Journal article 30 views 8 downloads
Cohort profile: Born in Wales—a birth cohort with maternity, parental and child data linkage for life course research in Wales, UK
,
Natasha L Kennedy,
Michaela James ,
Sam Dredge,
Amrita Bandyopadhyay,
Adele Battaglia ,
Sarah Davies,
Sinead Brophy
BMJ Open, Volume: 14, Issue: 1, Start page: e076711
Swansea University Authors:
Hope Jones, Mike Seaborne , Michaela James , Sam Dredge, Amrita Bandyopadhyay, Sinead Brophy
-
PDF | Version of Record
This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY- NC 4.0) license.
Download (645.88KB)
DOI (Published version): 10.1136/bmjopen-2023-076711
Abstract
Purpose Using Wales’s national dataset for maternity and births as a core dataset, we have linked related datasets to create a more complete and comprehensive entire country birth cohort. Data of anonymised identified persons are linked on the individual level to data from health, social care and ed...
| Published in: | BMJ Open |
|---|---|
| ISSN: | 2044-6055 2044-6055 |
| Published: |
BMJ
2024
|
| Online Access: |
Check full text
|
| URI: | https://cronfa.swan.ac.uk/Record/cronfa66545 |
| Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
| Abstract: |
Purpose Using Wales’s national dataset for maternity and births as a core dataset, we have linked related datasets to create a more complete and comprehensive entire country birth cohort. Data of anonymised identified persons are linked on the individual level to data from health, social care and education data within the Secure Anonymised Information Linkage (SAIL) Databank. Each individual is assigned an encrypted Anonymised Linking Field; this field is used to link anonymised individuals across datasets. We present the descriptive data available in the core dataset, and the future expansion plans for the database beyond its initial development stage.Participants Descriptive information from 2011 to 2023 has been gathered from the National Community Child Health Database (NCCHD) in SAIL. This comprehensive dataset comprises over 400 000 child electronic records. Additionally, survey responses about health and well-being from a cross-section of the population including 2500 parents and 30 000 primary school children have been collected for enriched personal responses and linkage to the data spine.Findings to date The electronic cohort comprises all children born in Wales since 2011, with follow-up conducted until they finish primary school at age 11. The child cohort is 51%: 49% female: male, and 7.8% are from ethnic minority backgrounds. When considering age distribution, 26.8% of children are under the age of 5, while 63.2% fall within the age range of 5–11.Future plans Born in Wales will expand by 30 000 new births annually in Wales (in NCCHD), while including follow-up data of children and parents already in the database. Supplementary datasets complement the existing linkage, including primary care, hospital data, educational attainment and social care. Future research includes exploring the long-term implications of COVID-19 on child health and development, and examining the impact of parental work environment on child health and development. |
|---|---|
| College: |
Faculty of Medicine, Health and Life Sciences |
| Funders: |
This work was supported by the National Centre for Population Health and Wellbeing Research (NCPHWR) grant number [AMS103836]. |
| Issue: |
1 |
| Start Page: |
e076711 |