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Validation of two scales for measuring participation and perceived stigma in Chinese community-based rehabilitation programs

Eva Chung Orcid Logo, Gigi Lam

Health and Quality of Life Outcomes, Volume: 16, Issue: 1

Swansea University Author: Eva Chung Orcid Logo

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DOI (Published version): 10.1186/s12955-018-0938-3

Abstract

BackgroundThe World Health Organization has asserted the importance of enhancing participation of people with disabilities within the International Classification of Functioning, Disability and Health framework. Participation is regarded as a vital outcome in community-based rehabilitation. The actu...

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Published in: Health and Quality of Life Outcomes
ISSN: 1477-7525
Published: Springer Science and Business Media LLC 2018
Online Access: Check full text

URI: https://cronfa.swan.ac.uk/Record/cronfa67571
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Abstract: BackgroundThe World Health Organization has asserted the importance of enhancing participation of people with disabilities within the International Classification of Functioning, Disability and Health framework. Participation is regarded as a vital outcome in community-based rehabilitation. The actualization of the right to participate is limited by social stigma and discrimination. To date, there is no validated instrument for use in Chinese communities to measure participation restriction or self-perceived stigma. This study aimed to translate and validate the Participation Scale and the Explanatory Model Interview Catalogue (EMIC) Stigma Scale for use in Chinese communities with people with physical disabilities.MethodsThe Chinese versions of the Participation Scale and the EMIC stigma scale were administered to 264 adults with physical disabilities. The two scales were examined separately. The reliability analysis was studied in conjunction with the construct validity. Reliability analysis was conducted to assess the internal consistency and item-total correlation. Exploratory factor analysis was conducted to investigate the latent patterns of relationships among variables. A Rasch model analysis was conducted to test the dimensionality, internal validity, item hierarchy, and scoring category structure of the two scales.ResultsBoth the Participation Scale and the EMIC stigma scale were confirmed to have good internal consistency and high item-total correlation. Exploratory factor analysis revealed the factor structure of the two scales, which demonstrated the fitting of a pattern of variables within the studied construct. The Participation Scale was found to be multidimensional, whereas the EMIC stigma scale was confirmed to be unidimensional. The item hierarchies of the Participation Scale and the EMIC stigma scale were discussed and were regarded as compatible with the cultural characteristics of Chinese communities.ConclusionThe Chinese versions of the Participation Scale and the EMIC stigma scale were thoroughly tested in this study to demonstrate their robustness and feasibility in measuring the participation restriction and perceived stigma of people with physical disabilities in Chinese communities. This is crucial as it provides valid measurements to enable comprehensive understanding and assessment of the participation and stigma among people with physical disabilities in Chinese communities.
Keywords: Participation; Disability; Stigma; Community-based rehabilitation
College: Faculty of Medicine, Health and Life Sciences
Funders: The design of the study and data collection was supported by the departmental research grant of the Tung Wah College (2014–00-74-RGC140301). The analysis, interpretation of data and the writing of manuscript was supported by the Research Support Scheme 2016/2017 of the Department of Special Education and Counselling at the Education University of Hong Kong.
Issue: 1

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