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The Feasibility and Acceptability of a Community Science Approach to Explore Infant Formula Preparation Safety in the Home

Sara Jones Orcid Logo, Jonie Cooper, Abbie Dolling, Tara McNamara, Susan Dvorak, Vicky Sibson Orcid Logo, Amy Brown Orcid Logo, Emma Yhnell Orcid Logo, Phyll Buchanan Orcid Logo, Sharon Breward, Rebecca Ellis Orcid Logo, Aimee Grant Orcid Logo

Citizen Science: Theory and Practice, Volume: 10, Issue: 1

Swansea University Authors: Sara Jones Orcid Logo, Amy Brown Orcid Logo, Rebecca Ellis Orcid Logo, Aimee Grant Orcid Logo

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DOI (Published version): 10.5334/cstp.692

Abstract

Parents often seek out information about health and parenting topics, but despite this, there have been few attempts to actively engage them in the research process. We aimed to assess the feasibility and acceptability of using community science (CS) in a pilot study to explore infant formula prepar...

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Published in: Citizen Science: Theory and Practice
ISSN: 2057-4991 2057-4991
Published: Ubiquity Press, Ltd. 2025
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URI: https://cronfa.swan.ac.uk/Record/cronfa68462
first_indexed 2025-01-10T14:33:49Z
last_indexed 2025-01-10T14:33:49Z
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We aimed to assess the feasibility and acceptability of using community science (CS) in a pilot study to explore infant formula preparation safety in the home in the United Kingdom.Parents were involved at each research stage, including (i) pre-funding consultation (n = 17), (ii) research design (n = 19), (iii) data generation (n = 151), (iv) research education (n = 8), (v) data analysis (n = 5), (vi) reflections on participation in CS (n = 151) and participation in the data analysis group (n = 5), and (vii) the development of research outputs (n = 5).Parents proposed that a closed Facebook group would be a feasible platform for CS. This had limited effectiveness in engaging parents in research design but was more successful in recruitment to the data generation stage. Many parents reported enjoyment in taking part and feeling valued for their knowledge, although for a minority, increased awareness of the risks of preparing infant formula caused distress. Research education engagement on social media was limited. The small data analysis group allowed for more in-depth contributions; however, facilitation was resource intensive so was necessarily limited.Participant fatigue is a risk in CS. Solutions to ongoing engagement, especially (in our case) with research education, are needed. Researchers must also mitigate harm to community scientists arising from their involvement in investigating sensitive topics. Existing research contexts created barriers, so in practice, more funding is needed to facilitate CS.</abstract><type>Journal Article</type><journal>Citizen Science: Theory and Practice</journal><volume>10</volume><journalNumber>1</journalNumber><paginationStart/><paginationEnd/><publisher>Ubiquity Press, Ltd.</publisher><placeOfPublication/><isbnPrint/><isbnElectronic/><issnPrint>2057-4991</issnPrint><issnElectronic>2057-4991</issnElectronic><keywords>community science, citizen science, participatory research, infant formula, social media, research, parenting research</keywords><publishedDay>9</publishedDay><publishedMonth>1</publishedMonth><publishedYear>2025</publishedYear><publishedDate>2025-01-09</publishedDate><doi>10.5334/cstp.692</doi><url>https://doi.org/10.5334/cstp.692</url><notes/><college>COLLEGE NANME</college><department>Health and Social Care School</department><CollegeCode>COLLEGE CODE</CollegeCode><DepartmentCode>HSOC</DepartmentCode><institution>Swansea University</institution><apcterm>External research funder(s) paid the OA fee (includes OA grants disbursed by the Library)</apcterm><funders>UKRI, BB/W009188/1</funders><projectreference/><lastEdited>2025-01-10T09:21:23.1266425</lastEdited><Created>2024-12-04T10:57:20.6932175</Created><path><level id="1">Faculty of Medicine, Health and Life Sciences</level><level id="2">School of Health and Social Care - Public Health</level></path><authors><author><firstname>Sara</firstname><surname>Jones</surname><orcid>0000-0003-2182-6314</orcid><order>1</order></author><author><firstname>Jonie</firstname><surname>Cooper</surname><order>2</order></author><author><firstname>Abbie</firstname><surname>Dolling</surname><order>3</order></author><author><firstname>Tara</firstname><surname>McNamara</surname><order>4</order></author><author><firstname>Susan</firstname><surname>Dvorak</surname><order>5</order></author><author><firstname>Vicky</firstname><surname>Sibson</surname><orcid>0000-0001-5189-8883</orcid><order>6</order></author><author><firstname>Amy</firstname><surname>Brown</surname><orcid>0000-0002-0438-0157</orcid><order>7</order></author><author><firstname>Emma</firstname><surname>Yhnell</surname><orcid>0000-0003-3960-5181</orcid><order>8</order></author><author><firstname>Phyll</firstname><surname>Buchanan</surname><orcid>0000-0002-1436-4396</orcid><order>9</order></author><author><firstname>Sharon</firstname><surname>Breward</surname><order>10</order></author><author><firstname>Rebecca</firstname><surname>Ellis</surname><orcid>0000-0002-7761-468X</orcid><order>11</order></author><author><firstname>Aimee</firstname><surname>Grant</surname><orcid>0000-0001-7205-5869</orcid><order>12</order></author></authors><documents/><OutputDurs/></rfc1807>
spelling 2025-01-10T09:21:23.1266425 v2 68462 2024-12-04 The Feasibility and Acceptability of a Community Science Approach to Explore Infant Formula Preparation Safety in the Home e6ed433db8a59b5e3077e3de5888a98a 0000-0003-2182-6314 Sara Jones Sara Jones true false 37aea6965461cb0510473d109411a0c3 0000-0002-0438-0157 Amy Brown Amy Brown true false 8ea1fbb848d05d2f0262c6d03cfc9698 0000-0002-7761-468X Rebecca Ellis Rebecca Ellis true false 6a1ce3bc54c692c804e858b70d2e4bd2 0000-0001-7205-5869 Aimee Grant Aimee Grant true false 2024-12-04 HSOC Parents often seek out information about health and parenting topics, but despite this, there have been few attempts to actively engage them in the research process. We aimed to assess the feasibility and acceptability of using community science (CS) in a pilot study to explore infant formula preparation safety in the home in the United Kingdom.Parents were involved at each research stage, including (i) pre-funding consultation (n = 17), (ii) research design (n = 19), (iii) data generation (n = 151), (iv) research education (n = 8), (v) data analysis (n = 5), (vi) reflections on participation in CS (n = 151) and participation in the data analysis group (n = 5), and (vii) the development of research outputs (n = 5).Parents proposed that a closed Facebook group would be a feasible platform for CS. This had limited effectiveness in engaging parents in research design but was more successful in recruitment to the data generation stage. Many parents reported enjoyment in taking part and feeling valued for their knowledge, although for a minority, increased awareness of the risks of preparing infant formula caused distress. Research education engagement on social media was limited. The small data analysis group allowed for more in-depth contributions; however, facilitation was resource intensive so was necessarily limited.Participant fatigue is a risk in CS. Solutions to ongoing engagement, especially (in our case) with research education, are needed. Researchers must also mitigate harm to community scientists arising from their involvement in investigating sensitive topics. Existing research contexts created barriers, so in practice, more funding is needed to facilitate CS. Journal Article Citizen Science: Theory and Practice 10 1 Ubiquity Press, Ltd. 2057-4991 2057-4991 community science, citizen science, participatory research, infant formula, social media, research, parenting research 9 1 2025 2025-01-09 10.5334/cstp.692 https://doi.org/10.5334/cstp.692 COLLEGE NANME Health and Social Care School COLLEGE CODE HSOC Swansea University External research funder(s) paid the OA fee (includes OA grants disbursed by the Library) UKRI, BB/W009188/1 2025-01-10T09:21:23.1266425 2024-12-04T10:57:20.6932175 Faculty of Medicine, Health and Life Sciences School of Health and Social Care - Public Health Sara Jones 0000-0003-2182-6314 1 Jonie Cooper 2 Abbie Dolling 3 Tara McNamara 4 Susan Dvorak 5 Vicky Sibson 0000-0001-5189-8883 6 Amy Brown 0000-0002-0438-0157 7 Emma Yhnell 0000-0003-3960-5181 8 Phyll Buchanan 0000-0002-1436-4396 9 Sharon Breward 10 Rebecca Ellis 0000-0002-7761-468X 11 Aimee Grant 0000-0001-7205-5869 12
title The Feasibility and Acceptability of a Community Science Approach to Explore Infant Formula Preparation Safety in the Home
spellingShingle The Feasibility and Acceptability of a Community Science Approach to Explore Infant Formula Preparation Safety in the Home
Sara Jones
Amy Brown
Rebecca Ellis
Aimee Grant
title_short The Feasibility and Acceptability of a Community Science Approach to Explore Infant Formula Preparation Safety in the Home
title_full The Feasibility and Acceptability of a Community Science Approach to Explore Infant Formula Preparation Safety in the Home
title_fullStr The Feasibility and Acceptability of a Community Science Approach to Explore Infant Formula Preparation Safety in the Home
title_full_unstemmed The Feasibility and Acceptability of a Community Science Approach to Explore Infant Formula Preparation Safety in the Home
title_sort The Feasibility and Acceptability of a Community Science Approach to Explore Infant Formula Preparation Safety in the Home
author_id_str_mv e6ed433db8a59b5e3077e3de5888a98a
37aea6965461cb0510473d109411a0c3
8ea1fbb848d05d2f0262c6d03cfc9698
6a1ce3bc54c692c804e858b70d2e4bd2
author_id_fullname_str_mv e6ed433db8a59b5e3077e3de5888a98a_***_Sara Jones
37aea6965461cb0510473d109411a0c3_***_Amy Brown
8ea1fbb848d05d2f0262c6d03cfc9698_***_Rebecca Ellis
6a1ce3bc54c692c804e858b70d2e4bd2_***_Aimee Grant
author Sara Jones
Amy Brown
Rebecca Ellis
Aimee Grant
author2 Sara Jones
Jonie Cooper
Abbie Dolling
Tara McNamara
Susan Dvorak
Vicky Sibson
Amy Brown
Emma Yhnell
Phyll Buchanan
Sharon Breward
Rebecca Ellis
Aimee Grant
format Journal article
container_title Citizen Science: Theory and Practice
container_volume 10
container_issue 1
publishDate 2025
institution Swansea University
issn 2057-4991
2057-4991
doi_str_mv 10.5334/cstp.692
publisher Ubiquity Press, Ltd.
college_str Faculty of Medicine, Health and Life Sciences
hierarchytype
hierarchy_top_id facultyofmedicinehealthandlifesciences
hierarchy_top_title Faculty of Medicine, Health and Life Sciences
hierarchy_parent_id facultyofmedicinehealthandlifesciences
hierarchy_parent_title Faculty of Medicine, Health and Life Sciences
department_str School of Health and Social Care - Public Health{{{_:::_}}}Faculty of Medicine, Health and Life Sciences{{{_:::_}}}School of Health and Social Care - Public Health
url https://doi.org/10.5334/cstp.692
document_store_str 0
active_str 0
description Parents often seek out information about health and parenting topics, but despite this, there have been few attempts to actively engage them in the research process. We aimed to assess the feasibility and acceptability of using community science (CS) in a pilot study to explore infant formula preparation safety in the home in the United Kingdom.Parents were involved at each research stage, including (i) pre-funding consultation (n = 17), (ii) research design (n = 19), (iii) data generation (n = 151), (iv) research education (n = 8), (v) data analysis (n = 5), (vi) reflections on participation in CS (n = 151) and participation in the data analysis group (n = 5), and (vii) the development of research outputs (n = 5).Parents proposed that a closed Facebook group would be a feasible platform for CS. This had limited effectiveness in engaging parents in research design but was more successful in recruitment to the data generation stage. Many parents reported enjoyment in taking part and feeling valued for their knowledge, although for a minority, increased awareness of the risks of preparing infant formula caused distress. Research education engagement on social media was limited. The small data analysis group allowed for more in-depth contributions; however, facilitation was resource intensive so was necessarily limited.Participant fatigue is a risk in CS. Solutions to ongoing engagement, especially (in our case) with research education, are needed. Researchers must also mitigate harm to community scientists arising from their involvement in investigating sensitive topics. Existing research contexts created barriers, so in practice, more funding is needed to facilitate CS.
published_date 2025-01-09T14:38:56Z
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score 11.04748

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