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First steps in PROMs and PREMs collection in Wales as part of the prudent and value-based healthcare agenda

Kathleen Withers Orcid Logo, Robert Palmer Orcid Logo, Sally Lewis Orcid Logo, Grace Carolan-Rees Orcid Logo

Quality of Life Research, Volume: 30, Issue: 11, Pages: 3157 - 3170

Swansea University Author: Sally Lewis Orcid Logo

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DOI (Published version): 10.1007/s11136-020-02711-2

Abstract

PurposePatients are experts in their own health and should be treated as equal partners in their care. Patient-reported outcome measures (PROMs) are an effective way of gathering patient feedback and can facilitate effectiveness and cost-effectiveness analysis to improve decision making and service...

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Published in: Quality of Life Research
ISSN: 0962-9343 1573-2649
Published: Springer Science and Business Media LLC 2021
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URI: https://cronfa.swan.ac.uk/Record/cronfa71011
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last_indexed 2025-12-19T06:52:31Z
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spelling 2025-12-18T16:31:24.0076698 v2 71011 2025-11-28 First steps in PROMs and PREMs collection in Wales as part of the prudent and value-based healthcare agenda f800f55db95f30d9a4ebb0ed6e24fe8a 0000-0002-2369-2308 Sally Lewis Sally Lewis true false 2025-11-28 CBAE PurposePatients are experts in their own health and should be treated as equal partners in their care. Patient-reported outcome measures (PROMs) are an effective way of gathering patient feedback and can facilitate effectiveness and cost-effectiveness analysis to improve decision making and service improvement. The PROMs, PREMs & Effectiveness Programme was initiated in 2016 and aimed to develop an electronic platform to facilitate collection of PROMs and Patient-reported experience measures (PREMs) from secondary care patients across Wales.MethodsWe worked with all Health Boards in Wales, the NHS Wales Informatics Service (NWIS), and Cedar (a healthcare technology research centre) to identify and meet technical requirements to develop a platform which is fit for purpose. Patient groups were included throughout the development to gather feedback and for extensive testing. Clinical teams helped identify the most appropriate tools, with licences, translations and electronic formatting issues being managed centrally.ResultsThe developed platform is integrated with patient administration systems minimising the need for manual input, with processes in place to allow automatic collection triggers according to nationally agreed schedules. We have over 30 nationally agreed PROMs ‘pathways’ with over 110,000 PROMs collected to date. Responses are fed back to clinicians via the electronic patient record and to each health board via feeds to the national data warehouse, making data easily accessible to different teams, maximising use and application.DiscussionThe national platform has provided a co-ordinated approach to PROMs collection in Wales, offering an effective means of communicating with patients outside the traditional clinic visit. Journal Article Quality of Life Research 30 11 3157 3170 Springer Science and Business Media LLC 0962-9343 1573-2649 Shared decision making; Health-related quality-of-life; Value-based healthcare; Patient engagement; Patient-reported outcomes; PROMS 1 11 2021 2021-11-01 10.1007/s11136-020-02711-2 COLLEGE NANME Management School COLLEGE CODE CBAE Swansea University Another institution paid the OA fee The PROMs, PREMs and Effectiveness programme was funded by a grant from Welsh Government (Grant ETTF X.481.XTT). 2025-12-18T16:31:24.0076698 2025-11-28T11:12:26.0952047 Faculty of Humanities and Social Sciences School of Management - Business Management Kathleen Withers 0000-0001-9514-2025 1 Robert Palmer 0000-0003-0570-515x 2 Sally Lewis 0000-0002-2369-2308 3 Grace Carolan-Rees 0000-0003-1787-2123 4 71011__35859__2f3ed39bc6d14ac7ad99f540f6727489.pdf 71011.VoR.pdf 2025-12-18T16:29:07.6217416 Output 1152064 application/pdf Version of Record true © The Author(s) 2020. This article is licensed under a Creative Commons Attribution 4.0 International License. true eng http://creativecommons.org/licenses/by/4.0/
title First steps in PROMs and PREMs collection in Wales as part of the prudent and value-based healthcare agenda
spellingShingle First steps in PROMs and PREMs collection in Wales as part of the prudent and value-based healthcare agenda
Sally Lewis
title_short First steps in PROMs and PREMs collection in Wales as part of the prudent and value-based healthcare agenda
title_full First steps in PROMs and PREMs collection in Wales as part of the prudent and value-based healthcare agenda
title_fullStr First steps in PROMs and PREMs collection in Wales as part of the prudent and value-based healthcare agenda
title_full_unstemmed First steps in PROMs and PREMs collection in Wales as part of the prudent and value-based healthcare agenda
title_sort First steps in PROMs and PREMs collection in Wales as part of the prudent and value-based healthcare agenda
author_id_str_mv f800f55db95f30d9a4ebb0ed6e24fe8a
author_id_fullname_str_mv f800f55db95f30d9a4ebb0ed6e24fe8a_***_Sally Lewis
author Sally Lewis
author2 Kathleen Withers
Robert Palmer
Sally Lewis
Grace Carolan-Rees
format Journal article
container_title Quality of Life Research
container_volume 30
container_issue 11
container_start_page 3157
publishDate 2021
institution Swansea University
issn 0962-9343
1573-2649
doi_str_mv 10.1007/s11136-020-02711-2
publisher Springer Science and Business Media LLC
college_str Faculty of Humanities and Social Sciences
hierarchytype
hierarchy_top_id facultyofhumanitiesandsocialsciences
hierarchy_top_title Faculty of Humanities and Social Sciences
hierarchy_parent_id facultyofhumanitiesandsocialsciences
hierarchy_parent_title Faculty of Humanities and Social Sciences
department_str School of Management - Business Management{{{_:::_}}}Faculty of Humanities and Social Sciences{{{_:::_}}}School of Management - Business Management
document_store_str 1
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description PurposePatients are experts in their own health and should be treated as equal partners in their care. Patient-reported outcome measures (PROMs) are an effective way of gathering patient feedback and can facilitate effectiveness and cost-effectiveness analysis to improve decision making and service improvement. The PROMs, PREMs & Effectiveness Programme was initiated in 2016 and aimed to develop an electronic platform to facilitate collection of PROMs and Patient-reported experience measures (PREMs) from secondary care patients across Wales.MethodsWe worked with all Health Boards in Wales, the NHS Wales Informatics Service (NWIS), and Cedar (a healthcare technology research centre) to identify and meet technical requirements to develop a platform which is fit for purpose. Patient groups were included throughout the development to gather feedback and for extensive testing. Clinical teams helped identify the most appropriate tools, with licences, translations and electronic formatting issues being managed centrally.ResultsThe developed platform is integrated with patient administration systems minimising the need for manual input, with processes in place to allow automatic collection triggers according to nationally agreed schedules. We have over 30 nationally agreed PROMs ‘pathways’ with over 110,000 PROMs collected to date. Responses are fed back to clinicians via the electronic patient record and to each health board via feeds to the national data warehouse, making data easily accessible to different teams, maximising use and application.DiscussionThe national platform has provided a co-ordinated approach to PROMs collection in Wales, offering an effective means of communicating with patients outside the traditional clinic visit.
published_date 2021-11-01T05:32:59Z
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