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Exploring patients' experiences of the impact of dialysis therapies on quality of life and wellbeing

Joe Antoun Orcid Logo, Daniel J. Brown Orcid Logo, Daniel J. W. Jones Orcid Logo, Beth G. Clarkson, Anthony I. Shepherd Orcid Logo, Nicholas C. Sangala, Robert J. Lewis, Melitta McNarry Orcid Logo, Kelly Mackintosh Orcid Logo, Laura Mason Orcid Logo, Jo Corbett Orcid Logo, Zoe L. Saynor Orcid Logo

Journal of Renal Care

Swansea University Authors: Melitta McNarry Orcid Logo, Kelly Mackintosh Orcid Logo, Laura Mason Orcid Logo

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DOI (Published version): 10.1111/jorc.12416

Abstract

BackgroundWhen people with chronic kidney disease reach kidney failure, renal replacement therapy is usually required to improve symptoms and maintain life. Although in-centre haemodialysis is most commonly used for this purpose, other forms of dialysis are available, including home haemodialysis an...

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Published in: Journal of Renal Care
ISSN: 1755-6678 1755-6686
Published: Wiley 2022
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URI: https://cronfa.swan.ac.uk/Record/cronfa59328
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Abstract: BackgroundWhen people with chronic kidney disease reach kidney failure, renal replacement therapy is usually required to improve symptoms and maintain life. Although in-centre haemodialysis is most commonly used for this purpose, other forms of dialysis are available, including home haemodialysis and peritoneal dialysis. ObjectivesWe aimed to explore the experiences of adults living with chronic kidney disease who were either approaching the need for dialysis or had reached kidney failure and were receiving a form of dialysis. In particular, we explored how different forms of dialysis affect their quality of life, wellbeing and physical activity. MethodsIndividual semi-structured interviews were conducted with 40 adults with kidney failure, comprising four groups (n = 10 each): those receiving in-centre haemodialysis, home haemodialysis or peritoneal dialysis, or pre-dialysis. Interviews were transcribed verbatim, thematically analysed and then composite vignettes were subsequently developed to present a rich narrative of the collective experiences of each group. FindingsCompared with adults who were pre-dialysis, quality of life and wellbeing improved upon initiation of their home haemodialysis or peritoneal dialysis. Conversely, minimal improvement was perceived by those receiving in-centre haemodialysis. Low physical activity was reported across all four groups, although those receiving home haemodialysis and peritoneal dialysis reported a greater desire and ability to be physically active than those in-centre.ConclusionThese findings highlight that dialysis modalities not requiring regular hospital attendance (i.e. home haemodialysis and peritoneal dialysis) improve independence, quality of life, wellbeing and can facilitate a more physically active lifestyle.
Keywords: home haemodialysis; patient experience; peritoneal dialysis; quality of Life
College: College of Engineering
Funders: NxStage Medical Inc