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Validation of two scales for measuring participation and perceived stigma in Chinese community-based rehabilitation programs

Eva Chung Orcid Logo, Gigi Lam

Health and Quality of Life Outcomes, Volume: 16, Issue: 1

Swansea University Author: Eva Chung Orcid Logo

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DOI (Published version): 10.1186/s12955-018-0938-3

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BackgroundThe World Health Organization has asserted the importance of enhancing participation of people with disabilities within the International Classification of Functioning, Disability and Health framework. Participation is regarded as a vital outcome in community-based rehabilitation. The actu...

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Published in: Health and Quality of Life Outcomes
ISSN: 1477-7525
Published: Springer Science and Business Media LLC 2018
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The actualization of the right to participate is limited by social stigma and discrimination. To date, there is no validated instrument for use in Chinese communities to measure participation restriction or self-perceived stigma. This study aimed to translate and validate the Participation Scale and the Explanatory Model Interview Catalogue (EMIC) Stigma Scale for use in Chinese communities with people with physical disabilities.MethodsThe Chinese versions of the Participation Scale and the EMIC stigma scale were administered to 264 adults with physical disabilities. The two scales were examined separately. The reliability analysis was studied in conjunction with the construct validity. Reliability analysis was conducted to assess the internal consistency and item-total correlation. Exploratory factor analysis was conducted to investigate the latent patterns of relationships among variables. A Rasch model analysis was conducted to test the dimensionality, internal validity, item hierarchy, and scoring category structure of the two scales.ResultsBoth the Participation Scale and the EMIC stigma scale were confirmed to have good internal consistency and high item-total correlation. Exploratory factor analysis revealed the factor structure of the two scales, which demonstrated the fitting of a pattern of variables within the studied construct. The Participation Scale was found to be multidimensional, whereas the EMIC stigma scale was confirmed to be unidimensional. The item hierarchies of the Participation Scale and the EMIC stigma scale were discussed and were regarded as compatible with the cultural characteristics of Chinese communities.ConclusionThe Chinese versions of the Participation Scale and the EMIC stigma scale were thoroughly tested in this study to demonstrate their robustness and feasibility in measuring the participation restriction and perceived stigma of people with physical disabilities in Chinese communities. This is crucial as it provides valid measurements to enable comprehensive understanding and assessment of the participation and stigma among people with physical disabilities in Chinese communities.</abstract><type>Journal Article</type><journal>Health and Quality of Life Outcomes</journal><volume>16</volume><journalNumber>1</journalNumber><paginationStart/><paginationEnd/><publisher>Springer Science and Business Media LLC</publisher><placeOfPublication/><isbnPrint/><isbnElectronic/><issnPrint/><issnElectronic>1477-7525</issnElectronic><keywords>Participation; Disability; Stigma; Community-based rehabilitation</keywords><publishedDay>29</publishedDay><publishedMonth>5</publishedMonth><publishedYear>2018</publishedYear><publishedDate>2018-05-29</publishedDate><doi>10.1186/s12955-018-0938-3</doi><url/><notes/><college>COLLEGE NANME</college><department>Health and Social Care School</department><CollegeCode>COLLEGE CODE</CollegeCode><DepartmentCode>HSOC</DepartmentCode><institution>Swansea University</institution><apcterm>Another institution paid the OA fee</apcterm><funders>The design of the study and data collection was supported by the departmental research grant of the Tung Wah College (2014–00-74-RGC140301). The analysis, interpretation of data and the writing of manuscript was supported by the Research Support Scheme 2016/2017 of the Department of Special Education and Counselling at the Education University of Hong Kong.</funders><projectreference/><lastEdited>2024-10-28T11:42:36.4117000</lastEdited><Created>2024-09-04T15:22:38.3992121</Created><path><level id="1">Faculty of Medicine, Health and Life Sciences</level><level id="2">School of Health and Social Care - Therapies</level></path><authors><author><firstname>Eva</firstname><surname>Chung</surname><orcid>0000-0003-4054-0645</orcid><order>1</order></author><author><firstname>Gigi</firstname><surname>Lam</surname><order>2</order></author></authors><documents><document><filename>67571__32738__fb8fbbea7483479dafead6179fc4bc7b.pdf</filename><originalFilename>67571.VoR.pdf</originalFilename><uploaded>2024-10-28T11:40:31.2426848</uploaded><type>Output</type><contentLength>1556097</contentLength><contentType>application/pdf</contentType><version>Version of Record</version><cronfaStatus>true</cronfaStatus><documentNotes>© The Author(s). 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spelling v2 67571 2024-09-04 Validation of two scales for measuring participation and perceived stigma in Chinese community-based rehabilitation programs 24f4ade6abb5abebab3a9b3838466101 0000-0003-4054-0645 Eva Chung Eva Chung true false 2024-09-04 HSOC BackgroundThe World Health Organization has asserted the importance of enhancing participation of people with disabilities within the International Classification of Functioning, Disability and Health framework. Participation is regarded as a vital outcome in community-based rehabilitation. The actualization of the right to participate is limited by social stigma and discrimination. To date, there is no validated instrument for use in Chinese communities to measure participation restriction or self-perceived stigma. This study aimed to translate and validate the Participation Scale and the Explanatory Model Interview Catalogue (EMIC) Stigma Scale for use in Chinese communities with people with physical disabilities.MethodsThe Chinese versions of the Participation Scale and the EMIC stigma scale were administered to 264 adults with physical disabilities. The two scales were examined separately. The reliability analysis was studied in conjunction with the construct validity. Reliability analysis was conducted to assess the internal consistency and item-total correlation. Exploratory factor analysis was conducted to investigate the latent patterns of relationships among variables. A Rasch model analysis was conducted to test the dimensionality, internal validity, item hierarchy, and scoring category structure of the two scales.ResultsBoth the Participation Scale and the EMIC stigma scale were confirmed to have good internal consistency and high item-total correlation. Exploratory factor analysis revealed the factor structure of the two scales, which demonstrated the fitting of a pattern of variables within the studied construct. The Participation Scale was found to be multidimensional, whereas the EMIC stigma scale was confirmed to be unidimensional. The item hierarchies of the Participation Scale and the EMIC stigma scale were discussed and were regarded as compatible with the cultural characteristics of Chinese communities.ConclusionThe Chinese versions of the Participation Scale and the EMIC stigma scale were thoroughly tested in this study to demonstrate their robustness and feasibility in measuring the participation restriction and perceived stigma of people with physical disabilities in Chinese communities. This is crucial as it provides valid measurements to enable comprehensive understanding and assessment of the participation and stigma among people with physical disabilities in Chinese communities. Journal Article Health and Quality of Life Outcomes 16 1 Springer Science and Business Media LLC 1477-7525 Participation; Disability; Stigma; Community-based rehabilitation 29 5 2018 2018-05-29 10.1186/s12955-018-0938-3 COLLEGE NANME Health and Social Care School COLLEGE CODE HSOC Swansea University Another institution paid the OA fee The design of the study and data collection was supported by the departmental research grant of the Tung Wah College (2014–00-74-RGC140301). The analysis, interpretation of data and the writing of manuscript was supported by the Research Support Scheme 2016/2017 of the Department of Special Education and Counselling at the Education University of Hong Kong. 2024-10-28T11:42:36.4117000 2024-09-04T15:22:38.3992121 Faculty of Medicine, Health and Life Sciences School of Health and Social Care - Therapies Eva Chung 0000-0003-4054-0645 1 Gigi Lam 2 67571__32738__fb8fbbea7483479dafead6179fc4bc7b.pdf 67571.VoR.pdf 2024-10-28T11:40:31.2426848 Output 1556097 application/pdf Version of Record true © The Author(s). This article is distributed under the terms of the Creative Commons Attribution 4.0 International License. true eng http://creativecommons.org/licenses/by/4.0/
title Validation of two scales for measuring participation and perceived stigma in Chinese community-based rehabilitation programs
spellingShingle Validation of two scales for measuring participation and perceived stigma in Chinese community-based rehabilitation programs
Eva Chung
title_short Validation of two scales for measuring participation and perceived stigma in Chinese community-based rehabilitation programs
title_full Validation of two scales for measuring participation and perceived stigma in Chinese community-based rehabilitation programs
title_fullStr Validation of two scales for measuring participation and perceived stigma in Chinese community-based rehabilitation programs
title_full_unstemmed Validation of two scales for measuring participation and perceived stigma in Chinese community-based rehabilitation programs
title_sort Validation of two scales for measuring participation and perceived stigma in Chinese community-based rehabilitation programs
author_id_str_mv 24f4ade6abb5abebab3a9b3838466101
author_id_fullname_str_mv 24f4ade6abb5abebab3a9b3838466101_***_Eva Chung
author Eva Chung
author2 Eva Chung
Gigi Lam
format Journal article
container_title Health and Quality of Life Outcomes
container_volume 16
container_issue 1
publishDate 2018
institution Swansea University
issn 1477-7525
doi_str_mv 10.1186/s12955-018-0938-3
publisher Springer Science and Business Media LLC
college_str Faculty of Medicine, Health and Life Sciences
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hierarchy_top_id facultyofmedicinehealthandlifesciences
hierarchy_top_title Faculty of Medicine, Health and Life Sciences
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hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str School of Health and Social Care - Therapies{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}School of Health and Social Care - Therapies
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description BackgroundThe World Health Organization has asserted the importance of enhancing participation of people with disabilities within the International Classification of Functioning, Disability and Health framework. Participation is regarded as a vital outcome in community-based rehabilitation. The actualization of the right to participate is limited by social stigma and discrimination. To date, there is no validated instrument for use in Chinese communities to measure participation restriction or self-perceived stigma. This study aimed to translate and validate the Participation Scale and the Explanatory Model Interview Catalogue (EMIC) Stigma Scale for use in Chinese communities with people with physical disabilities.MethodsThe Chinese versions of the Participation Scale and the EMIC stigma scale were administered to 264 adults with physical disabilities. The two scales were examined separately. The reliability analysis was studied in conjunction with the construct validity. Reliability analysis was conducted to assess the internal consistency and item-total correlation. Exploratory factor analysis was conducted to investigate the latent patterns of relationships among variables. A Rasch model analysis was conducted to test the dimensionality, internal validity, item hierarchy, and scoring category structure of the two scales.ResultsBoth the Participation Scale and the EMIC stigma scale were confirmed to have good internal consistency and high item-total correlation. Exploratory factor analysis revealed the factor structure of the two scales, which demonstrated the fitting of a pattern of variables within the studied construct. The Participation Scale was found to be multidimensional, whereas the EMIC stigma scale was confirmed to be unidimensional. The item hierarchies of the Participation Scale and the EMIC stigma scale were discussed and were regarded as compatible with the cultural characteristics of Chinese communities.ConclusionThe Chinese versions of the Participation Scale and the EMIC stigma scale were thoroughly tested in this study to demonstrate their robustness and feasibility in measuring the participation restriction and perceived stigma of people with physical disabilities in Chinese communities. This is crucial as it provides valid measurements to enable comprehensive understanding and assessment of the participation and stigma among people with physical disabilities in Chinese communities.
published_date 2018-05-29T11:42:34Z
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score 11.03559

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