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Cohort profile: Born in Wales—a birth cohort with maternity, parental and child data linkage for life course research in Wales, UK

Hope Jones, Mike Seaborne Orcid Logo, Natasha L Kennedy, Michaela James Orcid Logo, Sam Dredge, Amrita Bandyopadhyay, Adele Battaglia Orcid Logo, Sarah Davies, Sinead Brophy Orcid Logo

BMJ Open, Volume: 14, Issue: 1, Start page: e076711

Swansea University Authors: Hope Jones, Mike Seaborne Orcid Logo, Michaela James Orcid Logo, Sam Dredge, Amrita Bandyopadhyay, Sinead Brophy Orcid Logo

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DOI (Published version): 10.1136/bmjopen-2023-076711

Abstract

Purpose Using Wales’s national dataset for maternity and births as a core dataset, we have linked related datasets to create a more complete and comprehensive entire country birth cohort. Data of anonymised identified persons are linked on the individual level to data from health, social care and ed...

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Published in: BMJ Open
ISSN: 2044-6055 2044-6055
Published: BMJ 2024
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Data of anonymised identified persons are linked on the individual level to data from health, social care and education data within the Secure Anonymised Information Linkage (SAIL) Databank. Each individual is assigned an encrypted Anonymised Linking Field; this field is used to link anonymised individuals across datasets. We present the descriptive data available in the core dataset, and the future expansion plans for the database beyond its initial development stage.Participants Descriptive information from 2011 to 2023 has been gathered from the National Community Child Health Database (NCCHD) in SAIL. This comprehensive dataset comprises over 400 000 child electronic records. Additionally, survey responses about health and well-being from a cross-section of the population including 2500 parents and 30 000 primary school children have been collected for enriched personal responses and linkage to the data spine.Findings to date The electronic cohort comprises all children born in Wales since 2011, with follow-up conducted until they finish primary school at age 11. The child cohort is 51%: 49% female: male, and 7.8% are from ethnic minority backgrounds. When considering age distribution, 26.8% of children are under the age of 5, while 63.2% fall within the age range of 5–11.Future plans Born in Wales will expand by 30 000 new births annually in Wales (in NCCHD), while including follow-up data of children and parents already in the database. Supplementary datasets complement the existing linkage, including primary care, hospital data, educational attainment and social care. 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spelling v2 66545 2024-05-31 Cohort profile: Born in Wales—a birth cohort with maternity, parental and child data linkage for life course research in Wales, UK 3fbf9b2f03a3a8f507dd35e9068bd485 Hope Jones Hope Jones true false fcc7ece0f04577ad5f283b00dd7f52cf 0000-0002-4921-7556 Mike Seaborne Mike Seaborne true false 9a717d184fb8f768e462d95b91e63e23 0000-0001-7047-0049 Michaela James Michaela James true false 8652b1ee0e3cf6eb4e6359c0aa2546af Sam Dredge Sam Dredge true false 9f1e77f76a83746112ef45709bf83630 Amrita Bandyopadhyay Amrita Bandyopadhyay true false 84f5661b35a729f55047f9e793d8798b 0000-0001-7417-2858 Sinead Brophy Sinead Brophy true false 2024-05-31 MEDS Purpose Using Wales’s national dataset for maternity and births as a core dataset, we have linked related datasets to create a more complete and comprehensive entire country birth cohort. Data of anonymised identified persons are linked on the individual level to data from health, social care and education data within the Secure Anonymised Information Linkage (SAIL) Databank. Each individual is assigned an encrypted Anonymised Linking Field; this field is used to link anonymised individuals across datasets. We present the descriptive data available in the core dataset, and the future expansion plans for the database beyond its initial development stage.Participants Descriptive information from 2011 to 2023 has been gathered from the National Community Child Health Database (NCCHD) in SAIL. This comprehensive dataset comprises over 400 000 child electronic records. Additionally, survey responses about health and well-being from a cross-section of the population including 2500 parents and 30 000 primary school children have been collected for enriched personal responses and linkage to the data spine.Findings to date The electronic cohort comprises all children born in Wales since 2011, with follow-up conducted until they finish primary school at age 11. The child cohort is 51%: 49% female: male, and 7.8% are from ethnic minority backgrounds. When considering age distribution, 26.8% of children are under the age of 5, while 63.2% fall within the age range of 5–11.Future plans Born in Wales will expand by 30 000 new births annually in Wales (in NCCHD), while including follow-up data of children and parents already in the database. Supplementary datasets complement the existing linkage, including primary care, hospital data, educational attainment and social care. Future research includes exploring the long-term implications of COVID-19 on child health and development, and examining the impact of parental work environment on child health and development. Journal Article BMJ Open 14 1 e076711 BMJ 2044-6055 2044-6055 18 1 2024 2024-01-18 10.1136/bmjopen-2023-076711 COLLEGE NANME Medical School COLLEGE CODE MEDS Swansea University SU Library paid the OA fee (TA Institutional Deal) This work was supported by the National Centre for Population Health and Wellbeing Research (NCPHWR) grant number [AMS103836]. 2024-05-31T12:27:34.6615192 2024-05-31T12:20:52.2174860 Faculty of Medicine, Health and Life Sciences Swansea University Medical School - Health Data Science Hope Jones 1 Mike Seaborne 0000-0002-4921-7556 2 Natasha L Kennedy 3 Michaela James 0000-0001-7047-0049 4 Sam Dredge 5 Amrita Bandyopadhyay 6 Adele Battaglia 0000-0002-6737-0343 7 Sarah Davies 8 Sinead Brophy 0000-0001-7417-2858 9 66545__30494__a28772c81c2b4f0aa14b3df1d739f6e0.pdf 66545.VOR.pdf 2024-05-31T12:25:57.8250353 Output 661379 application/pdf Version of Record true This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY- NC 4.0) license. true eng http://creativecommons.org/licenses/by-nc/4.0/
title Cohort profile: Born in Wales—a birth cohort with maternity, parental and child data linkage for life course research in Wales, UK
spellingShingle Cohort profile: Born in Wales—a birth cohort with maternity, parental and child data linkage for life course research in Wales, UK
Hope Jones
Mike Seaborne
Michaela James
Sam Dredge
Amrita Bandyopadhyay
Sinead Brophy
title_short Cohort profile: Born in Wales—a birth cohort with maternity, parental and child data linkage for life course research in Wales, UK
title_full Cohort profile: Born in Wales—a birth cohort with maternity, parental and child data linkage for life course research in Wales, UK
title_fullStr Cohort profile: Born in Wales—a birth cohort with maternity, parental and child data linkage for life course research in Wales, UK
title_full_unstemmed Cohort profile: Born in Wales—a birth cohort with maternity, parental and child data linkage for life course research in Wales, UK
title_sort Cohort profile: Born in Wales—a birth cohort with maternity, parental and child data linkage for life course research in Wales, UK
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author_id_fullname_str_mv 3fbf9b2f03a3a8f507dd35e9068bd485_***_Hope Jones
fcc7ece0f04577ad5f283b00dd7f52cf_***_Mike Seaborne
9a717d184fb8f768e462d95b91e63e23_***_Michaela James
8652b1ee0e3cf6eb4e6359c0aa2546af_***_Sam Dredge
9f1e77f76a83746112ef45709bf83630_***_Amrita Bandyopadhyay
84f5661b35a729f55047f9e793d8798b_***_Sinead Brophy
author Hope Jones
Mike Seaborne
Michaela James
Sam Dredge
Amrita Bandyopadhyay
Sinead Brophy
author2 Hope Jones
Mike Seaborne
Natasha L Kennedy
Michaela James
Sam Dredge
Amrita Bandyopadhyay
Adele Battaglia
Sarah Davies
Sinead Brophy
format Journal article
container_title BMJ Open
container_volume 14
container_issue 1
container_start_page e076711
publishDate 2024
institution Swansea University
issn 2044-6055
2044-6055
doi_str_mv 10.1136/bmjopen-2023-076711
publisher BMJ
college_str Faculty of Medicine, Health and Life Sciences
hierarchytype
hierarchy_top_id facultyofmedicinehealthandlifesciences
hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str Swansea University Medical School - Health Data Science{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}Swansea University Medical School - Health Data Science
document_store_str 1
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description Purpose Using Wales’s national dataset for maternity and births as a core dataset, we have linked related datasets to create a more complete and comprehensive entire country birth cohort. Data of anonymised identified persons are linked on the individual level to data from health, social care and education data within the Secure Anonymised Information Linkage (SAIL) Databank. Each individual is assigned an encrypted Anonymised Linking Field; this field is used to link anonymised individuals across datasets. We present the descriptive data available in the core dataset, and the future expansion plans for the database beyond its initial development stage.Participants Descriptive information from 2011 to 2023 has been gathered from the National Community Child Health Database (NCCHD) in SAIL. This comprehensive dataset comprises over 400 000 child electronic records. Additionally, survey responses about health and well-being from a cross-section of the population including 2500 parents and 30 000 primary school children have been collected for enriched personal responses and linkage to the data spine.Findings to date The electronic cohort comprises all children born in Wales since 2011, with follow-up conducted until they finish primary school at age 11. The child cohort is 51%: 49% female: male, and 7.8% are from ethnic minority backgrounds. When considering age distribution, 26.8% of children are under the age of 5, while 63.2% fall within the age range of 5–11.Future plans Born in Wales will expand by 30 000 new births annually in Wales (in NCCHD), while including follow-up data of children and parents already in the database. Supplementary datasets complement the existing linkage, including primary care, hospital data, educational attainment and social care. Future research includes exploring the long-term implications of COVID-19 on child health and development, and examining the impact of parental work environment on child health and development.
published_date 2024-01-18T12:27:34Z
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