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Seeking in Cycles: How Users Leverage Personal Information Ecosystems to Find Mental Health Information

Ashlee Milton Orcid Logo, Fernando Maestre Avila Orcid Logo, Abhishek Roy Orcid Logo, Rebecca Umbach Orcid Logo, Stevie Chancellor Orcid Logo

Proceedings of the CHI Conference on Human Factors in Computing Systems, Volume: 184, Pages: 1 - 16

Swansea University Author: Fernando Maestre Avila Orcid Logo

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DOI (Published version): 10.1145/3613904.3641894

Abstract

Information is crucial to how people understand their mental health and well-being, and many turn to online sources found through search engines and social media. We present an interview study (n = 17) of participants who use online platforms to seek information about their mental illnesses. Partici...

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Published in: Proceedings of the CHI Conference on Human Factors in Computing Systems
Published: New York, NY, USA ACM 2024
Online Access: http://dx.doi.org/10.1145/3613904.3641894
URI: https://cronfa.swan.ac.uk/Record/cronfa67656
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Abstract: Information is crucial to how people understand their mental health and well-being, and many turn to online sources found through search engines and social media. We present an interview study (n = 17) of participants who use online platforms to seek information about their mental illnesses. Participants use their personal information ecosystems in a cyclical process to find information. This cycle is driven by the adoption of new information and questioning the credibility of information. Privacy concerns fueled by perceptions of stigma and platform design also influence their information-seeking decisions. Our work proposes theoretical implications for social computing and information retrieval on information seeking in users’ personal information ecosystems. We offer design implications to support users in navigating personal information ecosystems to find mental health information.
College: Faculty of Science and Engineering
Start Page: 1
End Page: 16