilitators, and (iii) feeling valued, in relation to honoraria, inclusion in outputs and community analysts coming to recognise their own expertise. Furthermore, the community analysts co-produced recommendations for including community analysts in future research. It provides guidance on how this can be appropriately funded and supported by funding bodies and research teams, as well as providing guidance on recruitment and chairing meetings. We hope that this article can provide valuable input into how to involve the community more inclusively as research partners in qualitative analysis related to stigmatised topics. Journal Article International Journal of Qualitative Methods 23 SAGE Publications London 1609-4069 1609-4069 action research; participatory action research; community science; citizen science; qualitative; qualitative analysis; infant feeding; formula feeding 29 1 2024 2024-01-29 10.1177/16094069241229983 COLLEGE NANME Health and Social Care School COLLEGE CODE HSOC Swansea University External research funder(s) paid the OA fee (includes OA grants disbursed by the Library) UK Research and Innovation, Food Standards Agency, BB/W009188/1 2024-07-15T11:35:14.9781173 2024-01-23T12:27:43.2158042 Faculty of Medicine, Health and Life Sciences School of Health and Social Care - Public Health Aimee Grant 0000-0001-7205-5869 1 Tara McNamara 2 Jonie Cooper 3 Susan Dvorak 4 Abbie Dolling 5 Rebecca Ellis 0000-0002-7761-468X 6 Carol McIntyre 7 Sara Jones 0000-0003-2182-6314 8 Amy Brown 0000-0002-0438-0157 9 65498__29603__92a4529ba8a34a429fb168cdbe6a7af7.pdf 65498_VoR.pdf 2024-02-29T16:41:15.8988695 Output 828934 application/pdf Version of Record true © The Author(s) 2024. This article is distributed under the terms of the Creative Commons Attribution 4.0 License true eng https://creativecommons.org/licenses/by/4.0/
title Analysing Data With Members of a Stigmatised Community: Experiences, Reflections and Recommendations for Best Practice From the Finding the Formula Community Analysis Group
spellingShingle Analysing Data With Members of a Stigmatised Community: Experiences, Reflections and Recommendations for Best Practice From the Finding the Formula Community Analysis Group
Aimee Grant
Rebecca Ellis
Sara Jones
Amy Brown
title_short Analysing Data With Members of a Stigmatised Community: Experiences, Reflections and Recommendations for Best Practice From the Finding the Formula Community Analysis Group
title_full Analysing Data With Members of a Stigmatised Community: Experiences, Reflections and Recommendations for Best Practice From the Finding the Formula Community Analysis Group
title_fullStr Analysing Data With Members of a Stigmatised Community: Experiences, Reflections and Recommendations for Best Practice From the Finding the Formula Community Analysis Group
title_full_unstemmed Analysing Data With Members of a Stigmatised Community: Experiences, Reflections and Recommendations for Best Practice From the Finding the Formula Community Analysis Group
title_sort Analysing Data With Members of a Stigmatised Community: Experiences, Reflections and Recommendations for Best Practice From the Finding the Formula Community Analysis Group
author_id_str_mv 6a1ce3bc54c692c804e858b70d2e4bd2
8ea1fbb848d05d2f0262c6d03cfc9698
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author_id_fullname_str_mv 6a1ce3bc54c692c804e858b70d2e4bd2_***_Aimee Grant
8ea1fbb848d05d2f0262c6d03cfc9698_***_Rebecca Ellis
e6ed433db8a59b5e3077e3de5888a98a_***_Sara Jones
37aea6965461cb0510473d109411a0c3_***_Amy Brown
author Aimee Grant
Rebecca Ellis
Sara Jones
Amy Brown
author2 Aimee Grant
Tara McNamara
Jonie Cooper
Susan Dvorak
Abbie Dolling
Rebecca Ellis
Carol McIntyre
Sara Jones
Amy Brown
format Journal article
container_title International Journal of Qualitative Methods
container_volume 23
publishDate 2024
institution Swansea University
issn 1609-4069
1609-4069
doi_str_mv 10.1177/16094069241229983
publisher SAGE Publications
college_str Faculty of Medicine, Health and Life Sciences
hierarchytype
hierarchy_top_id facultyofmedicinehealthandlifesciences
hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str School of Health and Social Care - Public Health{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}School of Health and Social Care - Public Health
document_store_str 1
active_str 0
description Participatory research approaches hold potential to better understand society through valuing lived experience. Formula feeding babies is routinely stigmatised in the UK, despite inadequate support to facilitate breastfeeding. Our community science project investigated the safety of powdered infant formula preparation in the home through the completion of an at-home experiment and a research diary with closed and open questions (n=151). To add validity to the interpretation of open text, data in research diaries and to contextualise this, a community analysis group of five formula-feeding mothers was established. The community analysts undertook inductive thematic analysis through a series of analysis group meetings around data extracts, contributed to the study’s empirical outputs and this methodological output, meeting 23 times over a nine-month period. Detailed notes were taken during meetings and the methodological elements of these were thematically analysed with the community analysts to produce this article, with extracts from the academic researchers’ field notes added where relevant. The overarching themes, presenting both positive experiences and areas for improvement, focused on: (i) clarity of expectations and the impact this had on community analysts’ confidence, (ii) the stigmatising topic area and how this was managed by the facilitators, and (iii) feeling valued, in relation to honoraria, inclusion in outputs and community analysts coming to recognise their own expertise. Furthermore, the community analysts co-produced recommendations for including community analysts in future research. It provides guidance on how this can be appropriately funded and supported by funding bodies and research teams, as well as providing guidance on recruitment and chairing meetings. We hope that this article can provide valuable input into how to involve the community more inclusively as research partners in qualitative analysis related to stigmatised topics.
published_date 2024-01-29T05:46:31Z
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